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Mrs. Smith

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Mrs. Smith Explorer

I have been Gluten-Free 1 year and I am having some issues with fructose and inulin. The whole topic is so confusing. When I eat agave, I have a violent reaction of intestinal pain and D. Also experience this with FOS/inulin. Are the two related? Do I have to cut out all sugars or just these ones? Will it get better when my intestine are healed? I seem to do fine with honey and sugar. Is the agave just TOO MUCH? I know its really high in fructose. Im so confused!! I dont know what to do or where to start. I already cant eat gluten or dairy. I really dont want to quit fruit, veggies, coconut but I want to have a normal bm which sometimes I do eating these foods in moderation. If anyone has knowlege on the subject or has experienced this please help! Thank YOU!!


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gf-soph Apprentice

Hi. I was on a fructose diet for a while recently, so I can tell you what I know about it. Everything below is based on my dietician's explanation and a little research I did to clarify. Hope I can explain this properly....

Fructose is a multi-chain sugar which needs to be actively absorbed across the intestinal wall through special channels. People differ in the amount of these channels that they have, and some people aren't able to absorb all the fructose they eat. When it isn't absorbed it stays in your bowel and ferments, causing pain, D and gas etc.

Glucose is a basic sugar that can absorb directly across the intestinal wall, so people who have trouble with fructose don't have the same trouble with glucose. If you eat a food that has glucose and fructose together, the glucose can drag the fructose through the intestinal wall, bypassing problems you have absorbing it through a limited number of channels.

The diet I was put on emphasises that you should eat fruits that have more glucose than fructose, rather than avoiding any fructose altogether. There are still plenty of fruits and veggies that you can eat under this diet. If you google "sue shepherd fructose" you can find a pdf of an article she wrote that explains this in more detail. It also has a table categorising some common foods into which are ok for the fructose diet.

My understanding is that fructose malabsorption won

Mrs. Smith Explorer

Thank you so much that really helped alot!! I think I really just over do it sometimes. I love to find new foods so much that I just dont moderate them very well. Im going to stay fructose light including honey and see if my system calms down, the inulin fiber was making everything worse. I didnt have a problem with it until I overloaded my system. I have GOT to learn moderation it is very hard for me since going on this diet. Thank you for helping me understand fructose. SO confusing. lol!

woodnewt Rookie

Inulin is FOS. It is naturally occurring in a few plant foods, but is being added to more and more foods as a fiber booster/health supplement.

Inulin being added to food as a fiber-booster/health supplement without label warnings is really something that needs to change. Inulin is a PRE-biotic. It is a fertilizer for your gut microbes. Companies like to highlight the good bacteria it feeds. They do not emphasize that it can also feed bad bacteria and yeast.

If you would like any advice, I will give it to you now: cut out all inulin. Do not eat anything with "inulin" or "chicory" as an added ingredient. I would avoid agave as well. It's being boasted as health food right now, but it's just a fancy name for inulin syrup.

If you have become extremely sensitive to inulin, you may need to avoid all naturally occurring inulin as well. You might have to avoid fructose for a while too, but the fructose is NOT a pre-biotic, so you should eventually be able to eat it again safely. But go slowly.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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