Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fight!


Alphawave

Recommended Posts

Alphawave Rookie

I received an e-mail today from a sister-in-law, and inadvertently the "forwarding " had come from my step-son (33 yr old). To give you background, I had an end-stage pituitary tumor (brain), that required 2 different surgeries, and at one point nearly cost me my life. Step son says he thinks I had some nerve talking to the family and burdening them all with my health issue, over that. He has great influence over my husband, and believe me this young man has verbally attacked me repeatedly over the years, and I refuse to engage. I have probably been with celiac symptoms for 6 years, and just got diagnosed last month, finally. Well, not to digress further, this guy has told my sister-in-law, his aunt that NOW WHAT, another made-up disease. And the rest of the e-mail plunged on. I am not sure what to do if anything about this, as I have to put up with him at many family gatherings. No one else has had reactions to my tumor (I didn't tell many people of the countless hospitalizations, I just went "on" with life). And no one else has had this weird reaction to this dietary restriction I now have.

Comments or suggestions......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

That 'child' needs a talking to from his father, and a stern one at that. If your husband is unwilling or unable to confront him over this issue there really isn't much that you can do other than to continue to treat him with the respect that he is denying you when you are together. He may harbor some resentment toward you as his 'step mother' even if you came into the picture long after his natural mother was out of his dad's life. Try not to feel too hurt by his words, his ignorance is showing and he obviously IMHO has some problems and could use some counseling. If it is possible to engage him, your husband and yourself in some family counseling sessions that might improve matters. But I doubt he will agree to it.

Ahorsesoul Enthusiast

IMO this step-son is just attempting to poke a hornet's nest to see what trouble he can cause. Pretend you never read it. Nothing will come to any good by telling him that you read it and are upset. And if he confronts you about it, just say "you are right about that".

No, you don't have to really mean that you agree with whatever he says (it will be something nasty to make you mad). But when saying you agree with him it doesn't leave him much room to argue.

When I first learned about "you are right about that" as an answer, the example given was between a mother-in-law and her daughter-in-law. If the mil says to the dil "You can't keep your house clean, my son should have never married you" and dil answers "you are right about that". It really puts the mil doing the attacking up against a wall.

I've done this a few times and it's really hard not to start laughing but well worth the results.

Keep an eye on the sil who did the forwarding, she may have took a swing at the hornet's nest by forwarding the message. People sometimes do things disguised as trying to be helpful. The best and least hurtful thing to have done with the message is to have hit the delete key.

ang1e0251 Contributor

It's your husband's responsibility to stand up to his family for you. He needs to clear the air with his son.

On your part, as you already know, you can't control how your SS acts only how you act. When you act respectful and do not seek out conflict, he will lose his power. He only has power when he can make you react then his family can back him up in the conflict. IMO, I would pretend to those interested parties like I had never rec'd the e-mail, after all glitches happen all the time.

Behind his back at family gatherings, I would do nothing but compliment him on whatever you can up with that is positive. This will confuse and befuddle him and is great fun. I have family that loves the drama. I'm pretty much left out of their lives because I don't buy into it. I think it's funny that my sister's MIL called to invite my whole family and mom to their giant Thanksgiving meal. They will have to deal with us and we will be gracious the whole day. That tees them off (though they will never admit it) that every one likes us and wants us around but them.

I don't know if you believe in Karma or the Law of Attraction but I do. When your SS puts out such negative, mean and spiteful energy it can't help but come back to him at some point. If you continue to be positive, good things will only come to you.

Evie4 Apprentice

I know what it is like to have difficult extended family. I do like others have mentioned...act like I haven't heard anything and be polite. This MAN and he is a man, has some problems and they aren't you. He's being a jerk and there's nothing you can do to make him a nicer/better person.

This part is the most unsettling to me:

"He has great influence over my husband, and believe me this young man has verbally attacked me repeatedly over the years..."

Fortunately, my husband has ALWAYS been on my side and would NEVER let anyone attack me. He would cut them off just like that. We have been married over 25 years. How does your husband react to these attacks?

