Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Do I Start


Dan T

Recommended Posts

Dan T Newbie

I am a 45 male who has always had some mild constipation but lately it has been out of control. I have a dad and a nephew with celiac but have no idea if that is what I have. I have gone 80-90% gluten free for a week and the cramps are gone but the constipation is still there. Not sure what to eat or do right now,

my urine is clear and the cat scan revealed nothing.

Dan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

If you've already tried the simple strategies of more fiber & fruit/fruit juice (apples, prunes, raisins) you have two options to try to determine celiac:

1) Go back to eating gluten normally, have celiac and nutrient blood work - followed by endoscopy if indicated by either tests or symptoms. If possible have this done by a Gastrenterologist whom wants a celiac case. Gene testing for Celiac is optional - although these don't diagnose Celiac, only indicate that you might develop Celiac - if you don't have the genes it is helpful in ruling out Celiac.

2) Go 100% gluten free to see if your symptoms improve - I'm 44 and it took about 6-8 weeks to show improvement in some symptoms - others symptoms including constipation took longer - but did improve.

Good Luck!

Link Rookie
If you've already tried the simple strategies of more fiber & fruit/fruit juice (apples, prunes, raisins) you have two options to try to determine celiac:

1) Go back to eating gluten normally, have celiac and nutrient blood work - followed by endoscopy if indicated by either tests or symptoms. If possible have this done by a Gastrenterologist whom wants a celiac case. Gene testing for Celiac is optional - although these don't diagnose Celiac, only indicate that you might develop Celiac - if you don't have the genes it is helpful in ruling out Celiac.

2) Go 100% gluten free to see if your symptoms improve - I'm 44 and it took about 6-8 weeks to show improvement in some symptoms - others symptoms including constipation took longer - but did improve.

Good Luck!

Link Rookie
I am a 45 male who has always had some mild constipation but lately it has been out of control. I have a dad and a nephew with celiac but have no idea if that is what I have. I have gone 80-90% gluten free for a week and the cramps are gone but the constipation is still there. Not sure what to eat or do right now,

my urine is clear and the cat scan revealed nothing.

Dan

Link Rookie

Dan:

Enterolab (www.enterolab.com) offers a variety of tests, including a stool test, to identify gluten sensitivity. It also provides genetic testing. All tests are at a reasonable cost and may be

ordered without a doctor's order.

These stool tests are highly sensitive and will tell you if you are gluten intolerant and even if you are genetically predisposed to celiac disease. It is well worth checking out this web site...it is a wealth of information. Also, the stool test is not an invasive test and it is definitive. I just ordered the kit for myself to determine once and for all if I have Celiac Disease and if I carry the genes so I can enlighten my adult kids. Also, you don't have to start back on gluten to have the test done.

Also, The Gluten Connection by Shari Liberman is an excellent book to get you started on the gluten journey. Highly informative...this is where I found out about the lab in TX. Hang in there. I am still battling the symptoms of gluten intolerence after being gluten free for 5 1/2 weeks. I am determined to beat this ordeal. Don't give up...stay gluten free...what do you have to lose?

Evie4 Apprentice

Dan, constipation was my main motivation to go gluten free. I'm in my late 40s and it was becoming progressively worse. I went mostly gluten free and found that two days in a row of consuming gluten constipated me. Then it was a single day of consumption and I couldn't go for a couple days. Things were going really well after completely stopping gluten and then I found out if I eat legumes a couple days in a row or if I eat too many gluten free starchy things like muffins, cookies, pretzels etc. I start having problems.

I've been suffering from IBS for about 16+ years now. I tried all the traditional recommendations. Fiber was a disaster, no amount water or exercise worked. I have pretty much always eaten well balanced meals with daily fruit and vegetables. My husband has no problem with our diet.

I don't know if I have celiac disease. I do have genes, symptoms and test results that point to it. So I'm gluten free and life is better. Not perfect, but better!

So...you could try eating less starch and no gluten and see if that helps. In my case, the amount of gluten you have been eating would be too much for me to not be constipated.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

    3. - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,562
    • Most Online (within 30 mins)
      7,748

    Hannah Kelch
    Newest Member
    Hannah Kelch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
    • Wheatwacked
      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.