Negative Biopsy

[precious831]

So my biopsy results came and the doc told me it was negative and that I don't have celiac and as usual was urged to continue to eat gluten. I said I'd rather stay gluten-free. It's frustrating that I put myself thru that miserable month and a half of consuming gluten and it was negative anyway. I was so sick from eating it and I really don't think a month and a half was enough time. I really wish I had not gone thru the endoscopy and colonoscopy!

My symptoms from gluten consumption are kind of extreme(to me at least), now I'm also wondering if maybe I'm actually allergic to wheat. Here are my symptoms:

acid reflux, swollen joints, anemia, diarrhea, bloating, severe cramping, blistering rashes/itching, severe headaches, brainfog, nausea, dizziness, bladder pain(I have IC and when I am eating gluten, it flares up), fibromylagia.

Any thoughts? Thanks. Do you think I should try getting the Enterolab test?

[Wolicki]

So my biopsy results came and the doc told me it was negative and that I don't have celiac and as usual was urged to continue to eat gluten. I said I'd rather stay gluten-free. It's frustrating that I put myself thru that miserable month and a half of consuming gluten and it was negative anyway. I was so sick from eating it and I really don't think a month and a half was enough time. I really wish I had not gone thru the endoscopy and colonoscopy!

My symptoms from gluten consumption are kind of extreme(to me at least), now I'm also wondering if maybe I'm actually allergic to wheat. Here are my symptoms:

acid reflux, swollen joints, anemia, diarrhea, bloating, severe cramping, blistering rashes/itching, severe headaches, brainfog, nausea, dizziness, bladder pain(I have IC and when I am eating gluten, it flares up), fibromylagia.

Any thoughts? Thanks. Do you think I should try getting the Enterolab test?

Could very well be Celiac, or it could be gluten intolerance. Since you feel better off gluten, why not just stick with it? Enterolab might be useful for you if you need a "firm" answer in order to stick with the diet, but most MD's do not recognize Enterolab testing, and do not consider it a tool for diagnosis.

[mushroom]

Might add that for most doctors non-celiac gluten intolerance flies totally below the radar. There really is such a thing (it could well be latent celiac or you may never develop diagnosable celiac) but the symptoms are just as real and the treatment is the same. It is not okay to continue eating gluten when you react badly to it. I would go gluten free and stay that way if you want to be healthy.