Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie :)


CristineP

Recommended Posts

CristineP Newbie

Hello :)

I have been experiencing abdominal pains since August. Unfortunately, I have been in and out of the Emergency Room over 5 times -- because of severe pain. The first time I went to the E.R I was diagnosed with mild pancreatitis.

In July there was a death in my family but other than that I have not really been under a lot of stress since the pain has been in my life.

Tests so far:

  1. H-Pylori
  2. worms
  3. parasites
  4. colonoscopy with Biopsies
  5. endoscopy with Biopsies
  6. food allergies (blood)
  7. ultrasound
  8. HIDA Scan
  9. CT scan with contrast
  10. celiacs (blood) on 11/03/09

So far I have only been told that I have mild gastritis.... I have tried the BRAT diet, bland foods, & liquid diets.... so far NOTHING has helped.

Any time I eat it HURTS! When I eat I almost immediately have urgency and diarrhea... blood and mucus. EW! :(

Now, I am on my 3rd Gastroenterologist.

My symptoms:

Dizziness

Headaches

Stomach Pain (severe)

Fainting

Blood in stool (black and red)

Bad heartburn

Gas

Bloating

I think I might have Celiacs..... I get cold sores, fractures, can't use makeup or lipgloss/chapstick. I ALWAYS get bloated after I eat.... I have had diarrhea my whole life but my colon is fine.

:(

I hope this test comes out positive so I can get some answers!!!! I am sick of being on pain killers (oxycodone) every night. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome to the board. You do sound like you could be one of us. Do be aware that the blood tests can show a false negative. After you have done all the testing that you choose to do for celiac give the diet a good strict try for a couple of months. Ask any questions you need to and I hope you get some answers soon and are feeling better.

ang1e0251 Contributor

Are you eating gluten now? What is your diet like?

CristineP Newbie
Welcome to the board. You do sound like you could be one of us. Do be aware that the blood tests can show a false negative. After you have done all the testing that you choose to do for celiac give the diet a good strict try for a couple of months. Ask any questions you need to and I hope you get some answers soon and are feeling better.

:) Thanks hon. I MIGHT find out today. So nervous!

CristineP Newbie
Are you eating gluten now? What is your diet like?

Right now it's mostly breads and starches because veggies and meat bother me soooo much lately. :(

ravenwoodglass Mentor
Right now it's mostly breads and starches because veggies and meat bother me soooo much lately. :(

If your going to get another endo don't go gluten free yet. If not go ahead and give the diet a good shot. The veggies and meats may not be the issue even if it seems they are. Gluten reactions are often delayed. The gluten reaction to the toast and cereal you had for breakfast may not be noticed until as much as three days after you eat it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.