Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lightheaded Still

Fields

Recommended Posts

Fields Newbie
Fields
Posted

I'm 58 years old and was self diagnosed in February with gluten intolerance. After losing 25 pounds, throwing up and diarhea daily; near fainting spells weekly, the doctor ran a battery of tests. MRI, CT, heart, ENT and blood work enough for a vampire. All were fine. Earlier I was being treated for acid reflux. After going gluten free, I improved dramatically and the acid reflux went away. I still have light headed spells daily but not to the extreme as before. My Neurologist refuses to believe that there is a correlation between Celiac and neurology. I am still tired but not exhausted. Does anyone else have the light headed problem? If so, did it ever go away. New grandmother needs encouragement.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hello and welcome!

I would suggest you find another neurologist, for one who is informed.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I would suggest you get a full metabolic panel done to make sure you are not deficient in minerals or essential vitamins, as both when not in order, can cause your ongoing symptoms, B-12 and Folic Acid deficiency specifically.

JillianLindsay Enthusiast
JillianLindsay
Posted

Welcome, and I'm very glad that going gluten-free has helped with most of your symptoms :)

How were your BP & HR? I have vaso-vagal syncope episodes (a fancy way of saying "fainting") where my heart rate and blood pressure drop low enough for me to lose consciousness. Hypotension and bradychardia can definitely cause dizziness & lightheadedness. How was your blood sugar? Are you eating often enough? I'm also hypoglycemic and get very dizzy and weak if I don't eat regularly.

I can only speak from my personal experience :) I hope you get to the bottom of it soon & feel better.

Take care,

Jillian

I'm 58 years old and was self diagnosed in February with gluten intolerance. After losing 25 pounds, throwing up and diarhea daily; near fainting spells weekly, the doctor ran a battery of tests. MRI, CT, heart, ENT and blood work enough for a vampire. All were fine. Earlier I was being treated for acid reflux. After going gluten free, I improved dramatically and the acid reflux went away. I still have light headed spells daily but not to the extreme as before. My Neurologist refuses to believe that there is a correlation between Celiac and neurology. I am still tired but not exhausted. Does anyone else have the light headed problem? If so, did it ever go away. New grandmother needs encouragement.
Fields Newbie
Fields
Posted
  • Author

I went to the MAYO clinic in September and had the metobolic workup showing only low platelets for which I'll be retested in a couple of weeks. My lightheadedness has also been refered to as vaso-vagal response. I don't lose consciousness but must lie down immediately. My blood sugar has been fine as well. I generally have low blood pressure. I eat small meals every two hours which does help. Hoping that as time goes by this symptom will cease. Thanks for your response. Sorry you have the same problem but it helps to know I'm not alone with it.

ktnhsv Newbie
ktnhsv
Posted

My heart rate and BP have always been normal. But I've had lightheadedness daily for 11 years (I'm only 31), I also have BAD anxiety. I have not been diagnosed with celiac-yet. But I'm investigating. Because I have always had bad eczema, and a whole slew of symptoms come in the past 11 years.

Fields Newbie
Fields
Posted
  • Author
My heart rate and BP have always been normal. But I've had lightheadedness daily for 11 years (I'm only 31), I also have BAD anxiety. I have not been diagnosed with celiac-yet. But I'm investigating. Because I have always had bad eczema, and a whole slew of symptoms come in the past 11 years.

Get tested - it may be the answer you're looking for.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Rocks in your ears can cause you to be dizzy. My dd had this and the treatment was easy (but made her dizzy for a few hours). Our PT therapist said this is very common in people.

BPPV explained:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Looking for answers Contributor
Looking for answers
Posted

Hi,

I've had trouble with dizziness for years. Every time I stand up too fast, I get really dizzy and everything turns black. I have to stop and grab a wall and then it resolves in about 3-5 seconds. Is this what you are experiencing? If so, I ended up finding out that I have adrenal exhaustion, which is a common side effect of gluten intolerance (because of the severe stress it puts on our bodies). I've been seeing a naturopathic doctor who put me on his regime for several months now and I'm experiencing fewer episodes every week. The adrenals control hormones and electrolytes, etc, so it's all inter-related. As a plus, turns out low cortisol levels (found with adrenal fatigue) also causes lethargy and sluggishness. I'm also so much more energetic now.

Eric-C Enthusiast
Eric-C
Posted

I'll add my standard answer.

Yeast.

I had lightheadedness and all of that too, along with neuropathy, all due to hypoglycemia, the cause of the hypoglycemia was yeast.

Probiotics and Candex fixed me up.

Because the balance in our systems is so screwed up it allows yeast to thrive.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.