Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused About Low Lactase But No Allergy To Milk?


RobynJ

Recommended Posts

RobynJ Apprentice

So my son just got his blood allergy test. They tested through US BioTek for IgG. He came back extremely reactive to gluten, wheat, rye, eggs, spelt, carrots, and radishes. This confirmed the issue for gluten. However, I am confused by the dairy results.

It showed no allergy to dairy (milk, casein, cheese). When they did the endoscopy it showed his lactase levels were half of what they should have been. Indicating lactose itolerance. So in short- what should I make the rule be for dairy? I am just confused- any help would be great.

Thanks!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Being lactose intolerant is different than a milk (casein) allergy. The allergy is a histamine reaction that can also spill over into headaches as a result of the reaction to the protein in dairy. Lactose is the sugar in dairy that many of us cannot fully digest. This leads to many gastro problems.

Celiac disease shows as damage to the villi in the small intestine and the tips of the villi are what digest lactose. They are the first to be damaged. So many persons with celiac disease cannot tolerate dairy when they start their gluten-free diet. But after some healing, maybe a few months, dairy can successfully reintroduced. It doesn't work with everyone but each individual has to try it and see what they can safely tolerate.

I would say if your son is not allergic, back off the dairy for now then try a little in a few months and see how he does with it. He may be one of the lucky ones that can go back to dairy.

tarnalberry Community Regular

Dairy allergy means that the body is producing an immune response (usually classic "allergy", IgE mediated, immune response) to casein, the primary protein found in mammalian milk. Lactose intolerance means that his intestines are not producing enough lactase enzyme to digest lactose, the primary complex sugar in milk.

You can buy and separately take lactase from the grocery store or pharmacy. It has to be taken just prior to eating, so the body has the lactase in the stomach for digesting the sugar. It's all that some folks need, while others find it helps, but doesn't entirely eliminate symptoms. Lactose intolerance isn't *dangerous*, but it can be horridly uncomfortable. Low lactose dairy products are often a good choice for those with mild to moderate lactose intolerance, like it sounds like your son has. This includes yogurt and hard cheeses, but not fluid milk.

Eliminating milk entirely is an option, but in those who produce lactase into adulthood, if you want fluid milk and softer cheeses to be an option, I would see if it's possible to not eliminate completely. Lactase production is a 'use it or lose it' type of thing - if your body doesn't sense any lactose to digest, it won't produce lactase to do the digesting. Adults who retain the ability to have lactose later in life can "rebuild" the ability to produce it if it's been 'deactivated', but it can take some time, and be unpleasant on the way there. (It's quite common for lactose intolerance to incrementally develop in adulthood throughout the majority of the world - being able to consume it later in life is a relatively recent genetic change.) (All that said, I'm dairy intolerant (casein) and don't think that you NEED milk in a diet for it to be healthy or to get calcium.)

JillianLindsay Enthusiast

I agree with what everyone else has already said... casein is a milk protein and lactase is an enzyme that breaks down lactose. And you need to ingest lactose in order to keep producing the lactase enzymes to break down the lactose, so your son should avoid casein but not lactose :)

So my son just got his blood allergy test. They tested through US BioTek for IgG. He came back extremely reactive to gluten, wheat, rye, eggs, spelt, carrots, and radishes. This confirmed the issue for gluten. However, I am confused by the dairy results.

It showed no allergy to dairy (milk, casein, cheese). When they did the endoscopy it showed his lactase levels were half of what they should have been. Indicating lactose itolerance. So in short- what should I make the rule be for dairy? I am just confused- any help would be great.

Thanks!!!

RobynJ Apprentice
I agree with what everyone else has already said... casein is a milk protein and lactase is an enzyme that breaks down lactose. And you need to ingest lactose in order to keep producing the lactase enzymes to break down the lactose, so your son should avoid casein but not lactose :)

Okay. Thanks this all helps. I feel like an idiot and I should know this stuff. But we went from no known allergies to a whole bunch in like a month and a half so my brain is a little overloaded with all of this.

Now he tolerates goat milk and goat cheese. Do you think that is enough lactase to keep him going? Could we do just those two and some m&ms (while we are potty training) then in a few months try regular milk and cheese again?

One thing that is weird we have always noticed a bigger reaction from hard cheeses and yogurt than from regular milk.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.