Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Diarrhea


MKat

Recommended Posts

MKat Explorer

My major symptoms before going gluten free were D and major bloating. I went gluten-free in the spring for 3 weeks and it was good. I went back on for 3 months for testing and I was so sick w/D 10-15 x a day. All tests came back negative. I went gluten-free anyway and felt pretty good for 2 1/2 months. I ate gluten-free oats 10 days ago and the diarrhea won't stop. It's been 7 times already today ( and I even finally took an immodium today). I usually don't feel bad at all, just have the watery D. Today I've actually felt icky too. What comes out is pale, watery w/my undigested food (sorry for the gross details).

I'm sure the next step everyone will tell me is to try eliminating dairy. I don't eat a lot of dairy anyway - cheese about 1 x a week on gluten-free pizza and a few small pieces of chocolate a day...and occasional yogurt. Can that little amount of dairy produce this awful D? Can you be as sensitive to little amts of dairy as you can be gluten? Most gluten-free stuff I eat is casein free as well.

I have racked my brain to figure out if I'm still glutening myself (because this is the same way I was during my testing time when I was back on gluten). I've checked vitamins, CC, foods, beauty products...the only thing I could possibly be taking is that darn Synthroid that they can't guarantee is gluten-free anymore.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

Many celiacs cannot tolerate gluten-free oats. That appears to be the catalyst for this reaction, so maybe take this as your hard lesson learned. You can try to eliminate the remaining dairy in your diet, but I would think if you were going to react to it, you would have by now. Oats have a very similar protein to gluten, which is why many react. A dietician at a support group meeting I went to said that even after years of being gluten-free, her experience has shown that the celiacs who could eat oats could tolerate, at most, 1/4 cup cooked. Oats make me feel pretty icky, too.

MKat Explorer
Many celiacs cannot tolerate gluten-free oats. That appears to be the catalyst for this reaction, so maybe take this as your hard lesson learned. You can try to eliminate the remaining dairy in your diet, but I would think if you were going to react to it, you would have by now. Oats have a very similar protein to gluten, which is why many react. A dietician at a support group meeting I went to said that even after years of being gluten-free, her experience has shown that the celiacs who could eat oats could tolerate, at most, 1/4 cup cooked. Oats make me feel pretty icky, too.

But for this long - 10 days? I just can't seem to recover and I don't know what to eat while I"m trying to recover - maybe just some chicken and cooked vegies??

AliB Enthusiast

Over the last 2 years or so that I have been on this forum I have seen so often those who get a bit better after dumping gluten then seem to regress again for no apparent reason.

What they all seem to have in common is that they generally are reacting to other carbohydrate foods, whether oats or corn or soy, etc.

I have long suspected that this may be due to microbial activity in the gut, with the beasties just transferring their food to another source as we start to eliminate them from our diet.

However, recently I have had a bit of a change of thought on it, and whilst I do feel that pathogenic bugs in the gut can be instrumental, I now feel that much of this added intolerance may well be due to underlying dehydration.

You might think, how can I be dehydrated when this liquid is constantly pouring out of me, but when you think that constipation is often due to a lack of water in the gut for mobility, if the water shortage is so bad that it is now impacting on the actual digestive process then the body is going to use the water it does get to bypass digestion and get the food straight out of the gut.

From that point of view, diarrhea is actually the next step on from constipation. That kind of figures. When I was on gluten I was like you with it just running straight through me. I dumped the gluten, and then most carbs and dairy because my digestion still couldn't cope with them and started following the Specific Carbohydrate Diet.

That helped quite a bit, but didn't answer all the questions. I had then ended up with constipation instead and couldn't figure out why, when I had had diarrhea before.

What the diet did was remove all the hard to digest foods from my diet - the foods that need lots of water for digestion, grains, starches, sugars and dairy. Back at the beginning I couldn't even cope with meat, eggs or nuts, but gradually that has improved and I can now eat most things although I am still restricting the carbs at present. The veggies and fruits work ok because they provide the body with a supply of water for their own digestion. The honey in moderation is ok because it does not deplete the body of too much water unlike sugar which needs a huge amount for digestion.

But although these things worked I still wasn't addressing the underlying dehydration. Now I have realised what is going on, I have recognised that this has been an issue for me for the last 40 years. I never have been an avid drinker - thinking I was ok because my pee was fairly light coloured. But that only tells you about immediate dehydration, not underlying. It is the underlying that shows up in other health issues - the digestion, the skin, the joints, the eyes, the hair, etc., etc.

