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New Celiac In Need Of Advice!


GFLindsey

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GFLindsey Explorer

Hello fellow gluten-free friends!

I was officially diagnosed with Celiac disease on 2.5.10 so I am a newbie to this. I am still in need of an overhaul in my pantry and refridgerator to get rid of all my gluten-laden foods and was wondering if I also need to replace dishes, pots, pans, toaster, etc.?

Also, since I am so new, does anyone have any advice for starting out? I am sure there are things that I cannot even imagine which had gluten in them. Any advice/support would be greatly appreciated. I am so happy to have an online community for help during this new adventure.

Wishing good health to all!


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psawyer Proficient

Hello, Lindsey, and welcome to the board.

Try these links for useful information:

Unsafe ingredients.

Safe ingredients.

Open Original Shared Link If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc."

Always read the label.

luvthelake21 Rookie

Also wanted to say welcome to the forum and you do need to get rid off all old cookware(teflone), get a new toaster, sifter, strainer and watch out for hair products espically at salons.

Squirrelflight Rookie

Also wanted to say welcome to the forum and you do need to get rid off all old cookware(teflone), get a new toaster, sifter, strainer and watch out for hair products espically at salons.

Just to specify.. as far as I know if it's metal or glass you can scrub it well but if it's Teflon coated, wood or plastic you should replace it. Welcome!

AmyT Newbie

I am new too, and there are so many helpful people here! Here is one of the good tips that I learned here. Don't go overboard on all the gluten free processed products out there. It can be very overwhelming. Start out with a few but stick to whole foods: veggies, fruits, chicken, fish, beans, legumes etc. They are much easier to digest and you know you won't get any gluten that way!!

Good luck you will feel better soon!

GFLindsey Explorer

Thank you all for taking the time to help.. Much appreciated!

gena Newbie

Hello fellow gluten-free friends!

I was officially diagnosed with Celiac disease on 2.5.10 so I am a newbie to this. I am still in need of an overhaul in my pantry and refridgerator to get rid of all my gluten-laden foods and was wondering if I also need to replace dishes, pots, pans, toaster, etc.?

Also, since I am so new, does anyone have any advice for starting out? I am sure there are things that I cannot even imagine which had gluten in them. Any advice/support would be greatly appreciated. I am so happy to have an online community for help during this new adventure.

Wishing good health to all!

I would suggest not eating out to start with. Yes there are places that have gluten free menu's, however, untill you are sure about the preparation i would avoid them in general. I work at McDonalds and while yes they do make anything you want without a bun they do not change their gloves or the tongs that have touched bread. I also found that with my busy schedule its easier for me to buy larger amounts of mixes and when i have the time cook 4 or 5 meals worth of food and freeze it for later. You cant go wrong with fruits, meats and veggies but there are more and more health food stores showing up that have great gluten free sections. I found one near me that has donuts, chicken nuggets and lots of other goodies so i would get online and see what stores near you have.


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Bobbijo6681 Apprentice

Hello fellow gluten-free friends!

I was officially diagnosed with Celiac disease on 2.5.10 so I am a newbie to this. I am still in need of an overhaul in my pantry and refridgerator to get rid of all my gluten-laden foods and was wondering if I also need to replace dishes, pots, pans, toaster, etc.?

Also, since I am so new, does anyone have any advice for starting out? I am sure there are things that I cannot even imagine which had gluten in them. Any advice/support would be greatly appreciated. I am so happy to have an online community for help during this new adventure.

Wishing good health to all!

Lindsey,

Glad to see you found this great website, and that you are on the path to being healthy again. I just went to see my GI for a follow up yesterday and he cautioned that you must even watch things like Ketchup and salad dressings for the possibility of Gluten. I know that probably isn't what you wanted to hear, but I would recommend READING Every Label for absolutely everything. As a "newbie" I understand where you are at and feel your pain, but I can already tell a difference in how I am feeling so in the end I think it will be worth all of this.

Good Luck!!!

StacyA Enthusiast

Hi Peter. That list for companies that disclose gluten is 3 years old. Do you know of a good, updated one?

- Stacy

psawyer Proficient

The list may now be incomplete, but none of those companies have discontinued their label policy.

In the time I have been involved, only one company has changed from "trusted" labels to a crap shoot, and that is Hershey. :angry:

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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