Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Nerve Problems=healing?


hammer44

Recommended Posts

hammer44 Newbie

Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

THe same thing happened to me! I developed neuropathy and restless legs AFTER going gluten-free. Doc is fairlysure thatthe neuropathy is from low B12 and RL from low Iron. Have you had yours checked?

Korwyn Explorer
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

I developed neuropathy and myoclonus after going gluten-free. Turned out I developed an allergy to Soy which was causing CNS inflammation and damage. Refined sugars in any form cause my RLS to reappear.

ravenwoodglass Mentor
For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

Have you made sure that all of those are for sure and for certain gluten-free?

hammer44 Newbie
Have you made sure that all of those are for sure and for certain gluten-free?

Absolutely, Im pretty careful now about what I feed my body. Many of the products do have soy in them.

Eric-C Enthusiast
Absolutely, Im pretty careful now about what I feed my body. Many of the products do have soy in them.

Same thing.

Take B12, D3, and Candex for yeast, all went away. I have no problems with soy or any other allergy thankfully.

Alphawave Rookie
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

The others are absolutely correct as to the B vitamins. I suggest that you try sublingual B-12 (you can get these anywhere, even Walgreens). You cannot overdose on B vitamins, and you are going to have trouble until you heal to absorb nutrients. By the way, a recent study, (the Haines Study), says 42% of Americans are vitamin b-12 deficient. Also, you MUST take Magnesium. Your "gut" won't handle much right now. I heartily suggest magnesium oils, gel, or even Epsom salt baths. I am an older nurse, and it used to be that epsom salt baths were ordered by doctors for anyone at risk for magnesium deficiency (Diabetes, thyroid issues, auto-immune diseases). A magnesium deficiency will NOT show up in regular lab work. Magnesium will draw from your bones and tissues to "go" to your bloodstream. Topical magnesium DOES work well. Without magnesium you cannot absorb calcium well and thus your bones will become porous (osteopenia). Magnesium also relaxes the muscles and arteries of the blood system. It helps you sleep and rest and prevent backaches, etc. Let me know how you are doing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast
The others are absolutely correct as to the B vitamins. I suggest that you try sublingual B-12 (you can get these anywhere, even Walgreens). You cannot overdose on B vitamins, and you are going to have trouble until you heal to absorb nutrients. By the way, a recent study, (the Haines Study), says 42% of Americans are vitamin b-12 deficient. Also, you MUST take Magnesium. Your "gut" won't handle much right now. I heartily suggest magnesium oils, gel, or even Epsom salt baths. I am an older nurse, and it used to be that epsom salt baths were ordered by doctors for anyone at risk for magnesium deficiency (Diabetes, thyroid issues, auto-immune diseases). A magnesium deficiency will NOT show up in regular lab work. Magnesium will draw from your bones and tissues to "go" to your bloodstream. Topical magnesium DOES work well. Without magnesium you cannot absorb calcium well and thus your bones will become porous (osteopenia). Magnesium also relaxes the muscles and arteries of the blood system. It helps you sleep and rest and prevent backaches, etc. Let me know how you are doing.

Alphawave,

This is interesting about magnesium. I stopped taking it because my blood levels were normal. Do you have any links to any articles on this? Thanks!

one more mile Contributor

soy makes me feel like crap, runs, restless leg, body achs. ( I no longer eat it)

Amber M Explorer
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

I have been gluten free for over a year now and still have problems with Gluten Ataxia which includes some of your stuff. After finally tapping into the "Candida" issue, thanks to you people, I have been on mega doses of probiotics and am getting some relief. I researched to discover that the outside of the cell of the yeast infection produces the exact same protien as gluten and will attack the same as gluten! Shock! I had a white tounge, thats it, but obviously (after several rounds of antibiotics), ya, I had an overgrowth. My Ataxia was at its worst during both of the last 2 rounds of atibiotic. But the overgrowth of yeast has been there for a lot longer than that. No wonder I haven't been well.

But another issue has cropped up. The Doc thinks there may be an "underlying" issue that brought the imulogical gluten issue out to begin with since I was genetically pre-disposed for it. Upon further research, I disscovered that they now think the over growth of yeast brings out our pre-dispossed for diseases! They are testing me for "Lymes" and "Heavy Metals" too (I work with 7 types). What ever brought the gluten issue to the surface, it is here for life now, just like diabetes, etc. I don't try to fool myself into to thinking I can eat the stuff again, but maybe corn?, or the many other food allergies that have cropped up since the gluten issue.

I guess also part of what I'm saying is this journey I have been on is sometimes a drag, but the one thing that has helped me the most is this sight. It leads me to go further researching every aspect of this gluten issue. It's the thing that has saved me because I have Doctors that know nothing about this. My PA is doing research now, thanks to the "mystry" I have presented to her.

Best of Luck, check out the "National Ataxia Foundation" as well as the neuropathy things.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.