Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Less Anxious, More Depressed


jackay

Recommended Posts

jackay Enthusiast

I am finally sleeping now after figuring out my calcium supplement was causing my insomnia. That was not a gluten related issue. Now I am sleeping 8-9 hours a night. My anxiety is not so bad but the depression sure is.

I am pretty sure I am gluten free now. Pretty sure, yet not 100% positive. The D isn't as bad as it was. I am still getting some headaches and muscle pain although they are not nearly as in the past. I realize it takes a while for all the symptoms to go away. I'm just getting awful impatient.

I am getting by now just knowing that I will finally sleep at night. The days are still very long and tedious. I don't see much hope for the future if this depression doesn't lift.

I hope others out there have had improvements with depression and can give me some encouragement.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JillianLindsay Enthusiast

This may not seem like helpful advice, but these are the best tx we have for depression right now:

-antidepressants coupled with counselling

-regular exercise

-eating well (balanced, healthy diet)

-avoiding alcohol as it is a depressant

I suffer from very severe depression during the winter months and the only things that keep me going are playing indoor soccer, ice hockey and walking my dogs (my husband sometimes has to coerce me into going because my motivation is so low, but I do feel better afterwards).

It's very hard, but we have to keep pushing ourselves to do the things we usually enjoy, even though we don't feel like doing them.

The winter months tend to be more difficult for people who do suffer from depressive symptoms, mainly because of the reduced number of hours of sunlight during this season. Getting outside as much as possible and getting exposed to natural sunlight not only helps your mood, it also helps your quality of sleep at night.

The good news is that the days will slowly start to get longer now (hours of sunlight) and the more you are proactive and get yourself out of the house and doing as much as possible, the better you will feel. This does not take away from what you are going through and how hard it is, so use your friends and family to support you through this difficult time.

It does get better. How long have you been gluten-free? For me it was a roller coaster at first. I felt amazing within a week, then went through gluten withdrawal and felt lousy for a month or so, then started feeling better again. The amount of time it takes is different for everyone, but be patient and I'm sure you will start to see improvement.

Try and make plans for things you will look forward to, whatever your interests are, get out there and do things you enjoy as much as possible (even when you don't feel like it) and utilize your support system. Good luck & I hope you start to feel better soon.

Take care,

Jillian

jackay Enthusiast

Jillian,

Thanks for all the helpful advise.

I felt so much better the first week after I really cracked down on cross contamination. I expected it to continue and get even better. It was such a let down that I started feeling worse. I know I need to keep strong and take any little improvement as a good sign.

Sleep is such a blessing and I have been waiting for it for so long. I think I just expected that I would be feeling so much better now that I am sleeping. At least now I do have sleep to look forward to.

I am having a hard time motivating myself to get fresh air and exercise. I will push myself more.

I get no where with counseling and have tried several different counselors. I know they have gotten quite exasperated that I didn't get better. One even said she felt so bad because I was one of those people who was slipping between the cracks.

I have not had good luck with antidepressants either. Some antidepressants have made me much worse. I am currently taking mirtazapine and hope it doesn not contain gluten. I called the pharmacy and was told it contains cornstarch. I may be reacting to that, too. I will wait to see what my food test results show to see if I react to corn before I discontinue it. I see my doctor in four weeks to go over my results for nutritional deficiencies and food intolerances. That may shed more light into what else is all going on with me.

I haven't had a drink in over a year. I feel I am eating quite healthy as I am eating mostly whole foods. I think I am on the right track just getting impatient with the time it takes to heal.

freeatlast Collaborator

I totally agree with what Jillian said about the winter months. They are the worst for some people. For me, I go out to the mall and walk around sometimes at night just to get out of the house and get exercise. It really does help the body and the mind. Hope you feel better soon.

JillianLindsay Enthusiast

It sounds like you are doing a lot to try and feel better -- keep that up & you will start to reap the rewards :)

I find it helps me (and it's different for everyone) to have plans set up in advance that I can look forward to (i.e. coffee with a friend, my sports, etc). That helps me feel a little more optimistic about my day and gives me a bit more energy. Whatever it is you enjoy, perhaps try planning activities ahead of time, and don't forget to try & get some time in the sunlight.

Good luck & take care!

