Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Humming In Ears And Then Charlie Horses At Night


daniknik

Recommended Posts

daniknik Apprentice

Hi folks,

I've been trying to eat gluten free for several months now. I was only recently diagnosed with Celiac and I am also intolerant to casein, egg, soy, yeast and nightshades.

Yesterday morning I developed a humming noise in both of my ears that is still humming today and will not resolve even though I feel as if my sinuses are clear and I can "pop" my ears without any difficulty. This noise makes it harder for me to hear the world around me and is distressing since I work as a chorus director and my hearing is very important. Has anyone else experienced suddent onset ear humming without any known injury or cause? I haven't been exposed to any extremely loud noises or been sick recently so I am very confused.

Also, I was woken up with a severe Charlie Horse last night in my calf. I haven't had these for a couple of months and they're very painful, especially when they wake you up from an otherwise good night's sleep.

Any help/suggestions would be greatly appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Can't say I've heard continuous humming, but on rare occasions I'll get a trilling/rapid thumping sound. Occasional ringing if I choose my foods poorly.

Leg pains, cramping, stiffness, numbness, etc are very common, especially during the healing stages. Often it is due to nutrient deficiencies. I found magnesium to completely resolve such issues. Some other things to consider include a co-enzyme B-complex, a separate methyl-type vitamin B12 sublingual tablet, vitamin D3, potassium, folic acid, vitamin K, zinc, iron, calcium, and omega-3s. A multivitamin/mineral may supply you with many of these, though the amounts may not be sufficient, depending on your particular needs.

These deficiencies are often because the digestive system is yet still not functioning adequately, and therefor cannot absorb nutrients properly. However, a well-rounded and widely varied diet usually goes most of the way towards getting all the nutrients your body requires. But the concentrated nutrients which supplements provide are often very helpful.

breavenewworld Apprentice

i agree with riceguy about supplementation during healing!

also here's an article about some symptoms that might be related to a yeast overgrowth, seems somewhat common with celiacs

Open Original Shared Link

daniknik Apprentice

i agree with riceguy about supplementation during healing!

also here's an article about some symptoms that might be related to a yeast overgrowth, seems somewhat common with celiacs

Open Original Shared Link

Thank you for the link. It looks like I could potentially be suffering from Candida overgrowth in addition to Celiac. I guess the good thing is that I already love eating the great majority of the foods on the list of "okay" foods, save for the nightshades. That's pretty amazing. And I've been wondering if additional sugar was messing me up too. I suppose the only thing that will really make is sad is missing chocolate since it is one of my first loves.

My ears are still humming as I write, but I'm not experiencing as much of the dizzyness as I did this morning and I ate a banana today to try and get over the leg cramps. I do take a multi-vitamin every day, but I guess it's not enough. The other problem is that I don't know how to get off all of my daily meds and I don't want to take them anymore if I can possibly do without. I have been able to stop taking my IBS medication which is awesome.

Again, thanks for the support! I really need as much as I can get!

Reba32 Rookie

eat dark chocolate, with the lowest sugar content possible. ;) It's better for you anyhow, the higher the cocoa content.

Sugar is evil. Avoid it whenever possible. Like always.

Once you have tinnitus (ringing in the ears) there's not much to do about it but live with it. It can be caused by all sorts of things, not just noise trauma. My ears have been ringing since I was a kid. it got worse in November last year when I was in the middle of an 8 week gluten challenge. I hadn't noticed over the previous months how much the ringing had got quieter, then all of a sudden it was screaming. I'm hoping it will lessen again after a few months.

The leg cramps are usually electrolyte and mineral imbalance. Make sure you're getting adequate salt intake (max. 1 tsp per day), and other minerals. I usually eat half an avocado every day (more potassium than a banana!) and take a magnesium supplement as well as mulit-vitimin, plus extra D & B & C.

scissorhappygirl Newbie

You need iron. Lots and lots of iron. I only had Charlie horses when I was completely anemic. There wasn't enough magnesium and potassium in the world to make them stop. Get your blood checked. I get iron infusions and they are wonderful.

ravenwoodglass Mentor

The other problem is that I don't know how to get off all of my daily meds and I don't want to take them anymore if I can possibly do without. I have been able to stop taking my IBS medication which is awesome.

Again, thanks for the support! I really need as much as I can get!

Talk to your doctor about getting off your meds. There are some that you can just stop taking but there are others that you need to wean off of. The doc will give you the best advice on stopping them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I had muscle cramping in my calves and feet almost every night--being gluten-free had no effect on it whatsoever for me. I got relief by taking calcium and getting regular exercise. I do Pilates, but I think even brisk walking would help.

daniknik Apprentice

I had muscle cramping in my calves and feet almost every night--being gluten-free had no effect on it whatsoever for me. I got relief by taking calcium and getting regular exercise. I do Pilates, but I think even brisk walking would help.

Thanks for all of the suggestions! They're super-helpful. I'm trying to figure out which supplements I should be taking and what not. I did visit the doctor this week and she told me to consider taking a Calcium Citrate supplement for the feet and leg cramps. She didn't have much to say about the humming in my ears other than to take a Benadryl because it was probably caused by pressure on my ears from liquid in my sinus passages. Luckily for me the humming has gone away! (Halleluia!)

I also talked to the doctor about getting off some of the meds. She cut my Wellbutrin dosage in half to 150mg per day and told me to start substituting Ranitidine for my Prilosec. The last time I tried to do that with the Prilosec I wasn't successful (apparently, Prilosec is VERY addicting) so I've been cutting the capsules in half and I seem to be okay. I figured I'd try this for a couple of weeks and then perhaps go to once a day instead of twice per day for a few weeks and then see if I can be off of them completely.

Despite this, I'm frustrated with my doc. Although she is non-Celiac gluten intolerant herself, she doesn't seem to have many suggestions on how to help me get to the other side of feeling crappy other than referring me to her naturopath friend and telling me that since my anti-gliadin, anti-casein, and tissuetransglutaminase levels "aren't very high" that it's not that serious. Well...those labs were done after being on the gluten free diet for three months and they're still high enough to be in the abnormal range! Then she told me that she didn't think that being on a gluten-free diet would make much of a difference in my blood and stool testing anyways. She also told me that I'll go back to eating (gluten free) bread again and that I'll have to decide how much milk and eggs I will include in that bread even though I'm casein and egg intolerant too. Boo! She did say that I will need to stay away from gluten permanently. At least we agree on that one. Finally, she admitted that I looked better than I've looked in years and told me that she learned some new things from me during my appointment and she'll have to do more research on stool testing and whatnot and to come back in six weeks to check in.

I feel like I need to find a doctor who's more up-to-date on food intolerances but I have BCBS HMO Illinois and I don't know how to find someone who's in the HMO and not PPO network. Guess I'll need to do some more searching.

Thanks again everyone!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.