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When Gluten Free Isn't The Only Issue?


Nor-TX

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Nor-TX Enthusiast

It is so difficult to menu plan when you have more than one issue to deal with. Other than needing gluten free foods, I have Colitis (no fresh veggies, fruits, seeds, nuts, high fiber), IBS (no high acid foods, no grease, no spicy foods) Dairy Free (no milk and just a little goat cheese is ok). I am often dealing with pain and nausea, but when the drugs kick in I'm hungry but really don't know what to eat.

Just thought someone might be able to suggest ideas. I have gluten-free crackers, pretzels, rice noodle soup, sticky rice, gluten-free bagels and salmon.

I would welcome ideas.


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burdee Enthusiast

It is so difficult to menu plan when you have more than one issue to deal with. Other than needing gluten free foods, I have Colitis (no fresh veggies, fruits, seeds, nuts, high fiber), IBS (no high acid foods, no grease, no spicy foods) Dairy Free (no milk and just a little goat cheese is ok). I am often dealing with pain and nausea, but when the drugs kick in I'm hungry but really don't know what to eat.

Just thought someone might be able to suggest ideas. I have gluten-free crackers, pretzels, rice noodle soup, sticky rice, gluten-free bagels and salmon.

I would welcome ideas.

I can relate to pain and nausea, despite abstaining from gluten and my 6 other food allergies (dairy, soy, eggs, cane sugar, vanilla and nutmeg) plus several foods which cause reflux, even though I don't have diagnosed allergies to those. I was initially misdiagnosed (for 20 years) with 'IBS' (which is a label doctors give to symptoms they can't understand) before I learned I had celiac disease. However eliminating all my food allergens didn't prevent my colitis (cramping, bloating, gas, frequency, diarrhea and/or constipation). So I found a doc who founded a local 'IBS Treatment Center'. He believes that 'IBS' symptoms are caused by celiac disease, food allergies, bacteria, parasities and/or fungus (yeast) infections.

During the past 4 years I've been diagnosed (by stool test) and treated for 6 different gut infections (4 bacteria, 1 parasite and 1 yeast). I'm currently taking caprylic acid to treat achromobacter after finally recovering from c-diff after 8 months of treatment. I also take lots of probiotics to restore the good bacteria destroyed by antibiotic treatment.

Instead of taking drugs to suppress colitis or 'ibs' symptoms, I suggest you find a doctor who will look for the CAUSE of your symptoms. Ask for blood tests (like ELISA) for additional allergies and stool tests to determine if you have any bad bugs which could cause your 'colitis' symptoms.

SUE

Nor-TX Enthusiast

I've had many colonoscopies over the last 5 years and it is definitely colitis, GERD, gastro-paresis, hiatia hernia. The IBS and Gluten and Dairy came afterwards. I must say since going gluten free and for the most part dairy free, I am slowly beginning to feel better. Last night I only had to get up once because of the pains. This horrible flare began in November after I received the H1N1 shot, and after a week of eating all the wrong foods and trying to reduce the number of Asacol I am on. The combo of these three things drove me into the worse flare I have had since being diagnose about 5 years ago..

I am slowly pulling myself up out of this hole. Going gluten free and dairy free and still trying to stay within the confines of diets appropriate for colitis, GERD, IBS and gastro-paresis makes each and every bite I take a thought provoking endeavor.

Keep well.

mommida Enthusiast

Have you tried hummus? Chick peas pureed with oil.

I love the stuff and have practically eaten half a cup of the stuff in one sitting. But alas, my daughter can't have it because of the EE. I won't take the chance of cross-contamination with all the beans and leguemes.

missy'smom Collaborator

It is so difficult to menu plan when you have more than one issue to deal with. Other than needing gluten free foods, I have Colitis (no fresh veggies, fruits, seeds, nuts, high fiber), IBS (no high acid foods, no grease, no spicy foods) Dairy Free (no milk and just a little goat cheese is ok). I am often dealing with pain and nausea, but when the drugs kick in I'm hungry but really don't know what to eat.

Just thought someone might be able to suggest ideas. I have gluten-free crackers, pretzels, rice noodle soup, sticky rice, gluten-free bagels and salmon.

I would welcome ideas.

I have my own long list of off-limits foods. Focus on what you CAN have. Sit down and write down everything that you CAN have. Every spice, veg, herb, fat, meat, fruit etc. Don't get caught up in it, just write them down, even things that you don't normally eat or aren't necessarily your favorite foods, as long as your body is OK with them and they don't make you gag :lol: Post it on the fridge, keep an ongoing one on your computer, but get it out of your head and in print. Then look at them and say "What can I make with these?". Build a meal. Start with a protein, How will you cook it? Roast, broil, saute? What will you season it with? Pick a veg or two and do the same, add a carb. You may end up with very simple meals at first but in time, you'll get creative and find new and tasty combinations. In time you'll be comfortable adapting recipes and spotting products and recipes that'll work. But keep focused on whole foods and add things to the list as you discover them.

Nor-TX Enthusiast

All sound like good ideas. I eat fairly simply. For lunch today I had cooked some quinoa shell pasta, mixed in a little goat cheese, margarine and salt and pepper. It was like comfort food. I also found some wonderful Udi bagels at Whole Foods and toast 1/2 for lunch or dinner... very yummy.

My husband has his own issues around food choices so it isn't a question of having to cook a family dinner... we sort of do our own thing.

Thanks for the responses.

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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