I am having a hard time motivating myself to get fresh air and exercise. I will push myself more.

I haven't had a drink in over a year. I feel I am eating quite healthy as I am eating mostly whole foods. I think I am on the right track just getting impatient with the time it takes to heal.

txplowgirl Enthusiast

Hi Jackay,

When I eat soy it will give me depression symptoms and headaches, Dairy also will give me a headache. The nightshades have been known to cause a lot of pain. Those are potatoes, tomatoes, eggplant, and all peppers. Maybe try cutting those out for a couple of weeks and see how you do? Just a thought. Hope you feel better.

  • 1 month later...
Melodee Newbie

Coping with the depression that can accompany celiacs is certainly concerning. I agree with Jillian that anti-depressants combined with counseling tend to produce the longest lasting benefits. Forcing yourself to get out and around during the day to maximize your vitamin D intake is also important.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

Coping with the depression that can accompany celiacs is certainly concerning. I agree with Jillian that anti-depressants combined with counseling tend to produce the longest lasting benefits. Forcing yourself to get out and around during the day to maximize your vitamin D intake is also important.

My two month update:

My depression is much better but insomnia is a problem. I started taking Vitamin B12 drops at bedtime as I tested low on that. Was hoping for sleep improvement but so far I'm still not getting consistant sleep. Maybe it will just take more time to really get the B12 in my system.

I'm going to an exercise class four days a week and walking at least one day. It is taking very long for winter to end so am not getting much fresh air. Once it finally warms up, there is tons of snow to melt so that is going to make it messy for outdoor walks. I'm looking forward to bike rides once it dries up outdoors.

I'm staying away from antidepressants as have tried way too many with adverse or no effect. I am intolerant to corn and there is cornstarch in mirtazapine. Since I've gone off it, I haven't slid backwards. I really didn't think it was helping me any. My psych nurse wanted me on a low dose since only the low dose helps with sleep. In my case it didn't help at all as I had many nights with little or no sleep.

I've gotten no where with counseling but know if I could find a gluten intolerant counselor that I'd do much better. For now, this forum is my counselor as only others that suffer from food intolerances can really relate to the health issues.

Bobbijo6681 Apprentice

My two month update:

My depression is much better but insomnia is a problem. I started taking Vitamin B12 drops at bedtime as I tested low on that. Was hoping for sleep improvement but so far I'm still not getting consistant sleep. Maybe it will just take more time to really get the B12 in my system.

I'm going to an exercise class four days a week and walking at least one day. It is taking very long for winter to end so am not getting much fresh air. Once it finally warms up, there is tons of snow to melt so that is going to make it messy for outdoor walks. I'm looking forward to bike rides once it dries up outdoors.

I'm staying away from antidepressants as have tried way too many with adverse or no effect. I am intolerant to corn and there is cornstarch in mirtazapine. Since I've gone off it, I haven't slid backwards. I really didn't think it was helping me any. My psych nurse wanted me on a low dose since only the low dose helps with sleep. In my case it didn't help at all as I had many nights with little or no sleep.

I've gotten no where with counseling but know if I could find a gluten intolerant counselor that I'd do much better. For now, this forum is my counselor as only others that suffer from food intolerances can really relate to the health issues.

I would recommend taking the B12 in the morning instead of at night before bed. B12 is a vitamin that is included in many if not all energy drinks and may be causing the insomnia. I am no expert, but I take a B12 suppliment and always take it in the morning.

Don't know if that will help, but thought I would throw it out there.

jackay Enthusiast

I would recommend taking the B12 in the morning instead of at night before bed. B12 is a vitamin that is included in many if not all energy drinks and may be causing the insomnia. I am no expert, but I take a B12 suppliment and always take it in the morning.

Don't know if that will help, but thought I would throw it out there.

I'm going to work with the Vitamin B12 more by trying in in the morning for a while. If that doesn't help, I'll try taking it three times a day which is what my doctor suggested.

I did start the mirtazipine again because of the depression and it seems to help. I really want to get off it so will try again in a while.

I've gotten outside hour long walks the past four days. It has been sunny here and about 30 degrees. Looks like snow is on it's way so won't be getting the sunshine for a while. Can't wait for spring to get here!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    2. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    4. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    5. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748

    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.