Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Celiac, Questioning Diagnosis


Caniac

Recommended Posts

Caniac Newbie

Hi,

I am a newly diagnosed Celiac (about 2 months ago). Just this week, I have discovered I have gallstones as well as had an attack of very severe pain. Is it just coincidence that the two health issues arrived at basically the same time in my life, or is it something else? Could the celiac disease actually just be symptom of the gall bladder disease, and maybe I am not celiac at all? Before being diagnosed as celiac, I was having no symptoms. No pain, bloating, indigestion, etc., so it was a real stunner when I was told I am celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

How were you diagnosed? There are plenty of people that are suprised by the diagnosis because they say they did not have symptoms. Alot of those people also, after being gluten free for some time, realize that some of the everyday things that they thought were normal have improved. Sure it could be a coincidence that both gave you problems at the same time, or not, but at least you know.

mushroom Proficient

Often it comes the other way around. People have problems with their gall bladder, some even have the gall bladder removed (unnecessarily sometimes) and they they are diagnosed with celiac. The two conditions often go in tandem.

JillianLindsay Enthusiast

How were you diagnosed? I didn't present with typical celiac disease symptoms, aside from anemia. I had vaso-vagal syncope episodes (fainting) and even seizures. There are many people who have few or no symptoms, but ingesting gluten damages their body just like anyone else with celiac disease.

lizard00 Enthusiast
How were you diagnosed? I didn't present with typical celiac disease symptoms, aside from anemia. I had vaso-vagal syncope episodes (fainting) and even seizures. There are many people who have few or no symptoms, but ingesting gluten damages their body just like anyone else with celiac disease.

Sorry to hijack, but I just have to ask: Is vaso-vagal syncope a symptom? My mom has this, and has been tested for celiac. Negative so far, but her vitamin D level just came back low (19), despite the fact the she LOVES the sun! Just curious.

Thanks :)

mushroom Proficient

I have these fainting episodes when I get an extreme gas attack causing severe pain below the breastbone. This is the only link I am aware of to my gluten intolerance. My doctors told me it is due to pressure on the vagus nerve. I get all the typical pre-warnings of sweating, ringing in the ears, visual disturbance, etc.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    Aron2
    Newest Member
    Aron2
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.