Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Started gluten-free Diet Due To Positive Celiac Test - But Found Out My Lotions Have Wheat!


thecatlady

Recommended Posts

thecatlady Rookie

Recently my blood test came back positive for Celiac so I officially started full Gluten Free March 1.

I found out some of my lotions have wheat in them...including my face cream. It has SPF so I avoid putting it near my mouth, but I'm going to give it away as I don't to risk using it now. Would I have had to ingested it to gluten myself, though?

I did give away some lipsticks with wheat (my doctor told me to check my lipsticks). I also checked my shampoos as I have longer hair and had to discard my hairspray as it sprays in the air and there is a chance I could 'ingest it.'

Is there anything else I should check? My doctor said topical wouldn't affect Celiac unless you eat/ingest it so I didn't much think about the face cream. But it is close to my mouth so it's not worth the risk for me.

It's hard enough to eat, avoid crumbs and all that. Now to have to deal with hairspray and body lotions and face creams!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluebonnet Explorer

about a week into my gluten free living i couldn't figure out what made me sick and this site said to check my hand lotion ... which ended up having a hydrolyzed wheat protein in it. i was eating popcorn so my thinking was that the residual lotion glutened me.

its up to you but there have been a few posts on here about being inadvertently glutened by personal care products such as lotions, shampoos, etc. just gotta be reaaaally careful! :)

Gemini Experienced

Recently my blood test came back positive for Celiac so I officially started full Gluten Free March 1.

I found out some of my lotions have wheat in them...including my face cream. It has SPF so I avoid putting it near my mouth, but I'm going to give it away as I don't to risk using it now. Would I have had to ingested it to gluten myself, though?

I did give away some lipsticks with wheat (my doctor told me to check my lipsticks). I also checked my shampoos as I have longer hair and had to discard my hairspray as it sprays in the air and there is a chance I could 'ingest it.'

Is there anything else I should check? My doctor said topical wouldn't affect Celiac unless you eat/ingest it so I didn't much think about the face cream. But it is close to my mouth so it's not worth the risk for me.

It's hard enough to eat, avoid crumbs and all that. Now to have to deal with hairspray and body lotions and face creams!

It is true that you have to ingest gluten into your GI tract to invoke an autoimmune response. Gluten cannot be absorbed through the skin. However, if you eat finger foods after putting on lotion with wheat in it, that could be a potential problem. If you stand in the shower and let the soap run down your face, yup, another potential problem. Anything which goes on the lips, for obvious reasons, has to be gluten-free.

I never worried about my hairspray and use a good, salon quality spray. It's been 5 years gluten-free for me and I haven't had a problem at all. If you are unsure as to how careful you want to be, you may want to consider going gluten-free with everything. I do not use all 100% gluten-free products but never gluten myself. It's very easy to be that careful when you get violently ill from ingesting the stuff! Don't worry too much....you'll get the hang of it all and find a way to make it work for you!

thecatlady Rookie

Thank you all very much. Fortunately, I don't think I've 'glutened' myself yet. But wheat/gluten sure shows up in a lot of things!

At least I know to watch for it now and will be extra careful with hand lotions/lipsticks.

Reba32 Rookie

I had a couple hand lotions that had wheat germ oil in them, so I gave them to a friend. I have a habit of sticking my fingers in my mouth, or resting my face on my hand, with my hands near my mouth, so I was sure I was getting glutened from the lotions.

My shampoo and conditioner had wheat in it, so I tossed those out. I had a box of hair dye that had wheat in it, so I gave that away. I tossed out all my lipsticks and bought new, and tossed out my Physicians Formula Organics tinted moisturizer because that had wheat in it too. My make-up bag needed tidying anyway.

I had a rather expensive trip out to buy all new cosmetics I tell ya! But I found some nice lipsticks on sale at Burkes last week. Only $1.99 and gluten free! ;-)

WheatChef Apprentice

Two days ago I had a dulling of my cognition, heart racing, hot flashes, severe lethargy and some GI problems and couldn't figure out what had caused it. Had only eaten fresh produce/eggs and a number of items with big Gluten Free labeling on their packaging. Upon retracing my eating steps that day I realized one thing that was out of the ordinary.

Normally I am super stingy with doggy treats and seldom actually dole them out (my two dogs are currently a little overweight so I'm trying to get them down in the pounds). Well that day I decided to give them both small doggie treats by hand and then without washing my hands (I know, I know) went on to eat some gluten free chips and homemade hummus. Apparently wheat is a common item in both dog food and dog treats, so now I realized I have to be careful not only making sure to wash my hands thoroughly after feeding/treating them but also have to make sure they never sneak in a lick on my face...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    2. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    4. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    5. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.