Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me, Sympoms Of Insanity?


RacerRex9727

Recommended Posts

RacerRex9727 Rookie

I am 20 years old, been on a gluten-free diet for a year even though its been hard to learn the ropes and I messed up a few times. This summer I was suffering from severe depression, suicidal thoughts, insanity, and short term memory loss which all went away once I figured I should stop eating out even if there was a "Gluten free" menu. Apparently cross-contamination seems to always be an issue at In-N-Out, Chipotle, or Pei Wei which is where I frequently ate before work. My dad has the same issue, he seems to become violent and aggressive when he is on gluten or eats out, but now that he is gluten-free he's a much better person who wouldn't hurt a fly.

The school semester rolled on, and things were better once I kept a strict control of my gluten free diet. However, I was told to stay away from soy lecithin from a friend because her doctor said its a gluten trigger, even though I never heard my own GI doc say that. I stayed away from soy, but for the past few weeks I started to eat some gluten-free items from Trader Joe's that had soy ingredients in it, and initially I thought I was doing okay. But then I started to show gluten-esque signs of depression, changes in behavior (according to my parents), migraines, and in the past few days I started having the unexplainable suicidal thoughts and depression signs again. Today, i am in such an intense brain fog I can't even think straight. I feel paranoid, reckless, scared, and suicidal but I can't figure out why. I am feeling the same way as I did during the summer. I can't help it. The part that scares me is I don't know if my feelings are legitimate or if they are gluten-related. I'm irrational and I can't reason myself out of this.

I can't think right now because my brain fog is so intense. These feelings just came up randomly for no reason, especially the suicidal ones. How did I get glutened if I did get glutened? Is it because I started eating soy again? Can soy even cause such intense negative feelings like gluten can? Or is it because there could be cross-contamination in my family's kitchen where I use the dishes? I don't know where I messed up or even if I did mess up, but I just can't think right now my thoughts and paranoia are racing. Right now with this feeling, I don't know how I can keep going in life, this wretched feeling is just unbearable but I can't figure out why I am feeling this way.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I would take a real good look at all your eating or coming into contact with. For me what you are describing would be gluten but if it started up again after adding soy back into your diet the first thing I would do is drop the soy. If your living in a non gluten free house it could be CC getting you. You are using your own condiments, butter, jams, pnut butter etc right? How about your toaster are you using the same one the rest of the family uses? Have you checked all scripts and supplements? Some supplements will use barley or wheat grass and still label items gluten-free, those aren't. How about your snack habits, do you eat a fair amount of stuff like fritos, Doritos etc from Frito Lays gluten-free list, those are often heavingly CC and many of us avoid them. You mention being dairy free, you are not by any chance using Rice Dream are you? It is another thing labeled gluten free that in reality has small amounts of gluten. Many of us react to it.

How about pet foods and toiletries and craft supplies like glues? Doing any remodeling and using drywall? Those can also be a problem.

Hang in there reassess and hopefully you will find the culprit and be feeling better soon.

ang1e0251 Contributor

I would immediately go back to where your diet was when you felt so good. No eating those foods you mentioned that are prepackaged. Very simple whole foods. Keep a food journal where you also describe any of your symptoms. When you stabilize again, then you can add new foods but only one at a time and maybe one new thing per week. That way you should be able to nail down what is getting you.

Many processed foods that are labeled gluten-free, have small amounts of gluten. Very sensitive persons can to react to those amounts. It's possible that is what you are reacting to. Go back to your safe foods and feel better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.