Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introducing Myself

JennyRey

Recommended Posts

JennyRey Rookie
JennyRey
Posted

Hi..

I am Jenny and I am from New Orleans, La. I am new to the whole Celiac Nation and need friends who have like symptons.

Thanks,

Jenny :rolleyes:

Geaux Saints!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LucyMarci Newbie
LucyMarci
Posted

Hi Jenny! I am also from New Orleans (born and raised) but now I live in Miami. I am SO EXCITED about our huge victory - NFC Champions!!! Geaux Saints, WHO DAT?!

Anyway, I return to Nola all the time because my family is still there, and there are quite a few places I can recommend for gluten free.

P.F. Changs (Lakeside) has a great gluten free menu

Naked Pizza (uptown) has a gluten free menu, their pizzas are so delicious I had one when I was home over Christmas.

Casementos (uptown) fries all their seafood in cornmeal so it's gluten free, says so on their website.

Whole Foods has so many gluten free foods in their store, they've really helped me in Miami and Nola.

Sushi is pretty easy to eat on a gluten free diet, just avoid soy sauces, imitation crab, and fried dishes. (I've eaten at Little Tokyo, Sake Cafe, Shogun)

Chilis has a gluten free menu, as well as Wendys, Burger King... places like that, which you may be familiar with.

I ate at Galatoire's over Christmas too and they were accomodating... made me a steak plain in a clean pan.

Are you still having symptoms? How long ago was your diagnosis? I have been gluten-free for eight or nine months now. I was diagnosed last summer, after years and years and years of mis-diagnoses, symptoms... it was awful. I am so thankful to be a Celiac and to feel better!

Lucy

curlyfries Contributor
curlyfries
Posted

Hi Jenny! You'll find lots of friends here :)

Sorry, but......GO COLTS!!!! :D

JennyRey Rookie
JennyRey
Posted
  • Author

Thanks Ladies,

I have had symptoms for my whole 37 years of life. I dont ever remember a time when I didnt get the rash like pustules in between my fingers. I am 5" tall which is smaller than anyone else in my family. The pains have always been there. I have been to other doctors who have told me I had IBS, Crohn's Disease, gall bladder problems, I was also told that the pain was due to having my tubes tied 15 years ago. I had learned to live with them but it became too much when it interfeered with my volunteer work (I volunteer with ARNO Animal Rescue New Orleans). I am depended on by both the dogs and my other co-volunteers to be there since I am a lead volunteer and when you are unsure how your stomach is gonna react..well you all know. Anyway I had an appointment with a GOOD gastroenterologist for the past 6 months and she looked me over and did a battery of blood work and well..you know what the results were.. so here I am. Thank you for all the restaurant help. My 18th anniversary is tomorrow and we were at a loss of where to go.

Wonderful to meet you all!!

JennyRey Rookie
JennyRey
Posted
  • Author

Also, ladies..

I am on facebook all day at work.. Please find me so I can have some Celiac people on my site. :)

I am under Jennifer DeMarco Reynolds

Thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748
    BJ OConnor
    Newest Member
    BJ OConnor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.