Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat Allergy Or Gluten Intolerance?


passionfruit877

Recommended Posts

passionfruit877 Apprentice

Hi!

I've been on a gluten free diet for about 2 months now. This diet has been great for me! Most of my bloating is gone, that icky feeling of constant fullness is gone, and my constipation is gone (sorry about that one, but it has been one of my biggest problems). I was treated for constipation for 2 years before the diet, and nothing worked. I was told I just had IBS. Up until now I was convinced I was gluten intolerant (my doctor knows I'm on the diet, he asked about a family history of Celiac).

However, I was curious how soon after being "glutened" a gluten intolerant person gets symptoms?

I have noticed several times now I was glutened, mostly at restaurants, and my reactions are fairly immediate. For example, we went to Red Lobster and half way through eating my rice I noticed little pieces of pasta in it. Before even leaving the restaurant the tips of my fingers on my left hand went numb, and I felt a tightness in my chest, not like I couldn't breathe, but like there was resistance to my breathing. I usually have the chest tightness combined with bloating when I get glutened (it has happened a few times) and it happens maybe 10 minutes after eating (the numbness only happened once).

I thought this was normal, but does anyone else get this, or am I having an allergic reaction? I just happened to be reading a website that said gluten usually creates problems 1 to 2 days later. I don't know what to do now that I think it might be an allergy, is it dangerous?

I was so sure that I was gluten intolerant (and maybe even had Celiac, I'm 22 and 4'11'' and 95 pounds with bad sinus allergies.)

I am going to talk to my doctor again, but i was just wondering from people who probably know the most about it. What does it sound like to you? And can a test tell the difference? Thank you so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lynayah Enthusiast

Gluten hits me very quickly, less than an hour to up to two hours.

jerseyangel Proficient

It's different for everyone--gluten hits me after a few hours.

Your symptoms could be the result of an allergy. An allergist can do skin testing--it's also possible to be both intolerant and allergic. With your breathing and chest symptoms, I think it's a good idea to have it checked out.

Lynayah Enthusiast

I have wondered if I have an allergy to wheat as well as gluten-intolorance. My nose runs when I'm "hit," and it happens right away. The GI problems hit shortly thereafter.

It's interesting . . . for YEARS I thought I had weird sinus problems as well as an allergy to mold. I ALWAYS had at least two full-blown sinus infections per year (horrible, HORRIBLE infections, and goodness knows to what extent the antibiotics messed with my GI system).

So far, since giving up gluten, my sinus passages have cleared. It was one of the first things I noticed after going gluten-free. I remember lying in bed, turning to my husband and saying, "I can BREATHE!" It has been such a blessing not to have a box of tissue in every room any more. My nose isn't a faucet now; it's a nose!

I can't wait to see if I can get through the rest of the year without a sinus infection. Dare I say it? . . . So far, so good! : )

So, bottom line: Your question about allergy is a good one. I am looking forward to seeing what others might post here. Thank you for this topic.

jststric Contributor

I think I'm simply intolerant but of many things, not just wheat/glutens. It usually takes me a day and a half to two days to start feeling symptoms. Sinuses is one of many and I can have some symptoms for as long as a week or so.

passionfruit877 Apprentice

Thank you all for the quick responses! I'm glad I brought up a topic that may be helpful to others!

Lynayah,

I have had severe sinus allergies my whole life as well. I used to get sinus infections and had to take Claritin year-round, although as I've gotten older they have improved. I'm interested to see if they keep getting better on this gluten free diet. I am also very sensitive to perfumes, as well as strong soaps ( once I used my husbands AXE body wash and when I got out of the shower my stomach and upper legs were covered in giant welts!).

My point is I already have allergies, so it is not so unusual to think that I may be allergic to wheat. I see that some people have quick responses after being glutened, does anyone have the chest tightness I described, followed by the upper stomach bloating and pain? Oh, and once I got a feeling like my throat was sore, and it felt like I had this bubble I couldn't swallow.

It just seems like the chest tightness could be an allergic response. I'm going to talk to my doctor. I think I may be lactose intolerant as well ( milk gives me a gurgly stomach). Is the skin prick test the only allergy test? I would be interested to know what other foods get to me (I still get mildly bloated after some meals). Thanks!

ciavyn Contributor
Thank you all for the quick responses! I'm glad I brought up a topic that may be helpful to others!

Lynayah,

I have had severe sinus allergies my whole life as well. I used to get sinus infections and had to take Claritin year-round, although as I've gotten older they have improved. I'm interested to see if they keep getting better on this gluten free diet. I am also very sensitive to perfumes, as well as strong soaps ( once I used my husbands AXE body wash and when I got out of the shower my stomach and upper legs were covered in giant welts!).

My point is I already have allergies, so it is not so unusual to think that I may be allergic to wheat. I see that some people have quick responses after being glutened, does anyone have the chest tightness I described, followed by the upper stomach bloating and pain? Oh, and once I got a feeling like my throat was sore, and it felt like I had this bubble I couldn't swallow.

It just seems like the chest tightness could be an allergic response. I'm going to talk to my doctor. I think I may be lactose intolerant as well ( milk gives me a gurgly stomach). Is the skin prick test the only allergy test? I would be interested to know what other foods get to me (I still get mildly bloated after some meals). Thanks!

Wow - passionfruit - I get the same reaction when I have "too much bread." I just recently approached the gluten-free option after some serious embarrassment and I am tired of feeling "ick." But when I eat a lot of grains, especially pizza or bread, I get this really sick feeling in my stomach, and the feeling of a bubble in my throat that I can't swallow - that is exactly how I would describe it. I thought it was just me. =) It feels terrible, and takes several hours and some severe diarrhea to get rid of it. Weird yet cool to find out I'm not crazy, and that other people have similar reactions.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



passionfruit877 Apprentice

Update:

I saw my doctor yesterday. He told me I was not having an allergic reaction, and that it would have been discovered at a younger age. He pretty much said I couldn't have been eating wheat my whole life and been able to tolerate it. So that clears that up.

He also said he doesn't think I have Celiac because of my symptoms.

He said he's pretty sure I have IBS because of my age and because of the GI symptoms I am having. He said my recent intolerance to gluten has probably been somewhat present my whole life, but has been amplified by the IBS, and he predicted that most of my symptoms should go away after a few years.

What he said makes sense. Now that I am off gluten I am doing well, and my reactions to it usually happen within 15 minutes and go away a few hours later. Hopefully he is right and they will go away on their own.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.