Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Help!

reeetz

Recommended Posts

reeetz Rookie
reeetz
Posted

Hi Everyone! I need some help and advice please!

I just got a call this morning from the docs office saying that my tests all came back as normal. They did the celiac blood test and a liver function test because I had elevated liver enzymes before.

Problem is, when doing the test, I had already been on a gluten free diet for almost 6 weeks. When talking to the nurse, she said she thinks that is not enough time for my results to come back normal. Is that true? How long do you have to be on the diet for the results to come out normal even if you do have celiac?

I feel so much better on the diet and it just keeps getting better as the days go on. I am thinking of doing a gluten challenge to see what happens. Any suggestions and advice would be greatly appreciated. It makes me so sad that I just don't know what's wrong with me. Please help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

There's no hard and fast rule for how long it takes on the gluten free diet for antibody levels to come down. Is six weeks long enough? It's certainly possible. Not for everyone, but for some. If you feel better gluten free, why go back to feeling bad?

reeetz Rookie
reeetz
Posted
  • Author

Thank you for the response! The only reason why I am thinking of doing the gluten challenge is because I am doubting myself in the diagnosis. If I get sick then I will probably go gluten free again right away. I know I can't stand it again. But I just keep thinking to myself that maybe it was a coincidence that I felt better when I went off gluten.

I guess I just don't want to have to be on the diet if I don't absolutely HAVE to. If I do...thats fine. But now I feel that there is only one way to find out. Anyone else feel this way?

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

I would look at your liver enzymes normalizing (if they could find no other reason) as a sign of Celiac. My liver enzymes were 4 times the upper limit before I was diagnosed and normalized after a week of going gluten free. My doctor didn't know that elevated enzymes could be a sign of Celiac Disease and tested me for every liver disorder out there.......really freaked me out.

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

ohh yea one more thing. Is your liver worth a diagnosis? Elevated liver enzymes is a marker for liver damage and a gluten challenge will probably damage you liver even more. Just food for thought.

reeetz Rookie
reeetz
Posted
  • Author

They did mention that the elvated liver enzymes could be tied to Celiac, so that's why they wanted to do the testing. It was in the hospital that these liver enzymes showed as being elevated, but they just said it was for a number of reasons.

This is all just so confusing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,049
    • Most Online (within 30 mins)
      7,748
    ChloeT
    Newest Member
    ChloeT
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Pepsid alternative

      By Scott Adams · Posted

      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Stephanie Wakeman · Posted

      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Pepsid alternative

      By milana · Posted

      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      Recently qualified Nutritionist looking for support

      By Diana Swales · Posted

      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      gluten-free self diagnosed journey so far as well as what triggers. Eye crying like peeling onions?

      By Scott Adams · Posted

      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
×
×
  • Create New...