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Iga Results Negative So Gp Tells Me That I'M Not Allergic To Gluten!

8Curvey8

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8Curvey8 Rookie
8Curvey8
Posted

Please help. I've had a lot of health problems lately that I thought are getting glutened. I was diagnosed with gluten , dairy, and egg allergy 5 years ago through my natureopath and went off gluten and everything else. I immediately got better and decided not to go back on gluten to get further testing for Celiac.

Now I am getting sick a lot and doing testing with my GP to figure out if something serious is happening. He did an IgA test, my first one ever, and got the results today. I've been off gluten for 5 years now. The results were 5 <20. I asked if being off gluten affects the results and he said no and told me I'm not allergic to gluten and can "take that out of my mind". Then I read the results of the test and it says "False negative results may occur with IgA deficiency or gluten-restricted diet".

Does anyone have some in sight on that?

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txplowgirl Enthusiast
txplowgirl
Posted

Please help. I've had a lot of health problems lately that I thought are getting glutened. I was diagnosed with gluten , dairy, and egg allergy 5 years ago through my natureopath and went off gluten and everything else. I immediately got better and decided not to go back on gluten to get further testing for Celiac.

Now I am getting sick a lot and doing testing with my GP to figure out if something serious is happening. He did an IgA test, my first one ever, and got the results today. I've been off gluten for 5 years now. The results were 5 <20. I asked if being off gluten affects the results and he said no and told me I'm not allergic to gluten and can "take that out of my mind". Then I read the results of the test and it says "False negative results may occur with IgA deficiency or gluten-restricted diet".

Does anyone have some in sight on that?

First off hi there.

You have to be consuming gluten for at least 6 weeks, ie: at least the equivelent of 3 pieces of bread per day for at least that long. Then when you are tested from what I understand there is about a 50% chance of a false negative.

If you have been off gluten then you would defintly get a negative result. Sounds like you are at least gluten intolerant. In my opinion I would stay gluten free or find you another DR that believes in Celiac and get retested. That dr needs to be reeducated.

Good luck with whatever your decision.

Vicky

mushroom Proficient
mushroom
Posted

Sorry, but your doctor is ignorant about celiac. You need a new one who has a clue or two!! Ask your local celiac society for a recommendation, or post in the doctors thread "Looking for a doctor in (however far a geographic area you are willing to travel)" and you might get some recommendations from members here. There is also a thread there entitled "Recommend a doctor in your area" which might have someone near you.

tarnalberry Community Regular
tarnalberry
Posted

I really don't get how doctors can be this dumb. How can an antibody test have a chance at being positive if you're never exposed to the antigen?

If it makes you feel bad, why do it?

elle's mom Contributor
elle's mom
Posted

Please help. I've had a lot of health problems lately that I thought are getting glutened. I was diagnosed with gluten , dairy, and egg allergy 5 years ago through my natureopath and went off gluten and everything else. I immediately got better and decided not to go back on gluten to get further testing for Celiac.

Now I am getting sick a lot and doing testing with my GP to figure out if something serious is happening. He did an IgA test, my first one ever, and got the results today. I've been off gluten for 5 years now. The results were 5 <20. I asked if being off gluten affects the results and he said no and told me I'm not allergic to gluten and can "take that out of my mind". Then I read the results of the test and it says "False negative results may occur with IgA deficiency or gluten-restricted diet".

Does anyone have some in sight on that?

HOW SAD that a doctor would be this ignorant...........!!!!!!!!!!!!!!!

Reba32 Rookie
Reba32
Posted

One - Celiac disease is NOT an allergy.

Two - If you have been gluten free for so many years, Celiac disease *will not* show up on a blood test!

frieze Community Regular
frieze
Posted

...three...if you havent had any gluten in 5 yrs why would the antibody be present....me thinks the doc needs a little education...

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CarbQueen Newbie
CarbQueen
Posted

Please help. I've had a lot of health problems lately that I thought are getting glutened. I was diagnosed with gluten , dairy, and egg allergy 5 years ago through my natureopath and went off gluten and everything else. I immediately got better and decided not to go back on gluten to get further testing for Celiac.

Now I am getting sick a lot and doing testing with my GP to figure out if something serious is happening. He did an IgA test, my first one ever, and got the results today. I've been off gluten for 5 years now. The results were 5 <20. I asked if being off gluten affects the results and he said no and told me I'm not allergic to gluten and can "take that out of my mind". Then I read the results of the test and it says "False negative results may occur with IgA deficiency or gluten-restricted diet".

Does anyone have some in sight on that?

I shopped for a doctor who would listen to my concerns and understood celiac disease/gluten intolerance.

Now, I plan to return to a specialist I met 17 years ago after my thyroid stopped functioning.

I self diagnosed my condition of food sensitivities, then I went to a Naturopath to confirm my diagnoses. I returned to my GP to order blood tests, then requested a consult with an allergist.

The allergist asked my opinion and I said I felt I have multiple allergies with an intolerance to gluten/carbs. 5 years prior to that meeting I took the initiative to start an elimination diet. I estimated at least 40 food, chemical, and environmental allergies.

Last summer I discovered that I was developing allergies to fresh fruit and vegetables, and nuts. Until that time it wasn't an issue. That prompted me to seek answers. After much research I discovered that I am reacting the protein in several items.

I told the allergist that I suspect I am gluten intolerant because I break out in a rash similar to dermatitis herpetiformis and the halitosis returns as well as the indigestion which are the result of H. pylori. He said those are definite signs of gluten intolerance.

Last fall after 6 month gluten free, I decided to return to gluten. The result was severe arthritis and muscle pain. I met with GP for referral to doctor of internal medicine. He ordered blood tests which indicate arthritis and mixed connective disease.

Once I resumed gluten free diet the symptoms subsided.

My blood tests show 9.4 ELISA Units. Negative. That's because I've been gluten free 4 months prior to test. The allergist and I agreed that the tests would probably come back negative because of being gluten free for a lengthy period.

Blood tests indicate that there is no arthritis present.

He said I could consume gluten and test again, but I run the risk of symptoms similar to last fall. I am reluctant. He said I could just remain gluten free if I feel that my health is better without it.

I reacted to 30 allergens during the skin test. 20 of the items I was unaware of, and I have added those to my list of 40 for a grand total of 60 allergens.

The allergist gave my condition the name of Oral Allergy Syndrome.

The doctor of internal medicine is quite please my condition has improved and feels my prognosis is very good. I anticipate a full recovery.

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      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
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