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Negative Biopsy

precious831

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precious831 Contributor
precious831
Posted

So my biopsy results came and the doc told me it was negative and that I don't have celiac and as usual was urged to continue to eat gluten. I said I'd rather stay gluten-free. It's frustrating that I put myself thru that miserable month and a half of consuming gluten and it was negative anyway. I was so sick from eating it and I really don't think a month and a half was enough time. I really wish I had not gone thru the endoscopy and colonoscopy!

My symptoms from gluten consumption are kind of extreme(to me at least), now I'm also wondering if maybe I'm actually allergic to wheat. Here are my symptoms:

acid reflux, swollen joints, anemia, diarrhea, bloating, severe cramping, blistering rashes/itching, severe headaches, brainfog, nausea, dizziness, bladder pain(I have IC and when I am eating gluten, it flares up), fibromylagia.

Any thoughts? Thanks. Do you think I should try getting the Enterolab test?

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Wolicki Enthusiast
Wolicki
Posted

So my biopsy results came and the doc told me it was negative and that I don't have celiac and as usual was urged to continue to eat gluten. I said I'd rather stay gluten-free. It's frustrating that I put myself thru that miserable month and a half of consuming gluten and it was negative anyway. I was so sick from eating it and I really don't think a month and a half was enough time. I really wish I had not gone thru the endoscopy and colonoscopy!

My symptoms from gluten consumption are kind of extreme(to me at least), now I'm also wondering if maybe I'm actually allergic to wheat. Here are my symptoms:

acid reflux, swollen joints, anemia, diarrhea, bloating, severe cramping, blistering rashes/itching, severe headaches, brainfog, nausea, dizziness, bladder pain(I have IC and when I am eating gluten, it flares up), fibromylagia.

Any thoughts? Thanks. Do you think I should try getting the Enterolab test?

Could very well be Celiac, or it could be gluten intolerance. Since you feel better off gluten, why not just stick with it? Enterolab might be useful for you if you need a "firm" answer in order to stick with the diet, but most MD's do not recognize Enterolab testing, and do not consider it a tool for diagnosis.

mushroom Proficient
mushroom
Posted

Might add that for most doctors non-celiac gluten intolerance flies totally below the radar. There really is such a thing (it could well be latent celiac or you may never develop diagnosable celiac) but the symptoms are just as real and the treatment is the same. It is not okay to continue eating gluten when you react badly to it. I would go gluten free and stay that way if you want to be healthy.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

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      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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