Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pains When Do They Get Better

Diva1

By Diva1
in Coping with Celiac Disease

Recommended Posts

Diva1 Enthusiast
Diva1
Posted

Hello

Gluten free for 3 months now doing better but if I get glutened my symptoms seems worst than before the diet

and then the joint pains are incredible..hips to knees and neck...do they get better ..and will I get better

i feeling a bit depressed with all this....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

Hi Diva1,

Are your joint pains all the time or are they only when you get glutened? If only when you are glutened then the most you can do is either drink some water to try to flush the system, sometimes it works sometimes not, take some L-glutamine. Again, sometimes helps sometimes not. Take a hot bath and curl up in your favorite pajamas and just try to wait it out. Sorry.

But if you have joint pains all the time try to eliminate all the nightshade vegetables, that will help some. If you get glutened the nightshade veggies will increase the pain. At least it did for me anyway. Hope you get to feeling better. Also, soy causes pain a lot too.

CarbQueen Newbie
CarbQueen
Posted

I followed an elimination diet to determine which items were allergens. Once I eliminated those items all my symptoms cleared up.

I occasionally become glutened even with the best intentions. Those flares are unbearable. As my digestive system started healing the reactions to an accidental gluttening decreased.

It did start to get better. Hopefully, your flares will decrease in intensity.

Adelaide Crow Newbie
Adelaide Crow
Posted

Just reading your question gives me some comfort because I'm not alone!! Have just been tested for gluten intolerance but I know that it what has been my problem for about 6 years now and I am determined never to have it again. I've been gluten free for two days and am still feeling terrible but will stick it out because (especially after my christmas gluten binge that enough is enough!!) In have really bad joint pains, exhaustion, eye pain, eye problems, occasional rashes and bumps, weakness and mental confusion/ anxiety. Its so amazing to see other people writing what Ive always suspected and every time i've been to the doctor felt like a complete looney trying to explain . . . even people's "glutened" reactions. anyway but im wondering now am i reacting to carageenan and sulfites (which i think i probably am) or am i just in gluten withdrawal because i still feel pretty bad. but i am getting the urge to go sniff bread . . . !! anway hope your feeling better.

adelaide crow

Diva1 Enthusiast
Diva1
Posted
  • Author

Just reading your question gives me some comfort because I'm not alone!! Have just been tested for gluten intolerance but I know that it what has been my problem for about 6 years now and I am determined never to have it again. I've been gluten free for two days and am still feeling terrible but will stick it out because (especially after my christmas gluten binge that enough is enough!!) In have really bad joint pains, exhaustion, eye pain, eye problems, occasional rashes and bumps, weakness and mental confusion/ anxiety. Its so amazing to see other people writing what Ive always suspected and every time i've been to the doctor felt like a complete looney trying to explain . . . even people's "glutened" reactions. anyway but im wondering now am i reacting to carageenan and sulfites (which i think i probably am) or am i just in gluten withdrawal because i still feel pretty bad. but i am getting the urge to go sniff bread . . . !! anway hope your feeling better.

adelaide crow

Thanks i guess we can comfort each other with our posting..this is a fabulous forum.

Hope you get better with time I guess patience is the key...

Diva

RiceGuy Collaborator
RiceGuy
Posted

I found magnesium to be incredibly helpful for various body/joint/muscle pains. And I second the suggestion to avoid nightshades - they really brought on the pain in my case.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Many celiacs with joint pain find that dairy triggers their joint pain as much as gluten. Sad, but common. You may need to eliminate all dairy, not just lactose.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 4 weeks later...
tls527 Rookie
tls527
Posted

Another thing you can try for joint pain is to have your Vitamin D3 levels checked by blood work. My husband has been gluten free for about 8 years and still was having joint pain over entire body. Had blood work done and found out that his Vitamin D3 levels were low. Doctor put him on 4 weeks of vitamin D prescription and the pain is entirely gone. He has to stay on over the counter Vitamin D3 once a day but he no longer has any pain.

Tina in NJ

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748
    melindakathleen
    Newest Member
    melindakathleen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...