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The Warning Label


jenvan

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turtle99 Rookie

Question re: labels

Do you any of you eat products that do not specifically say "gulten free" ?

For example many corn chips, do not have gluten-typle ingredients, would you still eat them?

Do you consider it risky to eat products that are not labelled gluten free?


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lovegrov Collaborator

Most of us eat many products that aren't specifically marked gluten-free. In fact, large numbers of products that aren't marked gluten-free are indeed gluten-free.

richard

MySuicidalTurtle Enthusiast

I eat those kind if I call the company first.

KaitiUSA Enthusiast

There are some brands like Kraft who will not hide anything but they do not list gluten free on the label. They will however list wheat,rye,barley,oats right on the label if they contain any.

For other brands who do not have that policy and don't list gluten free on them the best thing is too call the company.

I eat alot of products that don't say specifically gluten free on them.

tarnalberry Community Regular

I'll definitely eat things that aren't specifically labeled gluten-free, if the ingredients are gluten-free.

Guest gillian502

I will absolutely not eat any products that have a warning label on them, no way. They are basically telling you point blank the item is cross contaminated. I will eat items only if I have called the company and they tell me that particular item is not run on the same lines with a gluten containing food.

As for eating items not labeled gluten-free, we have no other choice. Few foods are marked "gluten-free" even though they may be gluten-free.

phakephur Apprentice

I would assume the absence of a warning label would indicate lack of awareness of the gluten free lifestyle, not necessarily the lack of cross contamination.


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lotusgem Rookie

Oh my! Assumptions can be very risky business. If there's one thing I've learned since going gluten-free, it is that you can not take anything for granted. Until we get actual legal guidelines for food labeling as regards gluten, it's always best to check and make sure that your "assumption" is accurate, lest you eat something unsafe. :rolleyes:

Paula

turtle99 Rookie

I hadn't realized that going gluten-free was such tricky business til I started. I ate a wonderfully yummy organic chocolate bar, when half way through , I read on the label that it was made in a facilitythat uses wheat! So I kinda lied to myself, thinking maybe this bar didn't come into contact with it......because it tastes soooo good. So I ate the rest of the chocolate bar, and my lethargic old self was returning. It wasn't as severe but I starting feeling off..... Ok, yeh , so I learned my lesson. I need to take these warnings seriously.

I think if we want to be absolutely sure we do need some kind of verification from the makers of the product. So that's a lot of companies to call! I'm starting to get so scared of what to eat, I'm just eating plain whole foods now like potatoes, cheese, rice, eggs, fruits, salad.

What about deli meats? sausages? Do they usually contain gluten?

Do any of you have bad reactions to preservatives and additives, and flavour enhancers, like MSG ?

baggotlane Rookie

I don't see how the defense could stand up! If they say 'gluten-free' then it must be gluten-free, no matter where or how it is produced. How can that statement mean anything else? What do they mea by facility?

It's all a farce. For me, if iIsee the warning I cannot trust the company. Therefore I will not buy it.

Andrew

Nadtorious Rookie

I'm not going to point fingers, but yes, there is at least one company that labels their products as gluten free on the front of the package, but has the CYA warning on the back about being produced in the same facility and that cross contamination may occur. I know a lot of people haven't reacted to these products, but I have, and I think its kind of shady that a company can get away with that. Many new celiacs, like me at one point, saw a gluten free label as worry free and don't bother to read the ingredients. It's scary to think that a company would want to take advantage of such a serious illness by marketing something this way. I never thought I'd say this, but maybe the FDA needs to get involved in this.

Peace-

Nadia

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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