Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Poll


twe0708

Recommended Posts

Roda Rising Star
How many years have you been trying to live a gluten-free life?

How often or many times do you think you've been hit with wheat?

Anyone been diagnosed with cancer, kidney or liver problems?

Have you ever said "what the hell" and just ate something you aren't supposed to?

What is your age?

One year

Wheat in particular at least once. I ate an otherwise gluten free macaroon that a friend of mine placed on top of a brownie. It was only a month after I went gluten free and she tried really hard and I ate it so I would not hurt her feelings. Won't do that again. I have been hit with either cc or barly malt in "natural flavors" once by not verifying. I tried gluten free oats after 7 months gluten free in some cookies I made. I had a horrible reaction from them so I am even gluten free oats free.

No.

Sort of. My husband had some cheese that had beer in it. I took a very small nibble. I did not have any problem from it, but really decided that the cheese was not good! :lol: I ate some tortillia chips from a local mexican restraunt that someone had left over at work. They were more than likely fried in contaminated oil and who knows if they had wheat in them. Learned my lesson because the chips gave me wicked heartburn.

I am 36 years old.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Switch2GF Rookie

How many years have you been trying to live a gluten-free life?

Diagnosed 5 years ago- officially gluten-free for 1 year. Had solid spurts of gluten-free during those first years, but always eventually relapsed.

How often or many times do you think you've been hit with wheat?

I'd say once every month or two I accidentally am glutened, almost always when out to eat. Honestly, if you eat out, it is going to happen whether you know it or not.

Anyone been diagnosed with cancer, kidney or liver problems?

Nothing yet, thankfully!

Have you ever said "what the hell" and just ate something you aren't supposed to?

Once in the past year... avoiding an awkward situation(long story).

What is your age?

Male - 25

(Just had to put male, since I am finding I am in the far minority in the active gluten free online community :D )

Karrin Rookie

How many years have you been trying to live a gluten-free life? Started June 2009

How often or many times do you think you've been hit with wheat? Probably once a month in small cc'd doses.

Anyone been diagnosed with cancer, kidney or liver problems? Just got over a kidney infection.

Have you ever said "what the hell" and just ate something you aren't supposed to?

Yes, homemade pumpkin custard that I suspected might have been cc'd.

What is your age?

27

foodiegurl Collaborator

How many years have you been trying to live a gluten-free life?

Since March 2009

How often or many times do you think you've been hit with wheat?

three time, I believe

Anyone been diagnosed with cancer, kidney or liver problems?

I had severe-pre-eclampsia and HELLP when I was pg (pre-diagnosis), and it effected my liver and kidneys while pg, but corrected itself after delivery.

Have you ever said "what the hell" and just ate something you aren't supposed to?

No way!!

What is your age?

37

jenngolightly Contributor

How many years have you been trying to live a gluten-free life?

2

How often or many times do you think you've been hit with wheat?

Too many - we don't eat out anymore... uh, well, except last weekend when we went to Boston Market and YES I got glutened dammit.

Anyone been diagnosed with cancer, kidney or liver problems?

No (but yes to osteoporosis and neurological issues and...)

Have you ever said "what the hell" and just ate something you aren't supposed to?

Never

What is your age?

39

gettinbetterbaby Newbie

How many years have you been trying to live a gluten-free life? One year and a couple of months.

How often or many times do you think you've been hit with wheat?

Maybe 10 or more times since the start. The learning curve was steep, and so it happens less often now, but still way too often (always when eating out). The longest I've felt well is 23 days in a row, which was phenomenal. Before that it was nine days.

Anyone been diagnosed with cancer, kidney or liver problems?

Two or three years before becoming gluten-free I was sent to a kidney doctor (nephrologist), for odd blood work; I was "dumping" potassium, magnesium and salt. He couldn't determine the cause, wondered if I was vomiting or taking laxatives: No. Weeks later, after consultation with colleagues, he diagnosed Gitelman Syndrome or Bartel's Syndrome, which is just a collection of symptoms. He was puzzled. I was too. I had mentioned stomach aches too, as I have over the past twenty years to all doctors with whom I've had contact. That led nowhere as always. So I treated the deficiency with magnesium supplements and noticed unexpectedly my stomach felt better for awhile, which was a bonus. I eventually put all this together myself, later, with much help from all of you on this forum who I'd like to thank here. I have learned so much.