All I can say from my own experience is that I keep my distance, don't talk about anything really personal or important and treat them as nicely as I do strangers. I've managed to keep my stress level down that way.

I'm sorry you are going through this. I KNOW how disturbing and stressful it is.

Alphawave Rookie
It's your husband's responsibility to stand up to his family for you. He needs to clear the air with his son.

On your part, as you already know, you can't control how your SS acts only how you act. When you act respectful and do not seek out conflict, he will lose his power. He only has power when he can make you react then his family can back him up in the conflict. IMO, I would pretend to those interested parties like I had never rec'd the e-mail, after all glitches happen all the time.

Behind his back at family gatherings, I would do nothing but compliment him on whatever you can up with that is positive. This will confuse and befuddle him and is great fun. I have family that loves the drama. I'm pretty much left out of their lives because I don't buy into it. I think it's funny that my sister's MIL called to invite my whole family and mom to their giant Thanksgiving meal. They will have to deal with us and we will be gracious the whole day. That tees them off (though they will never admit it) that every one likes us and wants us around but them.

I don't know if you believe in Karma or the Law of Attraction but I do. When your SS puts out such negative, mean and spiteful energy it can't help but come back to him at some point. If you continue to be positive, good things will only come to you.

I agree. I am usually pretty calm and silent, and it works out fine in the gatherings. BUT I stew about it later. You advise is good, as well!

Alphawave Rookie
I know what it is like to have difficult extended family. I do like others have mentioned...act like I haven't heard anything and be polite. This MAN and he is a man, has some problems and they aren't you. He's being a jerk and there's nothing you can do to make him a nicer/better person.

This part is the most unsettling to me:

"He has great influence over my husband, and believe me this young man has verbally attacked me repeatedly over the years..."

Fortunately, my husband has ALWAYS been on my side and would NEVER let anyone attack me. He would cut them off just like that. We have been married over 25 years. How does your husband react to these attacks?

All I can say from my own experience is that I keep my distance, don't talk about anything really personal or important and treat them as nicely as I do strangers. I've managed to keep my stress level down that way.

I'm sorry you are going through this. I KNOW how disturbing and stressful it is.

Thank you for your kind response. Keeping a distance is easy for me, I will remember this idea.

Actually, the past 2+ years, since my pituitary disaster, my husband has held me at arm's length. It happened very suddenly after my surgery. No matter how cheerful and steady I am, he will NOT take up for me anymore, it seems. We have been married 18 years. The only thing I can figure out, is that many of my close friends (nurses) saw him have a complete breakdown mentally, when the doctors told him I probably wouldn't live. I was literally knocked out for 15 days and have no memory of this. He was a wonderful, affectionate, caring husband. He has stopped going to church , or any other place with me these last 2 years, and he "lost" his wedding band over 6 months ago.I am fairly certain that he has some kind of post traumatic stress syndrome (I have an advance certification in this subject and was chairman of the committee in the hospital sytem where I worked). I constantly remind him I am doing well physically (even when I don't feel like it). And NOW I find I have Celiac? That will really help! Naturally, the man refuses any counseling, etc. Funny how you picked up on this.....you were right on target!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mtndog Collaborator
On your part, as you already know, you can't control how your SS acts only how you act. When you act respectful and do not seek out conflict, he will lose his power.

Behind his back at family gatherings, I would do nothing but compliment him on whatever you can up with that is positive.

I don't know if you believe in Karma or the Law of Attraction but I do. When your SS puts out such negative, mean and spiteful energy it can't help but come back to him at some point. If you continue to be positive, good things will only come to you.

Ang1e0251 said it best. Don't engage him- he wants trouble. If you ignore it, he'll have to find someone else to take out his anger on.

That said, I am sorry you have to deal with this after so much health trouble. I hope you are healthy and well soon!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - daniellelawson2011 replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    2. - trents replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    3. - daniellelawson2011 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    4. - Joe R replied to Joe R's topic in Related Issues & Disorders
      2

      Immunologist Referral if IgA Deficient

    5. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Help needed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,695
    • Most Online (within 30 mins)
      7,748

    NeonCrest1
    Newest Member
    NeonCrest1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
×
×
  • Create New...