Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me! :o


Mrs. Smith

Recommended Posts

Mrs. Smith Explorer

I have been Gluten-Free 1 year and I am having some issues with fructose and inulin. The whole topic is so confusing. When I eat agave, I have a violent reaction of intestinal pain and D. Also experience this with FOS/inulin. Are the two related? Do I have to cut out all sugars or just these ones? Will it get better when my intestine are healed? I seem to do fine with honey and sugar. Is the agave just TOO MUCH? I know its really high in fructose. Im so confused!! I dont know what to do or where to start. I already cant eat gluten or dairy. I really dont want to quit fruit, veggies, coconut but I want to have a normal bm which sometimes I do eating these foods in moderation. If anyone has knowlege on the subject or has experienced this please help! Thank YOU!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf-soph Apprentice

Hi. I was on a fructose diet for a while recently, so I can tell you what I know about it. Everything below is based on my dietician's explanation and a little research I did to clarify. Hope I can explain this properly....

Fructose is a multi-chain sugar which needs to be actively absorbed across the intestinal wall through special channels. People differ in the amount of these channels that they have, and some people aren't able to absorb all the fructose they eat. When it isn't absorbed it stays in your bowel and ferments, causing pain, D and gas etc.

Glucose is a basic sugar that can absorb directly across the intestinal wall, so people who have trouble with fructose don't have the same trouble with glucose. If you eat a food that has glucose and fructose together, the glucose can drag the fructose through the intestinal wall, bypassing problems you have absorbing it through a limited number of channels.

The diet I was put on emphasises that you should eat fruits that have more glucose than fructose, rather than avoiding any fructose altogether. There are still plenty of fruits and veggies that you can eat under this diet. If you google "sue shepherd fructose" you can find a pdf of an article she wrote that explains this in more detail. It also has a table categorising some common foods into which are ok for the fructose diet.

My understanding is that fructose malabsorption won

Mrs. Smith Explorer

Thank you so much that really helped alot!! I think I really just over do it sometimes. I love to find new foods so much that I just dont moderate them very well. Im going to stay fructose light including honey and see if my system calms down, the inulin fiber was making everything worse. I didnt have a problem with it until I overloaded my system. I have GOT to learn moderation it is very hard for me since going on this diet. Thank you for helping me understand fructose. SO confusing. lol!

woodnewt Rookie

Inulin is FOS. It is naturally occurring in a few plant foods, but is being added to more and more foods as a fiber booster/health supplement.

Inulin being added to food as a fiber-booster/health supplement without label warnings is really something that needs to change. Inulin is a PRE-biotic. It is a fertilizer for your gut microbes. Companies like to highlight the good bacteria it feeds. They do not emphasize that it can also feed bad bacteria and yeast.

If you would like any advice, I will give it to you now: cut out all inulin. Do not eat anything with "inulin" or "chicory" as an added ingredient. I would avoid agave as well. It's being boasted as health food right now, but it's just a fancy name for inulin syrup.

If you have become extremely sensitive to inulin, you may need to avoid all naturally occurring inulin as well. You might have to avoid fructose for a while too, but the fructose is NOT a pre-biotic, so you should eventually be able to eat it again safely. But go slowly.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      8

      Feel like I’m starting over

    2. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      8

      Feel like I’m starting over

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Iam replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,308
    • Most Online (within 30 mins)
      7,748

    somersgoldens
    Newest Member
    somersgoldens
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.