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Trauma Trigger

DonaldandAlanda Evans

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DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

So I just had a quick question about how Celiac Disease is triggered. I haven't felt well since I had mono 11 years ago. I never really had digestion issues, just fatigue and some other weird stuff. I was in a motorcycle accident 6 months ago and that triggered the digestion issues and weight loss.

My question is can there be two triggers? Meaning can it get worse from another trauma? I have really bad anxiety about my health and when I was diagnosed a few weeks ago I was very relieved.......but now I'm back to worrying again!

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psawyer Proficient
psawyer
Posted

I believe this to be true, although I cannot cite any scientific evidence to support it. I had low level symptoms for decades which then suddenly became severe.

mommida Enthusiast
mommida
Posted

I believe the second "trigger" can bring on the symptoms after years of the "unsymptomatic" suffering. i.e. the anemia, lethargy, weight changes to full out "D" after every meal.

I was always anemic for every blood test and did not grow to the expected height (genetic tested) but after giving birth I was sick after every (gluten) meal.

rueyn Apprentice
rueyn
Posted

I believe the second "trigger" can bring on the symptoms after years of the "unsymptomatic" suffering. i.e. the anemia, lethargy, weight changes to full out "D" after every meal.

I was always anemic for every blood test and did not grow to the expected height (genetic tested) but after giving birth I was sick after every (gluten) meal.

Same for me. Anemia during pregnancy, then hypothyroid and severe gluten intolerance after I gave birth.

lynnelise Apprentice
lynnelise
Posted

I had mono last summer and things got really bad afterward. I'd always had a lot of stomach problems but they got worse and I started having constant aches, rashes, and fatigue. My immune system practically shut down and I was caught everything! Then I started having vitamin deficiencies. I've been gluten free for almost 4 months and I feel so much better. I definately think mono made existing gluten issues worse in my case.

gf-soph Apprentice
gf-soph
Posted

It worked that way for me - I started having occasional GI symtpoms after catching a flu when I was overseas in 2005. I would have periodic problems but overall health seemed ok. I know now I was starting to malabsorb, but that took a while to show up.

Mid 2007 I caught another full on flu, and my system went haywire after that, could harldy eat, major deficiencies. I think the initial stress triggered underlying problems, but the second problem tipped it into a whole other level of severity.

What is it that worries you at the moment? Are you concerned that things may get even worse, or that you haven't found the underlying problem?

Lisa Mentor
Lisa
Posted

Latent celiac disease refers specifically to patients who have abnormal antibody blood tests for celiac disease but who have normal small intestines and no signs or symptoms of Celiac disease.

You could have have latent Celiac and your trigger for full symptoms was your illness. It is more common than you think.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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