Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Info On T3 For Hypothyroidism


kimis

Recommended Posts

kimis Collaborator

I just got a scrip for Cytomel and I don't know if I should spring for the brand. I don't mind spending extra if the brand is really better. Also, if you have any inspirational stories about how much better you felt after adding t3....I would love to hear them!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

I just got a scrip for Cytomel and I don't know if I should spring for the brand. I don't mind spending extra if the brand is really better. Also, if you have any inspirational stories about how much better you felt after adding t3....I would love to hear them!!!!!!!

I've been taking 5 mcg of cytomel twice a day since around 2007 in addition to my levothyroxine(I'm currently taking 112 mcg/day). I couldn't believe the difference it made for me. There is a generic form made by paddock labs. I checked when my insurance wanted me to switch. I believe both brands are gluten free and I take the generic without any problems. Of course I have not checked with them in awhile but all you have to do is call the company to reverify. My endocrinologist put me on it because, despite adequate t4 supplementation, my free T3 was still on the low side. Since adding it I tend to feel better with a slightly lower TSH and slightly elevated free T3. However, it is a very individual thing and your doctor and you need to find your balance

Gemini Experienced

I've been taking 5 mcg of cytomel twice a day since around 2007 in addition to my levothyroxine(I'm currently taking 112 mcg/day). I couldn't believe the difference it made for me. There is a generic form made by paddock labs. I checked when my insurance wanted me to switch. I believe both brands are gluten free and I take the generic without any problems. Of course I have not checked with them in awhile but all you have to do is call the company to reverify. My endocrinologist put me on it because, despite adequate t4 supplementation, my free T3 was still on the low side. Since adding it I tend to feel better with a slightly lower TSH and slightly elevated free T3. However, it is a very individual thing and your doctor and you need to find your balance

I couldn't agree with this post more! Many people need to take T3, along with T4 and I am one of them. Like yourself, I try to keep my TSH suppressed and the T3/T4 in the upper ranges, otherwise I feel like I'm in slow motion.

Generic brands work just as well for many people. It's the same med as the brand name. You just have to make sure it's gluten-free but, generally, one doesn't work better than another. I have never used Cytomel but have used generics in the past with great success.

kimis Collaborator

I have been looking for a Dr. to prescribe t3 to me for a year. When I finally gave up one feel right in my lap. She seems great and she spent alot of time with me. I was so happy when I left her office...I felt like I was finally going to feel like me again. I filled my script right away, but something is holding me back from starting it. I think I am afraid to be let down. The possibility of feeling better is wonderful....but what if it dosen't work? Or what if I start getting heart palps and I just freak out? Why am I being such a baby about this...I want to smack myself! It's only 5mcg I will be adding to 25mcg of synthroid.....WTF is my problem?

Roda Rising Star

I have been looking for a Dr. to prescribe t3 to me for a year. When I finally gave up one feel right in my lap. She seems great and she spent alot of time with me. I was so happy when I left her office...I felt like I was finally going to feel like me again. I filled my script right away, but something is holding me back from starting it. I think I am afraid to be let down. The possibility of feeling better is wonderful....but what if it dosen't work? Or what if I start getting heart palps and I just freak out? Why am I being such a baby about this...I want to smack myself! It's only 5mcg I will be adding to 25mcg of synthroid.....WTF is my problem?

T3 has a relative short half life. My endocrinologist told me that the dose divided would keep the levels in the blood more stable. It is very fast acting, so if you have symptoms of overmedication, the dose can be tweeked very easily and quickly unlike the t4 meds which can take anywhere from 4 - 6 weeks to level.

  • 2 weeks later...
kimis Collaborator

Has anyone lost weight after adding t3?

georgie Enthusiast

I love my T3. I take 20mcg 2 x day and feel the best I have felt in ages. I started slowly with 10mcg and now just take 20mcg. I have started to lose weight that didn't budge with Armour or T4 meds. My eyes look like I have had eye lift surgery :D Years younger :) I noticed my ankles were less puffy as well yesterday... Love it , love it, love it !!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kimis Collaborator

I love my T3. I take 20mcg 2 x day and feel the best I have felt in ages. I started slowly with 10mcg and now just take 20mcg. I have started to lose weight that didn't budge with Armour or T4 meds. My eyes look like I have had eye lift surgery :D Years younger :) I noticed my ankles were less puffy as well yesterday... Love it , love it, love it !!!!

Do you take a total of 40mcg or 20mcg per day? How far apart do you space them? When it's almost time for your next dose do you feel like you need it? How long before you noticed the weight loss? How much levo do you take and is it brand? Sorry I have so many questions. How long did you try armour for? LASTLY...Where do you like your TSH to be?

Thanks

mamaw Community Regular

I'm moving to the eastern part of the state! I was on cytomel for about ten months & never felt so well in my whole life. The I went into a thyroid storm & they would not give it to me again. I now have no thyroid function as I had no choice but to swallow the ra . I was in intensive care for two weeks - almost didn't make it. Now I go into A-Fib every so often for no rhyme or reason so no cytomel.

The heart doc thinks my thyroid needs a new med besides synthroid but thyroid doc will not budge. I'm on my second thyroid doc...no one will listen.

I lost weight & went back to my normal weight. Now, I'm 20# over weight & I can't drop it.

georgie Enthusiast

Yes - a total of 40mcg. I started at 10 then 20 then 30 over weeks ... 40 seems to be the best. I have a great thyroid Dr who I can discuss all this with. I take one in the morning and can feel when it is time for the next - usually midday or early afternoon. I haven't lost 'much' weight but just look different. Not as puffy / eyes bright/ hair glossy etc. I have been gaining weight steadily for 3 years on Armour and nothing could slow it down. The T3 has stopped any weight gain and seems to be reversing it slowly. I have taken 100mcg T4 ,then was up to 4 grains of Armour at one stage... . Nothing seemed to work until I got T3 meds and lowered the T4 meds.

We don't look at my TSH. I have Pituitary low Thyroid so the TSH is meaningless. My levels of Free T4 and Free T3 are midrange to high midrange. Could be a touch higher but we are going slowly with this last change of meds.

Do you take a total of 40mcg or 20mcg per day? How far apart do you space them? When it's almost time for your next dose do you feel like you need it? How long before you noticed the weight loss? How much levo do you take and is it brand? Sorry I have so many questions. How long did you try armour for? LASTLY...Where do you like your TSH to be?

Thanks

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.