Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oatmeal Sensitivity Question

nb-canada

Recommended Posts

nb-canada Apprentice
nb-canada
Posted

I am sure someone out there can help me. After trying gluten free oatmeal a few times I am quite sure that I have a sensitivity to it. I didn't want to believe it but I have to face reality. :(

I have been gluten free for 19 months.

My questions are -


  1. - Will I ever be able to eat gluten-free oatmeal again?
    - If so, approximately how long will it take for my gut to heal?

Thank you for your response.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ahorsesoul Enthusiast
Ahorsesoul
Posted

I've been gluten free for years but still can't handle the gluten free oats.

Roda Rising Star
Roda
Posted

I tried gluten free oats after 9 months into the gluten free diet. I had made cookies with them in. Within a 1/2 hr the heartburn started. I was not quite sure if it was the oats so I ate a few more cookies the next day. Same thing, but since I still had the others in my "system" all h*** broke loose. I had such bad abdominal pain and distention that I was lying on the bed in a fetal position. Then to top it all off I was constipated for about 5 days until I took a laxitive. I don't know if I will even bother trying them again ever. Depresing as it is for me (I really miss granola bars and novacks) it is not worth the agony. I just wish that I was one of the celiacs that can eat them.

modiddly16 Enthusiast
modiddly16
Posted

I've tried gluten free oats at least 4 times and regretted it every time........i don't think i'll go for a fifth. unfortunately, you might just have to say goodbye to the oats!!

Rondar2001 Apprentice
Rondar2001
Posted

My daughter can't tolerate oats either. We have had some luck with Quinoa flakes in recipes instead of oats and there is directions for hot cereal although we haven't tried it yet.

tarnalberry Community Regular
tarnalberry
Posted

Given what you describe, I would probably say that oats will always be out for you. It's not a matter of healing, for this sort of thing, because you are actually having a celiac reaction to the oats. The protein in oats is similar enough that some people's immune systems "generalize" their response to that oats are "close enough in appearance" to cause the same immune reaction.

CeliacAndCfsCrusader Apprentice
CeliacAndCfsCrusader
Posted

Add me to the list of those who have had a reaction.

I spent $12 for the best gluten-free oats, only to have a reaction that mirrored being "glutened".

I may try one more time to be sure, I'm a cheapskate and stubborn, but it's probably a no-go (actually, that's probably a bad choice of words.....)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nb-canada Apprentice
nb-canada
Posted
  • Author

Thanks everyone for your posts - they were very helpful.

tarnalberry Posted Yesterday, 01:47 PM

Given what you describe, I would probably say that oats will always be out for you. It's not a matter of healing, for this sort of thing, because you are actually having a celiac reaction to the oats. The protein in oats is similar enough that some people's immune systems "generalize" their response to that oats are "close enough in appearance" to cause the same immune reaction.

That was what I was afraid off tarnalberry. Thanks for the info - I will stay away from oats from now on.

Rondar2001 Posted Yesterday, 01:20 PM

My daughter can't tolerate oats either. We have had some luck with Quinoa flakes in recipes instead of oats and there is directions for hot cereal although we haven't tried it yet.

I was wondering if Quinoa flakes could be used instead of oatmeal, so thanks Rondar2001 for your post - I will give them a try.

CeliacAndCfsCrusader Posted Today, 02:03 AM

Add me to the list of those who have had a reaction.

I spent $12 for the best gluten-free oats, only to have a reaction that mirrored being "glutened".

I may try one more time to be sure, I'm a cheapskate and stubborn, but it's probably a no-go (actually, that's probably a bad choice of words.....)

I know what you mean. I just bought 2 bags of oatmeal plus what I had in my cupboard - I will see if my son can use it - not sure if he is sensitive to oats or not.

P.S. You are right about the choice of words. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,720
    • Most Online (within 30 mins)
      7,748
    Donna Spivey
    Newest Member
    Donna Spivey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.