Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me! :o


Mrs. Smith

Recommended Posts

Mrs. Smith Explorer

I have been Gluten-Free 1 year and I am having some issues with fructose and inulin. The whole topic is so confusing. When I eat agave, I have a violent reaction of intestinal pain and D. Also experience this with FOS/inulin. Are the two related? Do I have to cut out all sugars or just these ones? Will it get better when my intestine are healed? I seem to do fine with honey and sugar. Is the agave just TOO MUCH? I know its really high in fructose. Im so confused!! I dont know what to do or where to start. I already cant eat gluten or dairy. I really dont want to quit fruit, veggies, coconut but I want to have a normal bm which sometimes I do eating these foods in moderation. If anyone has knowlege on the subject or has experienced this please help! Thank YOU!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf-soph Apprentice

Hi. I was on a fructose diet for a while recently, so I can tell you what I know about it. Everything below is based on my dietician's explanation and a little research I did to clarify. Hope I can explain this properly....

Fructose is a multi-chain sugar which needs to be actively absorbed across the intestinal wall through special channels. People differ in the amount of these channels that they have, and some people aren't able to absorb all the fructose they eat. When it isn't absorbed it stays in your bowel and ferments, causing pain, D and gas etc.

Glucose is a basic sugar that can absorb directly across the intestinal wall, so people who have trouble with fructose don't have the same trouble with glucose. If you eat a food that has glucose and fructose together, the glucose can drag the fructose through the intestinal wall, bypassing problems you have absorbing it through a limited number of channels.

The diet I was put on emphasises that you should eat fruits that have more glucose than fructose, rather than avoiding any fructose altogether. There are still plenty of fruits and veggies that you can eat under this diet. If you google "sue shepherd fructose" you can find a pdf of an article she wrote that explains this in more detail. It also has a table categorising some common foods into which are ok for the fructose diet.

My understanding is that fructose malabsorption won

Mrs. Smith Explorer

Thank you so much that really helped alot!! I think I really just over do it sometimes. I love to find new foods so much that I just dont moderate them very well. Im going to stay fructose light including honey and see if my system calms down, the inulin fiber was making everything worse. I didnt have a problem with it until I overloaded my system. I have GOT to learn moderation it is very hard for me since going on this diet. Thank you for helping me understand fructose. SO confusing. lol!

woodnewt Rookie

Inulin is FOS. It is naturally occurring in a few plant foods, but is being added to more and more foods as a fiber booster/health supplement.

Inulin being added to food as a fiber-booster/health supplement without label warnings is really something that needs to change. Inulin is a PRE-biotic. It is a fertilizer for your gut microbes. Companies like to highlight the good bacteria it feeds. They do not emphasize that it can also feed bad bacteria and yeast.

If you would like any advice, I will give it to you now: cut out all inulin. Do not eat anything with "inulin" or "chicory" as an added ingredient. I would avoid agave as well. It's being boasted as health food right now, but it's just a fancy name for inulin syrup.

If you have become extremely sensitive to inulin, you may need to avoid all naturally occurring inulin as well. You might have to avoid fructose for a while too, but the fructose is NOT a pre-biotic, so you should eventually be able to eat it again safely. But go slowly.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.