Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Help!

reeetz

Recommended Posts

reeetz Rookie
reeetz
Posted

Hi Everyone! I need some help and advice please!

I just got a call this morning from the docs office saying that my tests all came back as normal. They did the celiac blood test and a liver function test because I had elevated liver enzymes before.

Problem is, when doing the test, I had already been on a gluten free diet for almost 6 weeks. When talking to the nurse, she said she thinks that is not enough time for my results to come back normal. Is that true? How long do you have to be on the diet for the results to come out normal even if you do have celiac?

I feel so much better on the diet and it just keeps getting better as the days go on. I am thinking of doing a gluten challenge to see what happens. Any suggestions and advice would be greatly appreciated. It makes me so sad that I just don't know what's wrong with me. Please help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

There's no hard and fast rule for how long it takes on the gluten free diet for antibody levels to come down. Is six weeks long enough? It's certainly possible. Not for everyone, but for some. If you feel better gluten free, why go back to feeling bad?

reeetz Rookie
reeetz
Posted
  • Author

Thank you for the response! The only reason why I am thinking of doing the gluten challenge is because I am doubting myself in the diagnosis. If I get sick then I will probably go gluten free again right away. I know I can't stand it again. But I just keep thinking to myself that maybe it was a coincidence that I felt better when I went off gluten.

I guess I just don't want to have to be on the diet if I don't absolutely HAVE to. If I do...thats fine. But now I feel that there is only one way to find out. Anyone else feel this way?

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

I would look at your liver enzymes normalizing (if they could find no other reason) as a sign of Celiac. My liver enzymes were 4 times the upper limit before I was diagnosed and normalized after a week of going gluten free. My doctor didn't know that elevated enzymes could be a sign of Celiac Disease and tested me for every liver disorder out there.......really freaked me out.

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

ohh yea one more thing. Is your liver worth a diagnosis? Elevated liver enzymes is a marker for liver damage and a gluten challenge will probably damage you liver even more. Just food for thought.

reeetz Rookie
reeetz
Posted
  • Author

They did mention that the elvated liver enzymes could be tied to Celiac, so that's why they wanted to do the testing. It was in the hospital that these liver enzymes showed as being elevated, but they just said it was for a number of reasons.

This is all just so confusing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,976
    • Most Online (within 30 mins)
      7,748
    Sarawiththeceliac
    Newest Member
    Sarawiththeceliac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      It is addictive. The dopamine hit I get from a sandwich after being gluten free for a while is insane and I immediately crave more. Maybe if I think of it more like an addiction I'll be able to beat it in the future. 
    • Wheatwacked
      Diagnosed gluten allergy but not Celiac

      By Wheatwacked · Posted

      Undiagnosed Celiac Disease was your root cause.  As you heal and adress nutritional deficiencies you'll see lifetime symptoms disapear, some you don't even realize you have.     Until 1951 no one knew the cause.  Around 1900 it was also called "Infantilism", you outgrew it or died.  Dr Hass around 1920 was the first to come up with a treatment with close to 100% survival.  At 63 I followed his diet for a while and it helped me past the early stage of recovery.  Even then it was only considered a childhood disease, eventually the child outgrew it.  Once outgrown the child was reintroduced to wheat.  After that any symptoms that arose were attributed to whatever was popular, gall bladder, allergy, endometriosis, etc.  Often the final diagnosis is "we do not know the cause, it is just normal for some people, but we have medications that will treat your symptoms."   I was bloated, and always colicky.  When my son was born in 1976, my mother commented "You got what you gave."  I pointed out to my wife that he looked like a Biafra baby from the Biafra famine in 1970.  One of the first successful sales of modern wheat was to replace the rice the Biafran Aid Society supplied.  After searching the state where we lived (pop. 6 million) we found the one child gastroenterologist familiar with Celiac.  He only had 13 other children dianosed with the disease under his care and after several endoscopies my son was diagnosed, put on GFD and immediately thrived.  The doctor also suggested my wife and I also do gluten free.  We declined, not having any gastro problems.  That remains my only regret in my life. THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE  Dr Hass' 1924 puplication with diet. There are over 300 symptoms related to celiac disease I believe that if you have the genes, you have Celiac Disease, but your immune system is strong enough to keep it subdued, or your symptoms are misdiagnosed as something not wheat.  Until something happens to weaken the immune system, and symptoms, often misdiagnosed and wrongly treated, until eventually you die, never knowing or you get lucky and end up eating gluten free.  To me it explains the late onset of acute symptoms, many are "just normal for you". Ever wonder why people get so angry if you suggest they may have Celiac Disease.  Wheat is a cultural and economic staple of our lives.  And it is addictive, it numbs our body.  Suddenly, gluten free, all the other irritants are no longer suppressed.  
    • trents
      Diagnosed gluten allergy but not Celiac

      By trents · Posted

      I don't think we can say that just one thing, whether vitamin D deficiency or emotional trauma, or a viral infection, or what ever is always what triggers the onset of celiac disease. We do know there is a genetic component to it and there is increasing evidence that factors creating gut dysbiosis (such as overuse of antibiotics and preservatives and environmental toxins) are major players. Hybridizing of heirloom wheat strains to increase the gluten content by multiples may also be a factor.
    • trents
      Blood results

      By trents · Posted

      Thanks for the follow-up correction. Yes, so not 10x normal and the biopsy is therefore totally appropriate to rule out a false positive or the unlikely but still possible situation of the elevated lab test number being caused by something besides celiac disease. 
    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Thanks. I believe I can trace my gluten and milk allergies to specific traumas in my life. I've had some quite severe traumas over my lifetime. Mostly in my history I was so out of sorts surviving that diagnosing gluten sensitivity/allergy/celiac was just not on the table for such a survival mode existence. Vitamin D makes sense too. Now I take very good care of myself, I have a rock solid stability and I do take 1,500 IU of D daily. It's more obvious to me now what's causing problems and so most of the time I only eat protein and vegetables. I cheat sometimes. I end up paying for it though. 
×
×
  • Create New...