Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ten Months Gluten Free And Still Having Slight Digestive Issues Regularly


tfrankenberger

Recommended Posts

tfrankenberger Apprentice

I am a mother of a teen with Celiac, so I thought I'd get some teen feed back on this. My 15 year old son has been gluten free for ten months and dairy and soy free for five months. He says that every night after dinner, within an hour, he still has issues. Most of the time they are minor and he doesn't even ask for pepto or anything like that. Sometimes he takes Pepto to get it to go away. Any idea why he would still be having digestion issues and only after dinner most of the time? We are very, very strictly on the diet. Our whole house is gluten free and we NEVER eat out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

Have you checked your vitamins, medicines, lotions, deodorants, toothpaste for gluten? Is there a food he has for dinner that he does not have during the rest of the day?

tfrankenberger Apprentice

We have checked all those things. This week we're going to try switching his "dinner" meal to lunch and his lunch meal to dinner time. If he still has issues only at the same time of day, we may at least be able to say it's not the food. The only thing I do differently at dinner is make things with a bit more in them such as seasoning, vegetables, etc. I've checked and double checked all seasonings we regularly use. He generally likes his meals more on the bland side, so I don't go too far with seasonings.

emcmaster Collaborator

Just a thought - when you say that he has digestion issues after dinner within an hour, I assume you mean he has to go to the bathroom? If so, could it be not that the dinner is causing a reaction but that it is stimulating him to have to go? For some people, eating makes their bowels move.

tfrankenberger Apprentice

What I mean by digestion issues is he will tell me his stomach is slightly upset and ask for Pepto or Tums. Sometimes that makes him feel better and sometimes it lingers until he goes to bed. There are nights he doesn't ask for anything, but he says he feels it most every night.

mysecretcurse Contributor

Its either 1) something he is eating or 2) everything he is eating, meaning that his body is just so broke down and damaged that digesting ANY food causes him problems.

If its the first option- have u thought about corn? I was gluten free for a long time before even considering that I had other sensetivies. I healed a lot just from being gluten free but still was having a lot of problems. I suspected dairy and soy but ended up giving up dairy, soy and corn all at once so I could test them individually for a reaction. I am still unable to tolerate all three but I find it interesting that out of all of them, CORN gives me the most violent reaction. I had no idea. It really sucks because corn is in everything. Soda, medications, candy... blah.

The only other thing I can think is maybe he is sneaking something somewhere and not telling you...?

tfrankenberger Apprentice

I try to vary all his grains and I keep a very detailed food journal. I don't give him straight corn because that's difficult to digest. When he has corn in things, like sprite or gluten-free cornbread, etc., he doesn't seem to have problems with it.

I'm positive he is not sneaking food. He is extremely strict on himself and will avoid all possibilities of contamination. He is very afraid of getting gluten accidentally. We home school, so I know everything he eats.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

He could try a glass of oj, lemon water or a tablespoon of apple cider vinegar (not flavored but real apple cider vinegar) before eating. It may help him.

emcmaster Collaborator

I'm thinking it is a secondary intolerance of some sort. I'll be interested to see what you find when you switch his lunch and dinner foods around.

Sometimes it's a good thing to completely change your diet. We get into such a routine with what we eat.

GFinDC Veteran

You could look at the top 8 allergens lists to see if there might be something there he is reacting too.

McCormick single ingredient spices are ok, but spice blends (any brand) are possible problems.

Vitamin pills and medicines, sodas, tea, coffee, all that good stuff should be checked or eliminated by a trial abstinance.

There is most likely something sneaking in his diet daily that is affecting him.

Some of us have problems with oats also. Not Hall and Oats, but the kind you eat.

Preservatives and food colorings affect some people as well.

Then there is fructose malabsorption to consider.

Nightshades bother some people, and rice.

Just throwing out some ideas.

ang1e0251 Contributor

I have a hard time with alternate grains. I've eating a little saurkraut lately and that is helping with my digestion. If he's eating grains at dinner, that could explain it. That would be pasta, crackers, breads or anything with grain. Also some of those products have small amounts of gluten in them even though they are considerd gluten-free. You might stop anything like that for a bit and see how it works.

Chef16 Apprentice

Ask his doctor about taking digestive enzymes with his meals. I was having the same problem after being gluten free for a while, to the point where I couldn't even eat an apple without feeling sick. For some people (including me) your body is so damaged from eating gluten that is partially loses the ability to digest food properly and absorb nutrients. The digestive enzymes don't mask the symptoms, but rather help the body digest food until it can do it on its own. I noticed a difference right away and I could eat full meals without a problem. And after just a few months of thaking them with my meals I didn't need them anymore. Hope this helped!

  • 3 weeks later...
emilyailish Newbie

I'm having a similar problem although ive only been gluten free for 2 months. could anyone tell me how long it usually takes? I was told ten days

Squidge Newbie

I'm having a similar problem although ive only been gluten free for 2 months. could anyone tell me how long it usually takes? I was told ten days

Who told you that? It could take months depending on how much damage there already was. Your digestive tract can take more than ten days to heal. Furhtermore, there are other sensitivities that could be causing problems. Try eliminating milk, soy, and things that can irritate a healthy digestive tract, like corn, especially popcorn, and nuts. Start a food diary where you record everything you ate, every ingredient, and every allergy warning with dates and times. Also record how you feel, again with dates and times. Then look for patterns between feeling ill and what you ate. Eliminate possible causes and then if you feel better reintroduce what you eliminated to see if you get worse. Keep in mind that things can take some time to get where they cause problems, so look for time delayed symptoms as well. You have to figure the timing out on your own, because it can vary from person to person.

Squidge Newbie

I have a hard time with alternate grains. I've eating a little saurkraut lately and that is helping with my digestion. If he's eating grains at dinner, that could explain it. That would be pasta, crackers, breads or anything with grain. Also some of those products have small amounts of gluten in them even though they are considerd gluten-free. You might stop anything like that for a bit and see how it works.

If that's the case try mainly rice products. Alternate grains often acquire trace amounts of gluten from cross-contamination. Grains are usually processed close to where they're grown, and rice isn't grown anywhere near wheat. Wheat doesn't like quite as much wet as rice does. Also, General Mills, which includes Betty Crocker, has a rather novel, pretty much fool-proof way of dealing with cross contamination. They use a different building for all of their gluten-free products, including Rice and Corn Chex.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,486
    • Most Online (within 30 mins)
      7,748

    Takea-moment
    Newest Member
    Takea-moment
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.