Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Less Anxious, More Depressed


jackay

Recommended Posts

jackay Enthusiast

I am finally sleeping now after figuring out my calcium supplement was causing my insomnia. That was not a gluten related issue. Now I am sleeping 8-9 hours a night. My anxiety is not so bad but the depression sure is.

I am pretty sure I am gluten free now. Pretty sure, yet not 100% positive. The D isn't as bad as it was. I am still getting some headaches and muscle pain although they are not nearly as in the past. I realize it takes a while for all the symptoms to go away. I'm just getting awful impatient.

I am getting by now just knowing that I will finally sleep at night. The days are still very long and tedious. I don't see much hope for the future if this depression doesn't lift.

I hope others out there have had improvements with depression and can give me some encouragement.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JillianLindsay Enthusiast

This may not seem like helpful advice, but these are the best tx we have for depression right now:

-antidepressants coupled with counselling

-regular exercise

-eating well (balanced, healthy diet)

-avoiding alcohol as it is a depressant

I suffer from very severe depression during the winter months and the only things that keep me going are playing indoor soccer, ice hockey and walking my dogs (my husband sometimes has to coerce me into going because my motivation is so low, but I do feel better afterwards).

It's very hard, but we have to keep pushing ourselves to do the things we usually enjoy, even though we don't feel like doing them.

The winter months tend to be more difficult for people who do suffer from depressive symptoms, mainly because of the reduced number of hours of sunlight during this season. Getting outside as much as possible and getting exposed to natural sunlight not only helps your mood, it also helps your quality of sleep at night.

The good news is that the days will slowly start to get longer now (hours of sunlight) and the more you are proactive and get yourself out of the house and doing as much as possible, the better you will feel. This does not take away from what you are going through and how hard it is, so use your friends and family to support you through this difficult time.

It does get better. How long have you been gluten-free? For me it was a roller coaster at first. I felt amazing within a week, then went through gluten withdrawal and felt lousy for a month or so, then started feeling better again. The amount of time it takes is different for everyone, but be patient and I'm sure you will start to see improvement.

Try and make plans for things you will look forward to, whatever your interests are, get out there and do things you enjoy as much as possible (even when you don't feel like it) and utilize your support system. Good luck & I hope you start to feel better soon.

Take care,

Jillian

jackay Enthusiast

Jillian,

Thanks for all the helpful advise.

I felt so much better the first week after I really cracked down on cross contamination. I expected it to continue and get even better. It was such a let down that I started feeling worse. I know I need to keep strong and take any little improvement as a good sign.

Sleep is such a blessing and I have been waiting for it for so long. I think I just expected that I would be feeling so much better now that I am sleeping. At least now I do have sleep to look forward to.

I am having a hard time motivating myself to get fresh air and exercise. I will push myself more.

I get no where with counseling and have tried several different counselors. I know they have gotten quite exasperated that I didn't get better. One even said she felt so bad because I was one of those people who was slipping between the cracks.

I have not had good luck with antidepressants either. Some antidepressants have made me much worse. I am currently taking mirtazapine and hope it doesn not contain gluten. I called the pharmacy and was told it contains cornstarch. I may be reacting to that, too. I will wait to see what my food test results show to see if I react to corn before I discontinue it. I see my doctor in four weeks to go over my results for nutritional deficiencies and food intolerances. That may shed more light into what else is all going on with me.

I haven't had a drink in over a year. I feel I am eating quite healthy as I am eating mostly whole foods. I think I am on the right track just getting impatient with the time it takes to heal.

freeatlast Collaborator

I totally agree with what Jillian said about the winter months. They are the worst for some people. For me, I go out to the mall and walk around sometimes at night just to get out of the house and get exercise. It really does help the body and the mind. Hope you feel better soon.

JillianLindsay Enthusiast

It sounds like you are doing a lot to try and feel better -- keep that up & you will start to reap the rewards :)

I find it helps me (and it's different for everyone) to have plans set up in advance that I can look forward to (i.e. coffee with a friend, my sports, etc). That helps me feel a little more optimistic about my day and gives me a bit more energy. Whatever it is you enjoy, perhaps try planning activities ahead of time, and don't forget to try & get some time in the sunlight.

Good luck & take care!

