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New Support Group, Wabash Valley Area, Indiana And Illinois.


Brooklyn528

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Brooklyn528 Apprentice

Hi, I have started a Celiac support group in my area. It will include anybody willing to drive to Brazil, Indiana for meetings. We will be having them monthly at least. The first meeting will be this Sunday at St. Vincent Clay Hospital, in Brazil. It will be in the Medical office building on the hospital campus. The hospital in located on the north side of highway 40 in Brazil. Please contact me if you would like to come. The meeting will be informal. It is also a pitch in, so plan on bringing your favorite dish to share with others. Ingredient lists will be greatly appreciated. Anyways, like I said, contact me if you would like to attend. The meeting will be from 2pm-5pm. Hope to hear from some people on here that are close enough to come! I am very excited for it.

Thanks,

Brooklyn

  • 1 month later...

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Nancy Linnemann Newbie

Hi, I have started a Celiac support group in my area. It will include anybody willing to drive to Brazil, Indiana for meetings. We will be having them monthly at least. The first meeting will be this Sunday at St. Vincent Clay Hospital, in Brazil. It will be in the Medical office building on the hospital campus. The hospital in located on the north side of highway 40 in Brazil. Please contact me if you would like to come. The meeting will be informal. It is also a pitch in, so plan on bringing your favorite dish to share with others. Ingredient lists will be greatly appreciated. Anyways, like I said, contact me if you would like to attend. The meeting will be from 2pm-5pm. Hope to hear from some people on here that are close enough to come! I am very excited for it.

Thanks,

Brooklyn

I am glad to hear you have started this group. We are having our 3rd annual Indiana state luncheon on April 18th It is $20.00 per person to enjoy a gluten free lunch and hear Dr. Fasano speak and talk to gluten free vendors. It will be held at the Best Western conference in Lafayette, on state Rd 26. I will send you flyers to put up somewhere in your town if you like. Just send me your mailing address.People should send checks to Nancy linnemann, 2635 N. 400 W., West lafayette, IN 47906 my e-mail is: n.linnemann@comcast.net

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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