Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me! :o


Mrs. Smith

Recommended Posts

Mrs. Smith Explorer

I have been Gluten-Free 1 year and I am having some issues with fructose and inulin. The whole topic is so confusing. When I eat agave, I have a violent reaction of intestinal pain and D. Also experience this with FOS/inulin. Are the two related? Do I have to cut out all sugars or just these ones? Will it get better when my intestine are healed? I seem to do fine with honey and sugar. Is the agave just TOO MUCH? I know its really high in fructose. Im so confused!! I dont know what to do or where to start. I already cant eat gluten or dairy. I really dont want to quit fruit, veggies, coconut but I want to have a normal bm which sometimes I do eating these foods in moderation. If anyone has knowlege on the subject or has experienced this please help! Thank YOU!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf-soph Apprentice

Hi. I was on a fructose diet for a while recently, so I can tell you what I know about it. Everything below is based on my dietician's explanation and a little research I did to clarify. Hope I can explain this properly....

Fructose is a multi-chain sugar which needs to be actively absorbed across the intestinal wall through special channels. People differ in the amount of these channels that they have, and some people aren't able to absorb all the fructose they eat. When it isn't absorbed it stays in your bowel and ferments, causing pain, D and gas etc.

Glucose is a basic sugar that can absorb directly across the intestinal wall, so people who have trouble with fructose don't have the same trouble with glucose. If you eat a food that has glucose and fructose together, the glucose can drag the fructose through the intestinal wall, bypassing problems you have absorbing it through a limited number of channels.

The diet I was put on emphasises that you should eat fruits that have more glucose than fructose, rather than avoiding any fructose altogether. There are still plenty of fruits and veggies that you can eat under this diet. If you google "sue shepherd fructose" you can find a pdf of an article she wrote that explains this in more detail. It also has a table categorising some common foods into which are ok for the fructose diet.

My understanding is that fructose malabsorption won

Mrs. Smith Explorer

Thank you so much that really helped alot!! I think I really just over do it sometimes. I love to find new foods so much that I just dont moderate them very well. Im going to stay fructose light including honey and see if my system calms down, the inulin fiber was making everything worse. I didnt have a problem with it until I overloaded my system. I have GOT to learn moderation it is very hard for me since going on this diet. Thank you for helping me understand fructose. SO confusing. lol!

woodnewt Rookie

Inulin is FOS. It is naturally occurring in a few plant foods, but is being added to more and more foods as a fiber booster/health supplement.

Inulin being added to food as a fiber-booster/health supplement without label warnings is really something that needs to change. Inulin is a PRE-biotic. It is a fertilizer for your gut microbes. Companies like to highlight the good bacteria it feeds. They do not emphasize that it can also feed bad bacteria and yeast.

If you would like any advice, I will give it to you now: cut out all inulin. Do not eat anything with "inulin" or "chicory" as an added ingredient. I would avoid agave as well. It's being boasted as health food right now, but it's just a fancy name for inulin syrup.

If you have become extremely sensitive to inulin, you may need to avoid all naturally occurring inulin as well. You might have to avoid fructose for a while too, but the fructose is NOT a pre-biotic, so you should eventually be able to eat it again safely. But go slowly.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.