I am having a hard time motivating myself to get fresh air and exercise. I will push myself more.

I haven't had a drink in over a year. I feel I am eating quite healthy as I am eating mostly whole foods. I think I am on the right track just getting impatient with the time it takes to heal.

txplowgirl Enthusiast

Hi Jackay,

When I eat soy it will give me depression symptoms and headaches, Dairy also will give me a headache. The nightshades have been known to cause a lot of pain. Those are potatoes, tomatoes, eggplant, and all peppers. Maybe try cutting those out for a couple of weeks and see how you do? Just a thought. Hope you feel better.

  • 1 month later...
Melodee Newbie

Coping with the depression that can accompany celiacs is certainly concerning. I agree with Jillian that anti-depressants combined with counseling tend to produce the longest lasting benefits. Forcing yourself to get out and around during the day to maximize your vitamin D intake is also important.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

Coping with the depression that can accompany celiacs is certainly concerning. I agree with Jillian that anti-depressants combined with counseling tend to produce the longest lasting benefits. Forcing yourself to get out and around during the day to maximize your vitamin D intake is also important.

My two month update:

My depression is much better but insomnia is a problem. I started taking Vitamin B12 drops at bedtime as I tested low on that. Was hoping for sleep improvement but so far I'm still not getting consistant sleep. Maybe it will just take more time to really get the B12 in my system.

I'm going to an exercise class four days a week and walking at least one day. It is taking very long for winter to end so am not getting much fresh air. Once it finally warms up, there is tons of snow to melt so that is going to make it messy for outdoor walks. I'm looking forward to bike rides once it dries up outdoors.

I'm staying away from antidepressants as have tried way too many with adverse or no effect. I am intolerant to corn and there is cornstarch in mirtazapine. Since I've gone off it, I haven't slid backwards. I really didn't think it was helping me any. My psych nurse wanted me on a low dose since only the low dose helps with sleep. In my case it didn't help at all as I had many nights with little or no sleep.

I've gotten no where with counseling but know if I could find a gluten intolerant counselor that I'd do much better. For now, this forum is my counselor as only others that suffer from food intolerances can really relate to the health issues.

Bobbijo6681 Apprentice

My two month update:

My depression is much better but insomnia is a problem. I started taking Vitamin B12 drops at bedtime as I tested low on that. Was hoping for sleep improvement but so far I'm still not getting consistant sleep. Maybe it will just take more time to really get the B12 in my system.

I'm going to an exercise class four days a week and walking at least one day. It is taking very long for winter to end so am not getting much fresh air. Once it finally warms up, there is tons of snow to melt so that is going to make it messy for outdoor walks. I'm looking forward to bike rides once it dries up outdoors.

I'm staying away from antidepressants as have tried way too many with adverse or no effect. I am intolerant to corn and there is cornstarch in mirtazapine. Since I've gone off it, I haven't slid backwards. I really didn't think it was helping me any. My psych nurse wanted me on a low dose since only the low dose helps with sleep. In my case it didn't help at all as I had many nights with little or no sleep.

I've gotten no where with counseling but know if I could find a gluten intolerant counselor that I'd do much better. For now, this forum is my counselor as only others that suffer from food intolerances can really relate to the health issues.

I would recommend taking the B12 in the morning instead of at night before bed. B12 is a vitamin that is included in many if not all energy drinks and may be causing the insomnia. I am no expert, but I take a B12 suppliment and always take it in the morning.

Don't know if that will help, but thought I would throw it out there.

jackay Enthusiast

I would recommend taking the B12 in the morning instead of at night before bed. B12 is a vitamin that is included in many if not all energy drinks and may be causing the insomnia. I am no expert, but I take a B12 suppliment and always take it in the morning.

Don't know if that will help, but thought I would throw it out there.

I'm going to work with the Vitamin B12 more by trying in in the morning for a while. If that doesn't help, I'll try taking it three times a day which is what my doctor suggested.

I did start the mirtazipine again because of the depression and it seems to help. I really want to get off it so will try again in a while.

I've gotten outside hour long walks the past four days. It has been sunny here and about 30 degrees. Looks like snow is on it's way so won't be getting the sunshine for a while. Can't wait for spring to get here!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.