Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Do I Start


Dan T

Recommended Posts

Dan T Newbie

I am a 45 male who has always had some mild constipation but lately it has been out of control. I have a dad and a nephew with celiac but have no idea if that is what I have. I have gone 80-90% gluten free for a week and the cramps are gone but the constipation is still there. Not sure what to eat or do right now,

my urine is clear and the cat scan revealed nothing.

Dan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

If you've already tried the simple strategies of more fiber & fruit/fruit juice (apples, prunes, raisins) you have two options to try to determine celiac:

1) Go back to eating gluten normally, have celiac and nutrient blood work - followed by endoscopy if indicated by either tests or symptoms. If possible have this done by a Gastrenterologist whom wants a celiac case. Gene testing for Celiac is optional - although these don't diagnose Celiac, only indicate that you might develop Celiac - if you don't have the genes it is helpful in ruling out Celiac.

2) Go 100% gluten free to see if your symptoms improve - I'm 44 and it took about 6-8 weeks to show improvement in some symptoms - others symptoms including constipation took longer - but did improve.

Good Luck!

Link Rookie
If you've already tried the simple strategies of more fiber & fruit/fruit juice (apples, prunes, raisins) you have two options to try to determine celiac:

1) Go back to eating gluten normally, have celiac and nutrient blood work - followed by endoscopy if indicated by either tests or symptoms. If possible have this done by a Gastrenterologist whom wants a celiac case. Gene testing for Celiac is optional - although these don't diagnose Celiac, only indicate that you might develop Celiac - if you don't have the genes it is helpful in ruling out Celiac.

2) Go 100% gluten free to see if your symptoms improve - I'm 44 and it took about 6-8 weeks to show improvement in some symptoms - others symptoms including constipation took longer - but did improve.

Good Luck!

Link Rookie
I am a 45 male who has always had some mild constipation but lately it has been out of control. I have a dad and a nephew with celiac but have no idea if that is what I have. I have gone 80-90% gluten free for a week and the cramps are gone but the constipation is still there. Not sure what to eat or do right now,

my urine is clear and the cat scan revealed nothing.

Dan

Link Rookie

Dan:

Enterolab (www.enterolab.com) offers a variety of tests, including a stool test, to identify gluten sensitivity. It also provides genetic testing. All tests are at a reasonable cost and may be

ordered without a doctor's order.

These stool tests are highly sensitive and will tell you if you are gluten intolerant and even if you are genetically predisposed to celiac disease. It is well worth checking out this web site...it is a wealth of information. Also, the stool test is not an invasive test and it is definitive. I just ordered the kit for myself to determine once and for all if I have Celiac Disease and if I carry the genes so I can enlighten my adult kids. Also, you don't have to start back on gluten to have the test done.

Also, The Gluten Connection by Shari Liberman is an excellent book to get you started on the gluten journey. Highly informative...this is where I found out about the lab in TX. Hang in there. I am still battling the symptoms of gluten intolerence after being gluten free for 5 1/2 weeks. I am determined to beat this ordeal. Don't give up...stay gluten free...what do you have to lose?

Evie4 Apprentice

Dan, constipation was my main motivation to go gluten free. I'm in my late 40s and it was becoming progressively worse. I went mostly gluten free and found that two days in a row of consuming gluten constipated me. Then it was a single day of consumption and I couldn't go for a couple days. Things were going really well after completely stopping gluten and then I found out if I eat legumes a couple days in a row or if I eat too many gluten free starchy things like muffins, cookies, pretzels etc. I start having problems.

I've been suffering from IBS for about 16+ years now. I tried all the traditional recommendations. Fiber was a disaster, no amount water or exercise worked. I have pretty much always eaten well balanced meals with daily fruit and vegetables. My husband has no problem with our diet.

I don't know if I have celiac disease. I do have genes, symptoms and test results that point to it. So I'm gluten free and life is better. Not perfect, but better!

So...you could try eating less starch and no gluten and see if that helps. In my case, the amount of gluten you have been eating would be too much for me to not be constipated.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      311

      Terrible Neurological Symptoms

    2. - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Reverse Osmosis (RO) Water

    3. - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Water filters are a potential problem for Celiac Disease

    4. - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Water filters are a potential problem for Celiac Disease

    5. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      311

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,578
    • Most Online (within 30 mins)
      7,748

    Amiah
    Newest Member
    Amiah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
    • Scott Adams
      Bottled water, filtered water, distilled water, and products like Gatorade are naturally gluten-free and do not contain gluten unless contaminated during manufacturing, which would be highly unlikely and subject to labeling laws. Gluten is a protein from wheat, barley, or rye—it is not present in water, minerals, plastics, phosphates, bicarbonate, or electrolytes. Refrigerator filters and reverse osmosis systems are not sources of gluten, and there is no credible scientific evidence that distilled or purified water triggers celiac reactions. If someone experiences symptoms after drinking a specific product, it is far more likely due to individual sensitivities, anxiety around exposure, or unrelated health factors—not gluten in water.
    • Scott Adams
      Water does not contain gluten--bottled water included. This is an official warning that you'll receive a warning if you continue to push this idea. Gatorade is naturally gluten-free as well, and it's purified water does not include gluten. You can see all sort of junk on the Internet--that does not mean it is true.
    • HectorConvector
      An interesting note (though not something that I recommend) is that in the last couple of winters before this one, I drank tons of alcohol because I found it reveresed the pain substantially. It seemed it muted it, then I stopped worrying about it, and so on, so that it was reversing the sensitization cycle. I mean, strong alcohol. Not a few beers. Talking 25% ABV stuff and well beyond any limit anyone has ever seen. Yes, bad for other reasons. But it was interesting, that even after stopping the alcohol (which I could do overnight, for some reason I don't get dependent) the nerve pain would stay "low" for a while, but then gradually ramp up again to where it was before. Obviously, that's not a long term solution as my liver would probably shrivel up and I'd go broke. So the pain clinic hopefully finds a better way to desensitize the condition.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.