Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Should I Get My Girls Tested?

L13

Recommended Posts

L13 Rookie
L13
Posted

I am in the process of getting diagnosed with celiac disease. I haven't heard from Doc and all blood panels where very high - so I have a very good chance that it is.

My girls are 5 & 3. When should I get them tested? Their doctor says they are probably to young unless they have symptoms. Maddi does get Headaches and egsima which I don't know is unrelated or not. El - seems fine. Should I wait on that? Also would my insurance cover it (generally?)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TrillumHunter Enthusiast
TrillumHunter
Posted

Yes, they should be tested now. It's much better to find this early so as to better protect their adult health. All your first degree relatives should be tested.

Your insurance should cover it.

nmlove Contributor
nmlove
Posted

We decided to test my 2 (almost 3) year old after my 4 year old was diagnosed. We're waiting on the results. I know there's a strong chance of it being a false negative but what if it was positive? And according to symptoms, it sounds like they're all over the place and even the doctors/dietician we met with say some say they have no symptoms but once they go gluten-free they realize there were symptoms.

If he does test neg, I plan on genetic testing to see if it's something we even need to worry about.

ang1e0251 Contributor
ang1e0251
Posted

The testing is a good base for future but remember that it is very hard for children that young to test positive by blood. So if they both test negative, don't take this as they don't or never will have celiac disease. They still can have it or suffer from it in the future so keep an eye on them.

  • 3 weeks later...
L13 Rookie
L13
Posted
  • Author

Thanks for the info. I had my 5 year old tested and found out that she was normal. Right now that is. I think their suggestion was to wait 3 years b/f the next test. I am thinking of waiting a little bit with my 3 year old. The GP suggested this. Of course if I start seeing something that could link them together then I will opt for testing immediately.

nmlove Contributor
nmlove
Posted

After my 4 year old's diagnosis his pediatrician suggested no on testing my 2 year old. But we decided to go ahead. Guess what? Positive! I figured it's just some blood work. Nothing traumatic.

SoMuchPaint Newbie
SoMuchPaint
Posted

I am trying to decide if I should get my just-turned-3 daughter tested. Her 5 year old sister and I were recently tested with Enterolab, and while we were negative for the main celiac genes, we were both making Anti-gliadin IgA and Anti-tissue Transglutaminase IgA. Part of our concern is if these results will affect their future insurability. Have you experienced any problems with this?

(We have noticed vast improvements in the 5 year old's behavior, and she wasn't badly behaved to begin with. She notices her tummy hurts her much less than it used to. She and I have been gluten free for about 2 weeks).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Quasior Rookie
Quasior
Posted

I might be going against the flow here...

BUT this is what I've decided, for better or worse.

My son who is 4 took the genetic test and while his bloods were being taken they had to literally push the blood out and it was nasty. It ends up he has both genetic markers so it was a good thing he got tested. He is a different boy now he's gluten free, so much healthier. I don't regret taking him off gluten but I do so wish he didn't have to suffer the blood test but it was the only way to get the ped's to take any notice as they had previously decided they didn't want him to go through with the testing and have him symptomatic (not on my time).

But now my daughter who is just over 2 years has been taken off dairy and is getting worse, a lot worse. Yes, its a nasty business no doubt. But I am not sure I want her to go for her bloods just yet since they had so much trouble with Ravens her big bro. So at this stage she's just going to go gluten-free and when she's bigger we'll get her the full bloods (how can it hurt to wait? less torture at the moment). Going off gluten will show one way or another if she is or not anyway.

That was a few days ago .. we'd just been at the dr's about her and found out she's lost nearly 2 kilos in a month poor darling. I noticed at the pharmacy (the dr wants her to go on nasty flagyl even though there was no parasites in her faeces - that there's a new test to determine gluten sensitviity - its $30 a pop AUD, but it's worth it as its just a simple prick of the finger, a drop of blood and we've decided to go for that as an option! We'll gradually test all of the children, all but two are symptomatic (thats 3 of 5). I know it seems rediculous as it suppose to be one in 10 siblings or something isn't it?

Anyway I am rambling. I would rather wait til shes older than have a huge blood test at this stage... :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,918
    • Most Online (within 30 mins)
      7,748
    Lkayladybug
    Newest Member
    Lkayladybug
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Diagnosis confusion

      By trents · Posted

      A slice of bread weighing 50g isn't the same as 50g of gluten. Bread dough contains other components besides gluten. At any rate, at the end of the day, the antidote for celiac disease and for NCGS is the same, life-long avoidance of gluten. My hunch is that you do have celiac disease but are in the early stages of it. Some experts in the field believe that NCGS can be a precursor to celiac disease so, if that is true, you may be in a transition phase. In view of how this has unfolded for you, I would suggest going whole hog into a gluten free diet commitment and see what impact it has on your symptoms. This may be of help in getting a a jump start in eating gluten free:   
    • Hummer01
      Diagnosis confusion

      By Hummer01 · Posted

      Hi trents, thanks for the response. I started the challenge the 2nd week of April with 2 slices of sandwich bread per day (tried to get a larger loaf size, each slice weighed 50g) and continued that through April/May/June up until my scope this past week. On weekends I had extra gluten foods like noodles, cookies, etc. But couldn't tolerate much more than the 2 slices during the workweek. I had hoped that doing this for ~9 weeks would be enough, since I only did 2 weeks for the first scope earlier this year.  Yes, the doctor who did the actual scope and told me about what she saw immediately after is the same doctor who reviewed the pathology report. 
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I can't remember if I tried taking thiamine at one point and it didn't agree with me, or if I tried it but didn't take it very long.  I may have to try that out again.  I have taken magnesium threonate in the past and unfortunately it did not help with my migraines.  I do take a monthly injectable migraine preventative and I know not to eat after 8pm or I will wake up with a monster migraine (not sure why the time is a trigger, but it's there, LOL). I definitely have a histamine issue.  I think I actually may have MCAS but never been diagnosed with that.  That's good to know about Vitamin C and B12.  Thanks!!
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      From what I understand, my high antibody level and EMA positivity rule out NCGS because those are not typically elevated in NCGS.  That's what I've read anyway?   My doctor is calling it "potential" or "latent" celiac disease, which honestly is just frustrating.  I don't have celiac but I also don't not have celiac.  I'm just in limbo and I can either choose to continue eating gluten and see if it progresses, or I can go gluten free and see how I feel.   I hate this gray area - I just wanted something concrete and definitive and now I kind of wish I never started this whole process.
    • trents
      Diagnosis confusion

      By trents · Posted

      Tell us about your "longer gluten challenge". Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least 2 weeks leading up to the blood draw day or the scoping/biopsy.  "I just received the pathology report with the doctor's comments, and it shows "findings not consistent with celiac disease" and that she believes I may have NCGS." Is this the same doctor who "stated that my duodenum was "drastically different" than the first scope and that "gluten is clearly doing something to me."? There are other medical conditions that can cause elevated tTG-IGA:  My suspicion, however, is that your gluten challenge wasn't rigorous enough and resulted in borderline test results.
×
×
  • Create New...