Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Do I Start


Dan T

Recommended Posts

Dan T Newbie

I am a 45 male who has always had some mild constipation but lately it has been out of control. I have a dad and a nephew with celiac but have no idea if that is what I have. I have gone 80-90% gluten free for a week and the cramps are gone but the constipation is still there. Not sure what to eat or do right now,

my urine is clear and the cat scan revealed nothing.

Dan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

If you've already tried the simple strategies of more fiber & fruit/fruit juice (apples, prunes, raisins) you have two options to try to determine celiac:

1) Go back to eating gluten normally, have celiac and nutrient blood work - followed by endoscopy if indicated by either tests or symptoms. If possible have this done by a Gastrenterologist whom wants a celiac case. Gene testing for Celiac is optional - although these don't diagnose Celiac, only indicate that you might develop Celiac - if you don't have the genes it is helpful in ruling out Celiac.

2) Go 100% gluten free to see if your symptoms improve - I'm 44 and it took about 6-8 weeks to show improvement in some symptoms - others symptoms including constipation took longer - but did improve.

Good Luck!

Link Rookie
If you've already tried the simple strategies of more fiber & fruit/fruit juice (apples, prunes, raisins) you have two options to try to determine celiac:

1) Go back to eating gluten normally, have celiac and nutrient blood work - followed by endoscopy if indicated by either tests or symptoms. If possible have this done by a Gastrenterologist whom wants a celiac case. Gene testing for Celiac is optional - although these don't diagnose Celiac, only indicate that you might develop Celiac - if you don't have the genes it is helpful in ruling out Celiac.

2) Go 100% gluten free to see if your symptoms improve - I'm 44 and it took about 6-8 weeks to show improvement in some symptoms - others symptoms including constipation took longer - but did improve.

Good Luck!

Link Rookie
I am a 45 male who has always had some mild constipation but lately it has been out of control. I have a dad and a nephew with celiac but have no idea if that is what I have. I have gone 80-90% gluten free for a week and the cramps are gone but the constipation is still there. Not sure what to eat or do right now,

my urine is clear and the cat scan revealed nothing.

Dan

Link Rookie

Dan:

Enterolab (www.enterolab.com) offers a variety of tests, including a stool test, to identify gluten sensitivity. It also provides genetic testing. All tests are at a reasonable cost and may be

ordered without a doctor's order.

These stool tests are highly sensitive and will tell you if you are gluten intolerant and even if you are genetically predisposed to celiac disease. It is well worth checking out this web site...it is a wealth of information. Also, the stool test is not an invasive test and it is definitive. I just ordered the kit for myself to determine once and for all if I have Celiac Disease and if I carry the genes so I can enlighten my adult kids. Also, you don't have to start back on gluten to have the test done.

Also, The Gluten Connection by Shari Liberman is an excellent book to get you started on the gluten journey. Highly informative...this is where I found out about the lab in TX. Hang in there. I am still battling the symptoms of gluten intolerence after being gluten free for 5 1/2 weeks. I am determined to beat this ordeal. Don't give up...stay gluten free...what do you have to lose?

Evie4 Apprentice

Dan, constipation was my main motivation to go gluten free. I'm in my late 40s and it was becoming progressively worse. I went mostly gluten free and found that two days in a row of consuming gluten constipated me. Then it was a single day of consumption and I couldn't go for a couple days. Things were going really well after completely stopping gluten and then I found out if I eat legumes a couple days in a row or if I eat too many gluten free starchy things like muffins, cookies, pretzels etc. I start having problems.

I've been suffering from IBS for about 16+ years now. I tried all the traditional recommendations. Fiber was a disaster, no amount water or exercise worked. I have pretty much always eaten well balanced meals with daily fruit and vegetables. My husband has no problem with our diet.

I don't know if I have celiac disease. I do have genes, symptoms and test results that point to it. So I'm gluten free and life is better. Not perfect, but better!

So...you could try eating less starch and no gluten and see if that helps. In my case, the amount of gluten you have been eating would be too much for me to not be constipated.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,363
    • Most Online (within 30 mins)
      7,748

    NAC
    Newest Member
    NAC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...