Have you ever said "what the hell" and just ate something you aren't supposed to?

Never, but I've eaten around things I'm not supposed to eat, that was touching, and have most recently learned not to do this.

What is your age?

44

luvs2eat Collaborator

How many years have you been trying to live a gluten-free life?

7 years

How often or many times do you think you've been hit with wheat?

In the beginning, when I thought I was being gluten-free, but was making tons of mistake... lots. Now... maybe once or twice a year??

Anyone been diagnosed with cancer, kidney or liver problems?

Nope

Have you ever said "what the hell" and just ate something you aren't supposed to?

ONCE... when I'd been gluten-free for about a year, I scarfed down a huge slice of homemade bread w/ butter and nothing happened!! I had this idea that I could "plan" a cheat... maybe monthly. But... the longer I was gluten-free, the more sensitive I became and now I would NEVER, EVER say "what the hell"... EVER.

What is your age? 56. Two of my 3 daughters have been diagnosed too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



spicenator3000 Apprentice

Trying to live a gluten free life for 5 years, had it since childhood and didn't know (lived with pain/problems).

Some how I get gluten about every month now, getting the diet and other products under control takes a long long time. Takes me about two weeks to get back to normal digestion (if I do my procedure of recovery).

Diagnosed with cancer at age 20-Non-Hodgkin's Lymphoma (about the size of a grapefruit in between my heart and lung-acted like heart attack symptoms). Also had malnutrition problems from childhood still lingering, cysts, and minor issues that come and go. Family has had many cases of cancer, liver disease, kidney, reproductive and neurological issues. Seems that those people before me had celiac disease and never were diagnosed. This leads me to believe it gets worse every generation that is not taken care of.

Absolutely have just ate stuff I wasn't sure was gluten-free. Typical human nature to rebel against what I know is right and wrong.

I am now 25, will be 26 in 3 months. So 6 years cancer free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,795
    • Most Online (within 30 mins)
      7,748

    susaneschiff
    Newest Member
    susaneschiff
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      The previous post did not come through right. I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate  It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔. Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems ,  I don't know if anyone ever got hot flashes?? I suppose if it affects people head to toes you can get that too.   It's weird...hard to decipher what is what.   Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible.  Thank you for your response..  
    • Colleen H
      Hello  I was glutened by a person that knew it.  I'm having 
    • wellthatsfun
      as my last post stated, i was diagnosed via endoscopy on the 14th of june. i have been eating amazing home cooked meals, luckily, mainly cooked by my boyfriend who is extremely careful about contamination (and is an incredible cook at that). however, i find myself in a mental rut still. being 18, this is the time in my life where i should be exploring things, going out, having fun. yet every corner i turn i'm tortured by the amazing smell of something i can't have anymore. the wonderful sight of such yummy foods. it's near torture. if my boyfriend and his friend who lives with us buy something i can't have, they'll usually eat it outside of the house or the car or wherever we are - which is greatly appreciated - but even seeing a burger or chips or a sausage roll in their hands guts me almost beyond repair. i just wanna have it again too. i miss it. i feel left out and it makes me very sad all the time. it's not their fault. they are allowed to eat whatever they want to, whatever their intestines will allow. it just stings, bad. and i feel so ungrateful given i basically have a private chef who is doubly the love of my life. but it's just so hard. i know i'll adapt. i haven't given up hope.i just wanted to vent. thank you for reading
    • RDLiberty
      Thank you. I must have misinterpreted a study or something. Thank you for the clarification. Much appreciated. Almost three years into my celiac diagnosis and I'm still learning new things. 
    • RMJ
      I wasn’t clear, glucagon and gadolinium were intravenous. I drank about 5 cups of the prep during 45 minutes. I feel very tired now, probably partly because I was nervous, and partly because I had to fast for 6 hours beforehand and wasn’t very hungry when I got home.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.