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My 10 Year Olds Endoscopy Was Today!

zack

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zack Rookie
zack
Posted

Can a doc determine if there is damage to villi with the naked eye or is biopsy the only way to know.

Our Gi did 7 biopsys today and said things looked good. So should i believe my sons biopsy will be negative?? Thank-you

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Lisa Mentor
Lisa
Posted
Can a doc determine if there is damage to villi with the naked eye or is biopsy the only way to know.

Our Gi did 7 biopsies today and said things looked good. So should i believe my sons biopsy will be negative?? Thank-you

A scope of the small intestines can look for damage to the villi and scalloped walls, and it can be viewed through the procedure. Biopsy's are taken at that time.

Biopsy's can also indicated issues with gluten, but they may miss the effected areas. So a negative endoscopy or biopsy is not conclusive that Celiac Disease is not present. Or perhaps, not enough damage has occurred to be visible. It can rule Celiac in, but cannot rule it out.

ravenwoodglass Mentor
ravenwoodglass
Posted

The endo can look normal to the doctor but still have a postive after the biopsies are read. The villi are very tiny, hence the need for a biopsy. Now that the biopsy is done you can start on the diet. Sometimes the body responds well before we even go back for the results. There are pretty high rates of false negatives so a trial on the diet would be needed no matter what the result. You should be able to get started now that testing is done.

nmlove Contributor
nmlove
Posted

After my son's endoscopy, his GI told us that he saw damage and to go ahead and cut out the obvious gluten sources. Then of course a week later the biopsy results were positive. But as posted, the damage may or may not be visible - reading the biopsies is key. I will say this. Once 100% gluten free I could tell a difference in my son by week's end.

Roda Rising Star
Roda
Posted

My GI doc said he saw minor changes but would not speculate anything until the biopsy results which were positive.

  • 2 weeks later...
StacyA Enthusiast
StacyA
Posted
Can a doc determine if there is damage to villi with the naked eye or is biopsy the only way to know.

Our Gi did 7 biopsys today and said things looked good. So should i believe my sons biopsy will be negative?? Thank-you

My GI (with some good celiac experience) said everything looked okay visually, but the biopsy results came back with mild villous blunting.

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  • Posts

    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      Diagnosis and further testing Celiac

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    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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