The Western diet is very dehydrating. It is full of carbs and sugar. Not only that but much of what we drink is also very dehydrating. The body needs a lot of water to process the caffeine, tannins and oxalic acids, etc., in tea and coffee, the sweeteners and sugars in squashes and fruit juices, the chemicals and sugars in soft drinks and the alcohol in - well, alcohol.

If the food we are eating is very dehydrating, and the drinks we are drinking are very dehydrating then eventually something's gotta give!

About 75% of the body is water. If you go down to 74.99% then you are in hydration deficit and something will not work properly. Because people often are 'grazing' all day long, the stomach acid is constantly pouring into the stomach and the bicarbonates are constantly being poured into the duodenum to neutralise it when it leaves the stomach and the food is constantly being pushed down the gut. It all needs lots of water to complete those processes.

Usually, water is the last thing it is likely to get!

I am now rehydrating my body. It will take a while, but even after two weeks I am beginning to see the difference. My digestion is improving. My hair has stopped falling out, my skin is softer, my joints feel better, and my sleep is sounder. On top of that, I am Diabetic and have seen my blood sugar levels improving. I am even hopeful that I might be able to reverse it at some point.

Interestingly too, I was exposed to gluten this week but unusually I didn't react. In a few months time when I am more rehydrated I am going to do a gluten challenge to see what happens.

It is early days, but this has been a 'Eureka!' moment for me. I know this is what has been behind most, if not all of my health problems and suspect that I am far from alone.

When you see what children eat and drink these days, is it any wonder that childhood obesity and type 2 diabetes is so rampant in them?

I have replaced most of my drinks with plain water - I just allow myself one hot choc or coffee a day now and sometimes I don't even bother with that.

Dr. Batmanghelidj, who rediscovered the benefit of water recommends drinking one's lbs weight in fluid ounces (so if you weigh say 180lbs you'd drink 90 fl oz) spread throughout the day usually a glass or two about half an hour before meals and some more no less than two and a half hours after eating - so three meals a day and no snacking. But I find with drinking the water I don't need to snack anyway.

He also recommends taking a little pure unrefined Sea or Rock Salt - about a quarter to half a teaspoon sprinkled on food throughout the day to help keep the electrolytes and minerals balanced.

The less carbs we consume the better during rehydration, which can take some months - don't be tempted to try and hurry it by drinking more water - that could be dangerous. If we are eating lots of carbs we are draining the body of the benefit of the water, and rehydration would take an awful lot longer.

So, my thought on your question of whether eating chicken soup would help is yes, and the main reason is because it supplies the body with water!

If you gradually up your water intake hopefully you will find that the diarrhea will stop - you might still be visiting the bathroom pretty regularly but at least it will be for the right reason not the diarrhea! :lol:

ksymonds84 Enthusiast

Have you tried a soy elimination? I recently discovered that I am Soy intolerant as well and that is what has kept me from healing. Now I finally feel great 98% of the time! Soy Lecithin (not everyone reacts to soy lecithin) gets me as well and it is in most chocoloate candy. Hope you can figure it out!

MKat Explorer
Over the last 2 years or so that I have been on this forum I have seen so often those who get a bit better after dumping gluten then seem to regress again for no apparent reason.

What they all seem to have in common is that they generally are reacting to other carbohydrate foods, whether oats or corn or soy, etc.

I have long suspected that this may be due to microbial activity in the gut, with the beasties just transferring their food to another source as we start to eliminate them from our diet.

However, recently I have had a bit of a change of thought on it, and whilst I do feel that pathogenic bugs in the gut can be instrumental, I now feel that much of this added intolerance may well be due to underlying dehydration.

You might think, how can I be dehydrated when this liquid is constantly pouring out of me, but when you think that constipation is often due to a lack of water in the gut for mobility, if the water shortage is so bad that it is now impacting on the actual digestive process then the body is going to use the water it does get to bypass digestion and get the food straight out of the gut.

From that point of view, diarrhea is actually the next step on from constipation. That kind of figures. When I was on gluten I was like you with it just running straight through me. I dumped the gluten, and then most carbs and dairy because my digestion still couldn't cope with them and started following the Specific Carbohydrate Diet.

