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New Celiac Drug!

sandy-sas

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sandy-sas Rookie
sandy-sas
Posted

HI,

I hope this hasn't been posted already, sorry if it's old news. I just heard about this today and thought it might be of interest.

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Sandy

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Bobbijo6681 Apprentice
Bobbijo6681
Posted

HI,

I hope this hasn't been posted already, sorry if it's old news. I just heard about this today and thought it might be of interest.

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Sandy

This is GREAT!!! If it works! My only question is that it says that it relieves the symptoms of gluten, but does it still do damage to your intestines? If it does then you still do not want to eat gluten, as the immediate symptoms are only part of the problem.

Thanks for sharing, and I can't wait to see if it will work for us!!

sandy-sas Rookie
sandy-sas
Posted
  • Author

This is GREAT!!! If it works! My only question is that it says that it relieves the symptoms of gluten, but does it still do damage to your intestines? If it does then you still do not want to eat gluten, as the immediate symptoms are only part of the problem.

Thanks for sharing, and I can't wait to see if it will work for us!!

I copy and pasted this, "But now, a new pill called Larazotide Acetate has shown to prevent some of the damage to the small intestine gluten causes."

Sandy

Lisa Mentor
Lisa
Posted

Thank you Sandy for posting this! It's good information, but nothing to get too excited about yet.

This is the study that is currently being conducted. We have several members that are participants in this study. It is in the clinical stages. This "Cure" is not that at all. It MAY prevent some symptoms of accidental cross contamination.

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Here is more information from this forum on AT 1001:

https://www.celiac.com/gluten-free/index.php?app=core&module=search&do=quick_search&search_filter_app[forums]=1

SORRY THAT LINK DID NOT WORK. Do your own local search for AT1001 on this site. You will find a lot of information.

WheatChef Apprentice
WheatChef
Posted

Certainly not a cure. Considering the effects of celiacs extends far beyond just simple intestinal damage any pill would have to attack gluten itself.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

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    • Scott Adams
      Question

      By Scott Adams · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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