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Nutritionist On Long Island?


Random-Guy

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Random-Guy Newbie

Hey everyone,

I know there's more than a few Long Islanders here. Do any of you know of a nutritionist who knows celiac really well? I've been gluten-free for a few years, and I thought I had the whole diet down, but I'm having some issues that are making me refocus and reeducate myself. I think a nutritionist can help, but only one who really knows celiac well.

Give me a good referral and I'll buy you a gluten-free pizza

thanks

-rg


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Random-Guy Newbie

ok, maybe i need to extend my range a little

anyone know any celiac knowledgeable nutritionists on Long island or NY City?

thanks

Puddy Explorer

Hi, Random Guy.

Although I never ended up seeing a nutritionist, I was looking for one when I was first diagnosed. Here are 2 names that were recommended to me:

Cathy Ficalora in North Babylon

Linda Fiverson in Woodbury

I believe both of them have experience with Celiac Disease.

Good Luck!

ENF Enthusiast

They had a very good Celiac nutritionist at the Celiac Disease Center at Columbia University, whom I saw a few years ago, but she left. I don't know if they have hired a replacement, but it's worth checking out. If they do not have somebody, maybe they could give you a recommendation. Good luck.

Random-Guy Newbie

thank you both. i'll check these out

  • 4 weeks later...
de caps Contributor
Hi, Random Guy.

Although I never ended up seeing a nutritionist, I was looking for one when I was first diagnosed. Here are 2 names that were recommended to me:

Cathy Ficalora in North Babylon

Linda Fiverson in Woodbury

I believe both of them have experience with Celiac Disease.

Good Luck!

I have been to see Linda twice. She is a weight loss counselor who uses the gluten-free diet for her clients to loose weight. She sells great prpackaged meals that are all gluten-free. She has some knowledge of Celiac.

She suffers from colitis herself.

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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