Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Eugene, Or? (or Anywhere Within 4 Hours)


Sunshine-Lollipop

Recommended Posts

Sunshine-Lollipop Newbie

Hello :)

I am in Eugene, OR, and have been searching in vain for a doctor who can help me.

I have not been officially diagnosed with celiac, but I have very severe reactions every time I eat even the smallest amount of wheat, and I have had a saliva test which confirmed gluten sensitivity at the very least. I had stopped eating wheat for a couple of years before I even had heard of celiac, so I can't get the blood test (I'm not willing to risk the reaction from going back on wheat just for the test).

One relative has celiac, and given the severity of my symptoms I am pretty sure I have it too (along with multiple other food allergies, and I have very low iron, etc.) My biggest concern right now is finding a supplement that doesn't tax my adrenals or contain any of the numerous numerous food triggers that I need to avoid.

I would be willing to travel if need be.. at this point my diet is so limited that I'm very concerned about nutritional deficiencies.. time is of the essence.

I need a doctor with a lot of patience, who can help walk me through this. I have seen a number of doctors and naturopaths who wanted to hand me a bottle of standard vitamins and/or herbs and be done with it.. but my allergic reactions can be so severe that I am very hesitant to try anything that isn't simple food unless I know that my doc will be there for me if I have a negative reaction. I need help untangling the mess of allergies that I have as well as figuring out whether I have any additional problems underlying this.

Any good referrals?

Thank you!

  • 4 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ilikepie Apprentice

I am also in Eugene. Unfortunately, I have absolutely no good recommendations for you. I have many allergy problems as well, and have seen MANY doctors. Unfortunately, non of them seem to think my chronic diarrhea and accompanying abdominal pains are anything to be concerned about. What I can say, is to never go to Kaiser Permanente in Salem or Portland. There will be no one of use to you there. Sorry I couldn't be of more help. Best of luck to you and please share if you succeed in finding someone who can help you!

celiac-mommy Collaborator

Char Glenn at Nob Hill Internal Medicine in Portland. She's a PCP but her specialty is Celiac disease and nutrition. She's amazing!

Alice in Wheatland Newbie

Char Glenn at Nob Hill Internal Medicine in Portland. She's a PCP but her specialty is Celiac disease and nutrition. She's amazing!

I can second that. She was my doctor until I moved to Salem and can't drive that far. I am one who is very ill due to Celiac and related/unrelated issues.

I was hoping someone knew of an affordable Natropath here in Salem?? I called one guy but he was NOT affordable!

I know the pickings are slim, but if anyone has any leads that would be great.

~Mercy

  • 4 years later...
Sunshine-Lollipop Newbie

Thank you all for the recommendations!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,119
    • Most Online (within 30 mins)
      7,748

    anagramcat
    Newest Member
    anagramcat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.