Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Warning Label


jenvan

Recommended Posts

turtle99 Rookie

Question re: labels

Do you any of you eat products that do not specifically say "gulten free" ?

For example many corn chips, do not have gluten-typle ingredients, would you still eat them?

Do you consider it risky to eat products that are not labelled gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Most of us eat many products that aren't specifically marked gluten-free. In fact, large numbers of products that aren't marked gluten-free are indeed gluten-free.

richard

MySuicidalTurtle Enthusiast

I eat those kind if I call the company first.

KaitiUSA Enthusiast

There are some brands like Kraft who will not hide anything but they do not list gluten free on the label. They will however list wheat,rye,barley,oats right on the label if they contain any.

For other brands who do not have that policy and don't list gluten free on them the best thing is too call the company.

I eat alot of products that don't say specifically gluten free on them.

tarnalberry Community Regular

I'll definitely eat things that aren't specifically labeled gluten-free, if the ingredients are gluten-free.

Guest gillian502

I will absolutely not eat any products that have a warning label on them, no way. They are basically telling you point blank the item is cross contaminated. I will eat items only if I have called the company and they tell me that particular item is not run on the same lines with a gluten containing food.

As for eating items not labeled gluten-free, we have no other choice. Few foods are marked "gluten-free" even though they may be gluten-free.

phakephur Apprentice

I would assume the absence of a warning label would indicate lack of awareness of the gluten free lifestyle, not necessarily the lack of cross contamination.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lotusgem Rookie

Oh my! Assumptions can be very risky business. If there's one thing I've learned since going gluten-free, it is that you can not take anything for granted. Until we get actual legal guidelines for food labeling as regards gluten, it's always best to check and make sure that your "assumption" is accurate, lest you eat something unsafe. :rolleyes:

Paula

turtle99 Rookie

I hadn't realized that going gluten-free was such tricky business til I started. I ate a wonderfully yummy organic chocolate bar, when half way through , I read on the label that it was made in a facilitythat uses wheat! So I kinda lied to myself, thinking maybe this bar didn't come into contact with it......because it tastes soooo good. So I ate the rest of the chocolate bar, and my lethargic old self was returning. It wasn't as severe but I starting feeling off..... Ok, yeh , so I learned my lesson. I need to take these warnings seriously.

I think if we want to be absolutely sure we do need some kind of verification from the makers of the product. So that's a lot of companies to call! I'm starting to get so scared of what to eat, I'm just eating plain whole foods now like potatoes, cheese, rice, eggs, fruits, salad.

What about deli meats? sausages? Do they usually contain gluten?

Do any of you have bad reactions to preservatives and additives, and flavour enhancers, like MSG ?

baggotlane Rookie

I don't see how the defense could stand up! If they say 'gluten-free' then it must be gluten-free, no matter where or how it is produced. How can that statement mean anything else? What do they mea by facility?

It's all a farce. For me, if iIsee the warning I cannot trust the company. Therefore I will not buy it.

Andrew

Nadtorious Rookie

I'm not going to point fingers, but yes, there is at least one company that labels their products as gluten free on the front of the package, but has the CYA warning on the back about being produced in the same facility and that cross contamination may occur. I know a lot of people haven't reacted to these products, but I have, and I think its kind of shady that a company can get away with that. Many new celiacs, like me at one point, saw a gluten free label as worry free and don't bother to read the ingredients. It's scary to think that a company would want to take advantage of such a serious illness by marketing something this way. I never thought I'd say this, but maybe the FDA needs to get involved in this.

Peace-

Nadia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,165
    • Most Online (within 30 mins)
      7,748

    AmynDevyn
    Newest Member
    AmynDevyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.