Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Woke Today With Headache And Now I'm Bloated - Help!


sadeew

Recommended Posts

sadeew Newbie

Yesterday I ate almond cheese and afterward read the label and found it has casein in it. I have been avoiding dairy since going gluten-free. Yesterday I was doing great - felt like the program was starting to work, had lost a little weight (a good thing), energy improving, mood improving, bm's improving.

Today I had a headache (first one in awhile - used to have them all the time) and by the end of the day my belly was swollen like I was 8 months pregnant.

I have been gluten-free for 2 1/2 weeks.

All I ate today was a green smoothie that I have had every day since going gluten-free and some homemade chili that I made myself. I even soaked the beans all night.

Could this all honetsly be the almond cheese? Is it just part of going gluten-free?

I'm really bummed because last night before bed I was thinking how great things were going and how I seemed to be losing some belly bloat and my energy was climbing...

ANY ideas? I don't know if I'm dairy sensitive but I ate it all the time before going gluten-free. (I'm Norwegian :) )

I am truly puzzled.

I doubled checked my vitamins. (I just started some high-quality supplements yesterday but they are all gluten-free)

I ate less today than I have in ages and wasn't really hungry - which is really new as I usually eat all the time.

Thoughts?

Thanks everyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Could be the cheese, could be the chili (beans or spices), could be the almonds, could be the supplements. When we first go gluten free our bodies undergo a tremendous adjustment to being rid of the gluten load, which is often masking lots of other things. That is why it is recommended to start simply and add things in one at a time (no, I did not do this because I did not know it either :( ) I did know that I had tested weakly positive for corn and soy sensitivity from years before and had avoided those to various extents, but after gluten free they made their presence known more forcefully. I would recommend that you cut back to a selection of things you know do not bother you, whether it be (your choice) veggies, fruit, fish, rice, meat, chicken, nuts, seeds. This only applies if you know none of these bother you. It is best to avoid all the known allergens to start with, soy, corn, eggs, peanuts, etc. From then on, add in only one thing at a time, whether it be a food or a supplement. Sometimes even supplements bother us--for instance I broke out in acne from a sublingual B12 which does not seem to bother anyone else.

This way, you build up a repertoire of known safe foods which you can fall back on at any time when you have a reaction to something. You cut that thing out and carry on with your trials. Any food you respond negatively to you eliminate for at least six months until you reach a homeostasis with your digestive system. Dairy is often something that gives celiacs problems; sometimes it is all dairy (a casein intolerance), other times it is just milk, cream, ice cream, etc. (lactose intolerance). The latter is more common because the villi which are damaged by gluten are involved in the digestion of lactose, and once they heal you may be able to tolerate lactose again. People who are only lactose intolerant can usually eat yogurt, hard cheese and some other diary products which have been cultured (the culture consumes almost all the lactose). You will have to experiment for yourself; this would probably be the first one to try since it is such an important one and involves so many things one eats. If you can clear yourself of one or the other, you have made a big start. So try some milk first. If that bothers you, try some yogurt or plain cheddar. If those bother you, eliminate casein. You get the idea. Give it a try and let us know how you are doing.

By the way, if you are not already doing this, you might give your gut some help with some digestive enzymes to help things along. It is only when you start absorbing things properly that your supplements are going to give you a lot of benefit.

sadeew Newbie

Thanks Neroli.

I gained almost 5 lbs overnight - woke this morning to still being bloated. I'm like the girl in Willy Wonka who turned into a blueberry. I've never experienced anything like this.

What you said about gluten masking other things and how going gluten-free can reveal other sensitivities makes sense. I have eliminated dairy - the almond cheese was a fluke. (Why put dairy in almond cheese??)

I read a bunch of other forums and found out that is is insanely common to experience what I expereinced after going gluten-free. But no one explained it like you did. ;)

So today I am going to basically go low-carb and eat only protein, veggies and my green smoothie that has some low-sugar berries. I seriously feel hideously swollen and I know low-carb works well for me.

I'm also going to back off on the supplements until everything is cleared out of my system then do what you suggest by adding just one thing at a time. (I know my iron sup doesn't bother me so I will continue on that as I am severly iron deficient)

So it's a journey.

Thanks so much for your post and excellent advice.

ang1e0251 Contributor

If you've been casein free then ingested it, that's definately top of the list. I would add that when you look at supplements that you should watch for casein and lactose as they are often in the mix.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
    • Kara S
      Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.