Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was I Glutened?


CGally81

Recommended Posts

CGally81 Enthusiast

Okay, I'm in the "hungry a lot" phase. And with hunger, comes the normal "can't really concentrate" feeling and fatigue that comes with hunger itself.

Well, today I had my usual gluten-free foods, and dinner was what it often is on Saturday - cheeseburger (patty only, American cheese) and brown rice.

Less than an hour after eating it, I had to use the bathroom, but it wasn't urgent or compelling. It was, however, similar in feeling to how I'd feel when I got D (you use that to stand for diarrhea, am I right?) from gluten. Barely anything came out, which was always the case when I got D from gluten. I kept feeling not like I really had to go, but kinda did, and the second time I went, an hour later, even less came out.

Yet I didn't feel the brain fog and so on. I felt fatigued about an hour and a half after dinner, but then, I stayed up late yesterday, yet woke up earlier today than I'd have liked. I was able to take a nap and relieve some of the fatigue. (normally, when I had gluten, I'd be unable to really sleep; I'd feel weak and full of brain fog, but not actually "I can lay back and nap" tired) I took 10 L-glutamine anyway, just in case. I also didn't feel my stomach making little "squib" (as I called them) motions/noises, the way I always would after being glutened, and before I went gluten-free.

So, what do you think? Was I glutened somehow? (The butter? There were, in fact, visible crumbs in parts of it, but I tried to get only the parts that didn't have crumbs. Maybe I got a small amount without realizing it?)

Or is my very mild D a coincidence? I have, after all, had the occasional such symptom in the past before I had Celiac. It's not a symptom unique to it.

Blah. I can't wait for my digestive enzymes to arrive in the mail. I'll be taking them before any "questionable" meal, just in case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.