Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Best Dr's Visit I've Ever Had


txplowgirl

Recommended Posts

txplowgirl Enthusiast

Finally went to the dr and had a good visit. I have officially lost 30 lbs, YEAH! No more anemia, first time in 30 years. Dr told me I didn't need to take iron anymore. When I explained to him I went gluten free he knew about it and he told me if I wanted to take the tests I would need to go back on gluten and I said not no but HECK NO! He laughed at that. My vit b-12 and D was a little low so he told me to double up on those for a while. Everything else was ok, folate, magnesium, etc. He told me he wished more of his patients would do what I was doing. Told me to keep it up and come back in 6 months for another check up.

Now, I have found out that I am super sensitive I guess. I have a problem with about 90% of the gluten free foods out there. I get a reaction from almost everything including the gluten free chex cereals. AArrhhh. My favorite breakfast food. Here the other day my sweetie was eating a gluten sandwich and I was drinking a bottle of water. He reached over a couple of times and took a drink. I didn't think anything of it, DUH, a couple of hours later I was doubled up with pain and bloating, and diareha. I chewed him and myself out. I fixed him a sandwich and I forgot to wash my hands and sure enough a couple hours later sick as a dog. I would love for him to go gluten free but he won't. He tried for 3 days and he had gluten withdrawals so bad and he was in a lot of pain. So he went back to gluten. He understands the problems with eating it but he just can't seem to understand the concept of cc though.

He just dosen't believe it. Thinks i'm making it up. So i'm slowly educating him but sometimes I want to slap him up side the head. :P

Anyway, that's my update, It can be done, it just takes time and patience.

Everybody have a good weekend.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lynayah Enthusiast

Glad to hear the good news!

YoloGx Rookie

Not to be a spoil sport but if your friend went through gluten withdrawal pains it is not a good sign. He too may be at least strongly gluten intolerant. It indicates a gluten addiction if nothing else -- which is indicative of a strong sensitivity if not allergy or worse. Its not a good idea for him to stay on whatever he's physically addicted to for obvious reasons... Maybe he should get the test??

Glad you are getting on track in any case!

Bea

Dada2hapas Rookie
He tried for 3 days and he had gluten withdrawals so bad and he was in a lot of pain. So he went back to gluten...

...He just dosen't believe it. Thinks i'm making it up...sometimes I want to slap him up side the head. :P

Good for you! Sounds like you found a good physican. I helped enlighten a couple of them, as they didn't know celiac disease was so prevalent... I hate that--they should already know all this!

Now, about your sweetie. How do I say it nicely? ...I think go with the "upside the head" thing, but without drawing blood. ;) Did he really experience "pain", or is he just playing you, cause he thinks the pain you suffer from cc isn't real? Good grief, get a clue Dude!!

Jonbo Apprentice

I can't fathom how he doesn't believe you have Celiac when yet it seems like he's seen first hand what happens to you if you have some CC. You can't fake diarrhea and doubling over pain, etc...Well, you shouldn't be able to unless your damn talented :lol:

txplowgirl Enthusiast

Thanks everyone for the comebacks. Yes I have suspected for quite a while my sweetie has at least a gluten sensitivity. He has seen me at my worst before I went gluten-free and he does believe I have a problem with gluten and he goes out of his way to help me make sure I don't eat the wrong things. He just can't seem to see the need for a different toaster, pans, etc. He dosen't get it that gluten foods touching your food is a no no.

We had an argument here the other day over me eating a potato. I have a problem with nightshades too. He wanted me to eat a baked potato and I told him no, I didn't want to wake up hurting and swollen in the morning. He said, now get this. "One little potato won't cause you that much pain. You'll get over it a in a few hours, just don't eat more than 1 a week." He just dosen't seem to understand I was in pain from about 7 or 8 years old, I don't want ANY PAIN AT ALL!. Even a little bit.

As for him he admits he has a problem with gluten, eggs and milk. He refuses to give them up even though it messes him up. As he tells me. He's almost 60 years old. A little pain won't kill him. This is from a man with diabetes and had one heart attack. But yes when he went gluten-free he had pain so bad he couldn't hardly walk plus he would get shooting pains through his arms so bad he would yell and cuss. He definetly wasn't making it up. He even got so depressed the third day he cried. That did it. He went back to eating gluten that night. I've tried explaining about the possible cancer issues and other health problems but he just blew me off.

So, i'm at the point I eat what I want, he eats what he wants and I try to be extra careful. Sometimes it works sometimes it dosen't. But I do know that I am nearly pain free, no more depression, anxiety, asthma and I'm losing weight and I have some wonderful friends here on this website.

What more can I ask for.

YoloGx Rookie

If I were you I'd pray for that guy. What else can you do but let it otherwise go?? Too bad. He really should get some tests done. Its likely the diabetes results in part from the gluten intolerance. IIt sounds very likely he has candida overgrowth issues actually. But some people just can't handle going through what one would need to handle it. A competent doctor might be able to help him. Detox herbs would also help. But ultimately he would have to go through the initial withdrawal pains just like an alcoholic or druggie. I certainly was there, but was willing to endure it to have better health. Though for me it was change or die due to my kidneys etc.. maybe for him the motivation to change is not quite so apparent.

Bea


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.