Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Self Diagnosed, I Think.

bellis

Recommended Posts

bellis Rookie
bellis
Posted

My wife, 2 kids and i all got swine flu at the end of august. i was the only 1 to get diarrea from it. It didn't go away. I had this before, where i got ill and i had "The squirts" for 2 weeks in the past, so i didn't think much of it. i noticed my weight decreasing and i was constantly bloated and very gassy till early Oct. it would come and go for many weeks. Then i had some spagetti and meatballs and half a loaf of french bread. Woke up that night at 4am with intense cramps and diarrea(Iblamed it on the garlic!). went to work and felt better by noon, so i ate pizza! by 3pm on my way home i was covered in hives and had diarrea. I took benadryll and pill called allerplex that is supposedly good for your intestines when having a reaction to food. oops. It is loaded with Gluten. THe next three days were sleepless, foodless nights and days with intense cramps and bloating. The second day my wife read about a disease called Celiac. an answer!

I am a 35 year old Irish, italian native american. My mother had Thyroid Cancer, my Brother is anemic, and he and my sister both have acid reflux and have both been to the doctors numerous times with no resolve to their digestive problems. My sister has gone gluten free with me and has had no more stomach aches.

i have been gluten free for 5 weeks now, and with no cramps or bloating (with the exception of dairy which i have cut out now). my weight has sustained and i am eating well. My stomach seems slightly sensitive to acidic foods. No coffee, catsup, or dairy and i seem fine.

i refuse to eat gluten again. ever. My energy levels are up higher than i can remember and no longer run to the bathroom after meals. I don't think i would eat gluten agin even if i was proven not to be Celiac.

Any feed back would be appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nu-to-no-glu Apprentice
nu-to-no-glu
Posted

Hooray :) Isn't it awesome to finally put the pieces together? AND...you have your sister for continued support! I'm glad you are feeling better...loads of people here are also self-diagnosed and never going back. This is an excellent place for resources, and...I'd say that since you are so much improved from the diet, you are on the right track. I'm almost to my 3 month mark gluten-free, and I'm never going back, either!

mushroom Proficient
mushroom
Posted

Congratulations on completing the jigsaw puzzle :D Yes, many of us have to put the pieces together ourselves, and many do not believe we could have done it, after all, that is for the experts. But when the experts fail we do it ourselves, and once the puzzle is complete we don't break it apart again. How wonderful to have a sister to give you support and guidance; she will be an indispensable resource. Most of us are intolerant of dairy to start with, but down the road you may be able to add it back once you've healed. Your gut will still be sensitive for some time while it is healing, but eventually (from the sound of it) you will be good as gold :) If you run into any roadblocks or have any questions, don't hesitate to post a thread.

bellis Rookie
bellis
Posted
  • Author
Congratulations on completing the jigsaw puzzle :D Yes, many of us have to put the pieces together ourselves, and many do not believe we could have done it, after all, that is for the experts. But when the experts fail we do it ourselves, and once the puzzle is complete we don't break it apart again. How wonderful to have a sister to give you support and guidance; she will be an indispensable resource. Most of us are intolerant of dairy to start with, but down the road you may be able to add it back once you've healed. Your gut will still be sensitive for some time while it is healing, but eventually (from the sound of it) you will be good as gold :) If you run into any roadblocks or have any questions, don't hesitate to post a thread.

Thank you! My wife is possibly Celiac as well, runs in her family! We are all Going gluten free. My children (4 and 5) both display symptoms. My son after 2 weeks gluten free is no longer a crabby zombie after kindergarten all day! Now just to get through our first gluten-free Thanksgiving! i just found out we have a gluten-free bakery 3 miles from our home -PECAN PIE!!!

ang1e0251 Contributor
ang1e0251
Posted

You are so lucky that your sister is so supportive. Mine just gives me that glazed look.

and, seriously, pecan pie from a bakery? That's heaven!

ksymonds84 Enthusiast
ksymonds84
Posted

So awesome that you have the families support, that will be such a huge blessing for you all! Happy Healing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
    • Kara S
      Finding gluten free ingredients

      By Kara S · Posted

      Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.