Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Enterolab Testing Results


nomad4life

Recommended Posts

nomad4life Rookie

It seems like every single person who sends samples to Enterolab gets a positive result on something. Does anyone know of anyone who has gotten a completely negative result from them? It seems a little strange that they find something in every single person they test.

Just curious


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

If you use the search function you'll discover that this topic has come up before, and yes, people do test negative.

ravenwoodglass Mentor

Yes there are folks that have negative results. There have been a few that have posted on the board especially after testing whole familys. Most folks that have the testing done have symptoms that are celiac symptoms, most folks don't get the test done if they are symptom free. So the number of positives ourweigh the number of negatives. Celiac is rampant in the US and with so many doctors considering the blood tests that have high rates of false negatives to be conculusive and looking no farther for some of us it is the best way left to be certain that it is celiac or gluten intolerance causeing the issues. While Enterolab does not diagnose celiac it can tell you if the antibodies are present which is very important. Your body does not make antibodies to stuff that is supposed to be in your system.

sunnybabi1986 Contributor

I would imagine that the high number of people diagnosed positive through Enterolab is because people with no symptoms aren't likely to send for a $400 test. Probably, nearly all, bar a few, order the test because they are sick and have researched and found that their symptoms match those of gluten intolerance and are curious to know if it truly is the problem. They then test positive because gluten is the problem, just as they suspected. It also helps to have something concrete telling you gluten is making you sick.

leadmeastray88 Contributor

^^ What they said :)

Who would spend $400 on a test 'just because'? Not me. Unless you have that kind of money, of course :D

Clearly, those who go through Enterolab have a sneaking suspicion that is what is making them sick. I was one of those people. I was confident even before using Enterolab that I had a problem with gluten because I started the diet on my own - and had amazing results. My gastro refused to listen to me, so it was nice to see some validation on paper for what I was doing.

Celiac Disease and Gluten Intolerance are medically proven to be on the rise. Because of this, I don't find the results surprising at all.

jitters Apprentice

As the only person with symptoms in my family at the time, I was surprised when I came up negative but my husband and daughter were both positive with Enterolab (I'm the one with the family history, and all the health issues). They are both gluten free now, and do have symptoms when they have it but it was frustrating trying to convince them that the tests were legit when mine was negative.

My mom got a DNA test done that showed she carries two genes, the results explaned that all her children would have at least one. I know that it doesn't mean I'll automatically have Celiac but it's nice to know that there's some paperwork out there somewhere that says that maybe there is a reason I'm so sick.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,197
    • Most Online (within 30 mins)
      7,748

    Joanne01
    Newest Member
    Joanne01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.