That helped quite a bit, but didn't answer all the questions. I had then ended up with constipation instead and couldn't figure out why, when I had had diarrhea before.

What the diet did was remove all the hard to digest foods from my diet - the foods that need lots of water for digestion, grains, starches, sugars and dairy. Back at the beginning I couldn't even cope with meat, eggs or nuts, but gradually that has improved and I can now eat most things although I am still restricting the carbs at present. The veggies and fruits work ok because they provide the body with a supply of water for their own digestion. The honey in moderation is ok because it does not deplete the body of too much water unlike sugar which needs a huge amount for digestion.

But although these things worked I still wasn't addressing the underlying dehydration. Now I have realised what is going on, I have recognised that this has been an issue for me for the last 40 years. I never have been an avid drinker - thinking I was ok because my pee was fairly light coloured. But that only tells you about immediate dehydration, not underlying. It is the underlying that shows up in other health issues - the digestion, the skin, the joints, the eyes, the hair, etc., etc.

The Western diet is very dehydrating. It is full of carbs and sugar. Not only that but much of what we drink is also very dehydrating. The body needs a lot of water to process the caffeine, tannins and oxalic acids, etc., in tea and coffee, the sweeteners and sugars in squashes and fruit juices, the chemicals and sugars in soft drinks and the alcohol in - well, alcohol.

If the food we are eating is very dehydrating, and the drinks we are drinking are very dehydrating then eventually something's gotta give!

About 75% of the body is water. If you go down to 74.99% then you are in hydration deficit and something will not work properly. Because people often are 'grazing' all day long, the stomach acid is constantly pouring into the stomach and the bicarbonates are constantly being poured into the duodenum to neutralise it when it leaves the stomach and the food is constantly being pushed down the gut. It all needs lots of water to complete those processes.

Usually, water is the last thing it is likely to get!

I am now rehydrating my body. It will take a while, but even after two weeks I am beginning to see the difference. My digestion is improving. My hair has stopped falling out, my skin is softer, my joints feel better, and my sleep is sounder. On top of that, I am Diabetic and have seen my blood sugar levels improving. I am even hopeful that I might be able to reverse it at some point.

Interestingly too, I was exposed to gluten this week but unusually I didn't react. In a few months time when I am more rehydrated I am going to do a gluten challenge to see what happens.

It is early days, but this has been a 'Eureka!' moment for me. I know this is what has been behind most, if not all of my health problems and suspect that I am far from alone.

When you see what children eat and drink these days, is it any wonder that childhood obesity and type 2 diabetes is so rampant in them?

I have replaced most of my drinks with plain water - I just allow myself one hot choc or coffee a day now and sometimes I don't even bother with that.

Dr. Batmanghelidj, who rediscovered the benefit of water recommends drinking one's lbs weight in fluid ounces (so if you weigh say 180lbs you'd drink 90 fl oz) spread throughout the day usually a glass or two about half an hour before meals and some more no less than two and a half hours after eating - so three meals a day and no snacking. But I find with drinking the water I don't need to snack anyway.

He also recommends taking a little pure unrefined Sea or Rock Salt - about a quarter to half a teaspoon sprinkled on food throughout the day to help keep the electrolytes and minerals balanced.

The less carbs we consume the better during rehydration, which can take some months - don't be tempted to try and hurry it by drinking more water - that could be dangerous. If we are eating lots of carbs we are draining the body of the benefit of the water, and rehydration would take an awful lot longer.

So, my thought on your question of whether eating chicken soup would help is yes, and the main reason is because it supplies the body with water!

If you gradually up your water intake hopefully you will find that the diarrhea will stop - you might still be visiting the bathroom pretty regularly but at least it will be for the right reason not the diarrhea! :lol:

Thanks for taking the time to posts that. Interesting thoughts!! I need to do some research and process. Meantime, after my anniversary gluten free meal out on Monday I'm going casein free to see if that helps

dilettantesteph Collaborator

After eating a serving of gluten free oats I was sick for 2 months. I wish that I had paid attention to the warning on the label about some celiacs being sensitive to avenin, the protein in oats that is like gluten. I think that I react worse to oats than I do to gluten. Now I avoid products made by gluten free companies who use gluten free oats. Bob's Red Mill packages their gluten free oats in their gluten free facility. They clean carefully, but I avoid them for fear of avenin contamination.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.