In the process of being diagnosed...

[rueyn 0]

I tested negative (blood and gene) for Celiac, but I definitely have gluten intolerance. I've been gluten free for a year now and am doing 100% better. I've been seeing and hearing about gluten enzymes, and I know they can't be used in the case of true Celiac patients, but has anyone ever used them as with non-Celiac gluten intolerance? I don't get stomach aches when I eat gluten; my symptoms are things like brain fog, the need to sleep, et cetera. I'm not convinced an enzyme would make a difference with those kind of symptoms...unless the enzymes got rid of all the gluten before it could be absorbed or something like that?

Any personal experiences would be appreciated.

[Lynayah 8]

I tested negative (blood and gene) for Celiac, but I definitely have gluten intolerance. I've been gluten free for a year now and am doing 100% better. I've been seeing and hearing about gluten enzymes, and I know they can't be used in the case of true Celiac patients, but has anyone ever used them as with non-Celiac gluten intolerance? I don't get stomach aches when I eat gluten; my symptoms are things like brain fog, the need to sleep, et cetera. I'm not convinced an enzyme would make a difference with those kind of symptoms...unless the enzymes got rid of all the gluten before it could be absorbed or something like that?

Any personal experiences would be appreciated.

I found this article . . . is this the enzyme you are talking about?

http://www.sciencedaily.com/releases/2006/06/060630083712.htm

[rueyn 0]

I found this article . . . is this the enzyme you are talking about?

http://www.sciencedaily.com/releases/2006/06/060630083712.htm

Yes, I'm specifically talking about GlutenEase and/or Peptizyde

[RiceGuy 55]

I actually tried one such product (not the ones specifically mentioned). Ironically, even though it claims to be gluten-free, it apparently has an enzyme derived from barley, and I had a gluten reaction to it. Hopefully the ones you're looking at don't have this.

[Lynayah 8]

I actually tried one such product (not the ones specifically mentioned). Ironically, even though it claims to be gluten-free, it apparently has an enzyme derived from barley, and I had a gluten reaction to it. Hopefully the ones you're looking at don't have this.

Me, too. We had a few different digestive enzymes in the house -- all of them appeared to be gluten-free, but when I called the various companies and spoke with them, they were not gluten-free.

I have used Digest Gold and GlutenEase with no problem. My jury is still out as to whether or not GlutenEase helps, but I think it very well may. At least it can't hurt! I use it to help combat cross-contamination only and not as something that might allow me to eat gluten -- that would be like death waiting to happen.

[rueyn 0]

Me, too. We had a few different digestive enzymes in the house -- all of them appeared to be gluten-free, but when I called the various companies and spoke with them, they were not gluten-free.

I have used Digest Gold and GlutenEase with no problem. My jury is still out as to whether or not GlutenEase helps, but I think it very well may. At least it can't hurt! I use it to help combat cross-contamination only and not as something that might allow me to eat gluten -- that would be like death waiting to happen.

Do you know if it's helped in a specific case of cross-contamination? If so, do you normally just get stomachache-type symptoms with CC or do you also get neurological? Did it just "ease" your symptoms, or did it keep you from getting sick all together?

[Lynayah 8]

Do you know if it's helped in a specific case of cross-contamination? If so, do you normally just get stomachache-type symptoms with CC or do you also get neurological? Did it just "ease" your symptoms, or did it keep you from getting sick all together?

Ease. I get both neurological as well as stomach reactions.

I get numbness like crazy -- hands in particular, but also legs if it is really bad and now, shoulders and back of neck.

I also get stabbing pains in my hips and kidney area along with the usual bloating, body aches, etc.

Sometimes the pain is constant; other times it comes in waves -- like a few minutes on; a few minutes off -- like labor pains.

The pain might be best be described as having an abcessed tooth, but in a muscle or on my skin (yes, my skin hurts) instead of a tooth.

Sleeping can be particularly painful. Hips - ouch!

I'm still new to the product. Time will tell if my assumption that it helps is correct. Right now, it seems as though when I know I've been cc'd (bowel leakage is usually the first sign), it helps ease the symptoms if I take it right away.

The problem is, I just don't know for sure. I'm still new to my diagnosis. Sometimes the symptoms are intense, other times they are not-so-intense, but the not-so-intense reactions could also be from my being sensitive to other foods.

There is also the issue of my body absorbing enough Vitamin D.

Nothing is easy!

That said, I do have to say that when I take GlutenEase upon the first signs of being glutened, I seem to not get as intensely ill as if I had not taken it. It is not a cure (how I wish it were), but rather a cushion that helps me though the whole thing. My body aches are not as intense (even though I still hurt), and loss of bowel control not as intense. I also think that my bloating may subside a little sooner.

As I said, my jury is still out. In the meantime, it is comforting to carry GlutenEase with me, along with Digest Gold.

Gawd, how I wish they weren't so darn expensive.

[rueyn 0]

Ease. I get both neurological as well as stomach reactions.

I get numbness like crazy -- hands in particular, but also legs if it is really bad and now, shoulders and back of neck.

I also get stabbing pains in my hips and kidney area along with the usual bloating, body aches, etc.

Sometimes the pain is constant; other times it comes in waves -- like a few minutes on; a few minutes off -- like labor pains.

The pain might be best be described as having an abcessed tooth, but in a muscle or on my skin (yes, my skin hurts) instead of a tooth.

Sleeping can be particularly painful. Hips - ouch!

I'm still new to the product. Time will tell if my assumption that it helps is correct. Right now, it seems as though when I know I've been cc'd (bowel leakage is usually the first sign), it helps ease the symptoms if I take it right away.

The problem is, I just don't know for sure. I'm still new to my diagnosis. Sometimes the symptoms are intense, other times they are not-so-intense, but the not-so-intense reactions could also be from my being sensitive to other foods.

There is also the issue of my body absorbing enough Vitamin D.

Nothing is easy!

That said, I do have to say that when I take GlutenEase upon the first signs of being glutened, I seem to not get as intensely ill as if I had not taken it. It is not a cure (how I wish it were), but rather a cushion that helps me though the whole thing. My body aches are not as intense (even though I still hurt), and loss of bowel control not as intense. I also think that my bloating may subside a little sooner.

As I said, my jury is still out. In the meantime, it is comforting to carry GlutenEase with me, along with Digest Gold.

Gawd, how I wish they weren't so darn expensive.

Thanks so much for taking the time to let me know how it works for you! It sounds like you and I have similar reactions to gluten, and I'd been thinking since I "only" have gluten intolerance I could use it to eat gluten once in awhile, to help side-step the intolerance, but it doesn't sound like it's worth it (I was thinking of it as Lactaid...doesn't sound like that's exactly how it works).

When I eat gluten I am sick for two weeks - body aches, brain fog, bloating, et cetera. Probably no magic pill to help that =)

[Lynayah 8]

Thanks so much for taking the time to let me know how it works for you! It sounds like you and I have similar reactions to gluten, and I'd been thinking since I "only" have gluten intolerance I could use it to eat gluten once in awhile, to help side-step the intolerance, but it doesn't sound like it's worth it (I was thinking of it as Lactaid...doesn't sound like that's exactly how it works).

When I eat gluten I am sick for two weeks - body aches, brain fog, bloating, et cetera. Probably no magic pill to help that =)

You are right. From what I have been told, anyone with gluten-intolerance should absolutely not use it to side-step gluten.