Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Buying Whole Grains


shepgs

Recommended Posts

shepgs Apprentice

Where do you buy your whole grains? I've ordered sorghum from Twin Valley Mills. I'd like to get quinoa, millet, and teff. I could probably start out with small packages to try. If I like them, I'd rather order in bulk.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



freeatlast Collaborator

Where do you buy your whole grains? I've ordered sorghum from Twin Valley Mills. I'd like to get quinoa, millet, and teff. I could probably start out with small packages to try. If I like them, I'd rather order in bulk.

Thanks!

I get sorghum from Whole Foods or Wal-mart. I don't buy quinoa anymore, but they have it and teff at Whole Foods as well. Would buy millet if they ever had it, but have never seen it there. Maybe someone will give us an answer :)

jackay Enthusiast

I, too, need help in finding gluten free grains. I'm not interested in any of the flours at this time, just the grains to cook up and eat like cereal. Rice is out for the time being so I am looking for buckwheat, quinoa, teff and millet.

I checked on Shiloh Farms brand at the Gluten Free Mall and see that they are processed on the same equipment as wheat. Has anyone had good luck with that brand?

I found millet in bulk at a food coop and Bob's Red Mill quinoa at the local grocery store. I'm not comfortable buying bulk, but did. The local grocery store doesn't have a source to buy millet. I'll order online but want to make sure there is no cc in the products I order.

As far as Bob's Red Mill goes, has anyone had cc issues with their grains?

I'm thinking a trip to the Twin Cities is in order soon so I can check out Whole Foods and Trader Joe's for some grains. Do they carry their own brands? Has there been any cc issues with them?

I appreciate any feedback I get on this.

Jackay

dilettantesteph Collaborator

I get Teff from The Teff Company. www.teffco.com It is dedicated Teff only and they clean the harvesting equipment before use.

Millet I get from Eden Organics. Some people have reported problems with this millet, so I wash it before using it.

Quinoa I get from Ancient Harvest www.quinoa.net. It is all done in quinoa only facilities.

Some people seem to have problems with the little boxes, but the 25# bags are O.K. even for very sensitive celiacs, or you could wash the stuff in the little boxes.

Buckwheat I get from Birkett Mills Open Original Shared Link

Sensitive celiacs might have to wash that too.

I would love to find some amaranth.

I can't use Bob's since I have problems with oats.

jackay Enthusiast

I get Teff from The Teff Company. www.teffco.com It is dedicated Teff only and they clean the harvesting equipment before use.

Millet I get from Eden Organics. Some people have reported problems with this millet, so I wash it before using it.

Quinoa I get from Ancient Harvest www.quinoa.net. It is all done in quinoa only facilities.

Some people seem to have problems with the little boxes, but the 25# bags are O.K. even for very sensitive celiacs, or you could wash the stuff in the little boxes.

Buckwheat I get from Birkett Mills Open Original Shared Link

Sensitive celiacs might have to wash that too.

I would love to find some amaranth.

I can't use Bob's since I have problems with oats.

Thanks for the information. I found Arrowhead Mills millet and amaranth in a neighboring town. I haven't heard good things about that company and most likely will be returning the products unopened. They don't indicate that they are gluten free on their packages. I emailed them yesterday and haven't received a response yet.

I find it interesting that the stores that stock these products do so to provide gluten free choices for their customers. I hope a lot of customers are complaining. I am!!!

Would the problem with the little boxes be the glue that is used? I found a small box of Ancient Harvest red quinoa. It is in a plastic bag within the box.

I did buy some Bob's Red Mill oats but haven't tried that yet to see if I am sensitive to oats. Need to heal a bit more before I risk it.

I'll plan a trip to a Whole Foods Market two hours away or get online and order some grains soon. I just don't seem to get enough calories if I go grain free. It seems like I can handle millet and quinoa so I'm guessing teff and amaranth will probably be O.K.

Another issue is that I bought a large container of Omega Nutrition Organic Coconut Oil and that company also processes flax, which I am severely intolerant to. I haven't heard from their customer service rep yet if there could be flax getting into the coconut oil. My guess is that it is.

I also bought some Omega3 Chia and am waiting to hear if that could possibly be cross contaminated.

Do you have luck washing grains? What do you use to clean them?

dilettantesteph Collaborator

I wash my grains with dish soap. I find that it works well. I put the grains in a colander and swish them around in the soapy water in the sink where I do my dishes and rinse a few times, and then I do a final thorough rinse. Then dry and grind. It is a lot of trouble to go to, but I am very sensitive to trace gluten and it is what I have to do to be able to include grains in my diet. I have a hard enough time getting enough calories with the grains. especially when I exercise. I couldn't imagine doing it without.

newgfcali Rookie

Where do you buy your whole grains? I've ordered sorghum from Twin Valley Mills. I'd like to get quinoa, millet, and teff. I could probably start out with small packages to try. If I like them, I'd rather order in bulk.

Thanks!

We have a wonderful health food store nearby who also sells online. Open Original Shared Link

Click "Buy Online" button, then choose category "Gluten Free".

They have a TON of gluten-free grains and flours you can buy over the Internet. I go into this store and I'm like a kid in a candy shop -- soooo many choices!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

You might check out Open Original Shared Link. They have both the grains and flours. Many are from dedicated gluten-free facilities.

jackay Enthusiast

I wash my grains with dish soap. I find that it works well. I put the grains in a colander and swish them around in the soapy water in the sink where I do my dishes and rinse a few times, and then I do a final thorough rinse. Then dry and grind. It is a lot of trouble to go to, but I am very sensitive to trace gluten and it is what I have to do to be able to include grains in my diet. I have a hard enough time getting enough calories with the grains. especially when I exercise. I couldn't imagine doing it without.

I've been using Basic H to wash my grains. I contacted the company and was told it doesn't contain gluten. I hope I was given the right information.

dilettantesteph Collaborator

Hope so. We need to rinse very carefully. Maybe if the grains don't cause distress we are better off not washing because the soap might cause problems. What a dilemma.

shepgs Apprentice

You might check out Open Original Shared Link. They have both the grains and flours. Many are from dedicated gluten-free facilities.

I happened to contact them. They do just repackage their products, which they get from other suppliers. I had to rule them out because I also have to consider nut allergies in our home. They could not give me any info regarding that. Just FYI for those dealing with nut alleries, also. That complicates things, for sure, like I can't buy Bob's Red Mill items that is mentioned so often.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.