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Joint Pains When Do They Get Better


Diva1

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Diva1 Enthusiast

Hello

Gluten free for 3 months now doing better but if I get glutened my symptoms seems worst than before the diet

and then the joint pains are incredible..hips to knees and neck...do they get better ..and will I get better

i feeling a bit depressed with all this....


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txplowgirl Enthusiast

Hi Diva1,

Are your joint pains all the time or are they only when you get glutened? If only when you are glutened then the most you can do is either drink some water to try to flush the system, sometimes it works sometimes not, take some L-glutamine. Again, sometimes helps sometimes not. Take a hot bath and curl up in your favorite pajamas and just try to wait it out. Sorry.

But if you have joint pains all the time try to eliminate all the nightshade vegetables, that will help some. If you get glutened the nightshade veggies will increase the pain. At least it did for me anyway. Hope you get to feeling better. Also, soy causes pain a lot too.

CarbQueen Newbie

I followed an elimination diet to determine which items were allergens. Once I eliminated those items all my symptoms cleared up.

I occasionally become glutened even with the best intentions. Those flares are unbearable. As my digestive system started healing the reactions to an accidental gluttening decreased.

It did start to get better. Hopefully, your flares will decrease in intensity.

Adelaide Crow Newbie

Just reading your question gives me some comfort because I'm not alone!! Have just been tested for gluten intolerance but I know that it what has been my problem for about 6 years now and I am determined never to have it again. I've been gluten free for two days and am still feeling terrible but will stick it out because (especially after my christmas gluten binge that enough is enough!!) In have really bad joint pains, exhaustion, eye pain, eye problems, occasional rashes and bumps, weakness and mental confusion/ anxiety. Its so amazing to see other people writing what Ive always suspected and every time i've been to the doctor felt like a complete looney trying to explain . . . even people's "glutened" reactions. anyway but im wondering now am i reacting to carageenan and sulfites (which i think i probably am) or am i just in gluten withdrawal because i still feel pretty bad. but i am getting the urge to go sniff bread . . . !! anway hope your feeling better.

adelaide crow

Diva1 Enthusiast

Just reading your question gives me some comfort because I'm not alone!! Have just been tested for gluten intolerance but I know that it what has been my problem for about 6 years now and I am determined never to have it again. I've been gluten free for two days and am still feeling terrible but will stick it out because (especially after my christmas gluten binge that enough is enough!!) In have really bad joint pains, exhaustion, eye pain, eye problems, occasional rashes and bumps, weakness and mental confusion/ anxiety. Its so amazing to see other people writing what Ive always suspected and every time i've been to the doctor felt like a complete looney trying to explain . . . even people's "glutened" reactions. anyway but im wondering now am i reacting to carageenan and sulfites (which i think i probably am) or am i just in gluten withdrawal because i still feel pretty bad. but i am getting the urge to go sniff bread . . . !! anway hope your feeling better.

adelaide crow

Thanks i guess we can comfort each other with our posting..this is a fabulous forum.

Hope you get better with time I guess patience is the key...

Diva

RiceGuy Collaborator

I found magnesium to be incredibly helpful for various body/joint/muscle pains. And I second the suggestion to avoid nightshades - they really brought on the pain in my case.

Fiddle-Faddle Community Regular

Many celiacs with joint pain find that dairy triggers their joint pain as much as gluten. Sad, but common. You may need to eliminate all dairy, not just lactose.


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  • 4 weeks later...
tls527 Rookie

Another thing you can try for joint pain is to have your Vitamin D3 levels checked by blood work. My husband has been gluten free for about 8 years and still was having joint pain over entire body. Had blood work done and found out that his Vitamin D3 levels were low. Doctor put him on 4 weeks of vitamin D prescription and the pain is entirely gone. He has to stay on over the counter Vitamin D3 once a day but he no longer has any pain.

Tina in NJ

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      I agree with @trents, but thank you for bringing this up here!
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      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
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      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
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    • trents
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