Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Depressed When You Get Glutened


Googles

Recommended Posts

Googles Community Regular

I got glutened last week (cc I think, as everything I ate was good). I became extremely depressed and I was wondering if this happens to anyone else. I usually suffer from depression, but this was a totally different flavor (so to speak) of depression. I was wondering if this might be due to the glutening or if I just am experiencing a new phase of my depression. Any insight would be greatly appreciated.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emcmaster Collaborator
I got glutened last week (cc I think, as everything I ate was good). I became extremely depressed and I was wondering if this happens to anyone else. I usually suffer from depression, but this was a totally different flavor (so to speak) of depression. I was wondering if this might be due to the glutening or if I just am experiencing a new phase of my depression. Any insight would be greatly appreciated.

Thanks.

Symptoms of a glutening can vary widely from person to person, but depression isn't uncommon. Besides the normal bloating and GI upset, I get depressed, fatigued, and super hungry.

zero Newbie

For the year of so before I was diagnosed, I had the strangest depression which would come and go. I would do or experience something which should make me happy but it wouldn't. I kept asking myself "why am I not happy?". And it felt like a depression which was imposed on me. After I went gluten free, I still felt a degree of depression but it felt (feels) more like a pattern that I am in which can be broken out of through good experiences. I have only glutened myself a couple of times and fortunately I am not sensitive enough for it to trigger the gluten type depression. The depression really sucks. It was the worst of my symptoms so I wish you the best in managing it.

ravenwoodglass Mentor

I get severe depression for 24 hours after being glutened. And I do mean severe, I feel worthless and frankly am suicidal. Fortunately I have been able to clearly see the relationship between the glutening and the reoccurance of this and I am able to ride it out. As long as I am not reglutening it lifts after one day. Gluten can be a neurotoxin for many of us and depression can definately be a side effect of a glutening.

Googles Community Regular

Thank you all for your sharing your experiences. It helps me feel more sane and think that this new thing is probably related to gluten. I end up majorly depressed (this last time) for three to four days and then it dissipated over the next week. I don't get glutened that often, but if this is what happens when I do, UGH. I was barely able to get out of bed and go to class, much less get homework done. Last time I was had to take two tests and almost failed one. I just didn't care and my brain wouldn't work. Thanks again.

wilem008 Contributor

One of my biggest glutening symptoms is depression.

I feel depressed/sad/blue/down in the dumps for 24-48 hours after being glutened.

Its terrible but ive learnt the difference between gluten sadness and sadness in general.

Aswell as depression I get bloating, stomach aches and cramps, constipation and headaches.

Its not fun. :-(

Im coping well though, and learning a lot about my body and what it can and can not tolorate. :-)

marycontrary Newbie

I mentioned this in passing in my other thread. The small cytokine so called storms can be potent neurotoxins.

I am a talented scientist and engineer...and WAS diagnosed as Bipolar I...no medication was working, I could not sleep, and I was quickly descending into this cyclical psychosis that would last until early afternoon every day. Thousands of times I thought..."God, I feel like I am being poisoned...this psychosis is like a hangover that burns off."

And that's what it was. And man, this has majorly screwed up my intestinal tract. I have trouble tolerating almost everthing but vegetables. I mourn for the many years I fought with my demons, how so many times I thought I felt poisoned or drugged...yet I could not pinpoint it. I have tears for all the lost opportunity, the vain struggle. Life sucks.

I suppose I would have some real psychological issues with not being able to eat anything, but the fact is, I was a real nut case, and I am afraid of eating glutin. It's not even a temptation. It scares me. I am acually not bipolar.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RacerRex9727 Rookie
I got glutened last week (cc I think, as everything I ate was good). I became extremely depressed and I was wondering if this happens to anyone else. I usually suffer from depression, but this was a totally different flavor (so to speak) of depression. I was wondering if this might be due to the glutening or if I just am experiencing a new phase of my depression. Any insight would be greatly appreciated.

Thanks.

haha do I get get depressed on gluten? I become maniacally depressed. I put hundreds of dollars on counseling before I became gluten-free.

hannahp57 Contributor

I am in the same boat as ravenwoodglass on this. for about the first 24 hours it gets very bad. i might cry endlessly or just lay there and do nothing but like her, i saw the connection eventually so i remind myself it will pass if i can just hold on. hope you dont have to go through that again.

  • 2 weeks later...
fnord Rookie

Yes. Feeling despondent and suicidal. Now I can see the connection as the depression comes and goes, but has hit hard in the past couple of weeks while I have slipped off the gluten-free wagon.

Googles Community Regular

Apparently for me it isn't just depression, it is really really bad anxiety. (Some of the worst I've ever experienced). I've been glutened twice since I moved into my own apartment after being diagnosed (I moved for school). The first time I got majorly depressed and now this past weekend had some of the worst anxiety ever. As I also suffer regularly from depression and anxiety it was really bad. I'm dreading getting glutened again. (neither time did I eat anything that i knew had gluten in it, or come in contact with it.) I'm afraid I will get some other psychiatric symptom that I'm not used to and freak out. I'm still not sure how long it takes between when I get glutened and when symptoms show up. UGH!

positivenrgfairy Apprentice

all of this is true for me too. i ate a cheesy biscuit a few months ago and cried for 3 straight days. and if I eat a lot of it, or if it conincides with my monthly cycle, i have been known to get suicidal. i am usually a happy and positive person but gluten makes me feel crazy. then it just gets worse because i feel like ive been cursed with this stupid disease and i feel trapped by food, so the cycle begins anew.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.