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- Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease9Pain in the right side of abdomen
I can see why she’s worried, especially with a history of ovarian cysts, but it’s also very common for healing after a celiac diagnosis to take time. Even when someone is doing their best gluten-free, it can take months for inflammation to calm down, and bloating, abdominal pressure, and even back discomfort can flare during the adjustment period. The upc... -
- Scott Adams replied to science enthusiast Christi's topic in Coping with Celiac Disease2
Sugar intolerance 10 years into gluten-free diet
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The... -
- cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease28Insomnia help
PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood. I think what I am trying to say is you are going through a lot all at once, it is not surprising that... -
- catnapt replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Gluten Free Sugar or Starch known to increase gas?
hmm you got me curious as I have suspected that certain foods with sugar may be an issue for me so I googled this and came up with this: " Key Compounds Causing Reactions in Gluten-Free Foods: Fructans: Often found in foods that are gluten-free but high in fiber (e.g., inulin, chicory root), acting as a trigger for digestive issues similar... -
- cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease28
Insomnia help
Hi @EvieJean I was delighted to read @hjayne19's comments about A LIfe at Last as the book definitely helped me to understand how anxiety works. You may be suffering from vitamin and mineral deficiencies which will can contribute to and even cause anxiety. Have you had any tests done? If you have and 'normal' results , do take a second look at...
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By Scott Adams · Posted
I can see why she’s worried, especially with a history of ovarian cysts, but it’s also very common for healing after a celiac diagnosis to take time. Even when someone is doing their best gluten-free, it can take months for inflammation to calm down, and bloating, abdominal pressure, and even back discomfort can flare during the adjustment period. The upcoming dietitian visit is a great step, since hidden gluten exposure or nutritional gaps can sometimes contribute to ongoing symptoms. That said, if the pain is persistent, worsening, or feels similar to her prior cyst symptoms, it’s reasonable to mention that to her doctor for peace of mind. It’s not uncommon for multiple things to overlap, so checking both GI and gynecologic angles can help rule things out and reduce anxiety while her body continues healing. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. -
By Scott Adams · Posted
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: -
PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood. I think what I am trying to say is you are going through a lot all at once, it is not surprising that you are not feeling 100 per cent. Even if we love our relative to bits, and they love us, they often can't understand that we too have lives, and need to keep our houses, families and jobs in running order. Something has to give, but it's often the carer! When an elderly loved one is resistant to change, it makes things even more exhausting. Often it has taken a crisis for me to be able to introduce the help that has actually been needed for so long. It sounds as if you are doing an amazing job but can you get any support from any carers associations or other groups where you live, which might help?
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hmm you got me curious as I have suspected that certain foods with sugar may be an issue for me so I googled this and came up with this: " Key Compounds Causing Reactions in Gluten-Free Foods: Fructans: Often found in foods that are gluten-free but high in fiber (e.g., inulin, chicory root), acting as a trigger for digestive issues similar to gluten. Fructose (Fructose Malabsorption): A sugar found in fruits, honey, and high-fructose corn syrup. Some individuals cannot properly absorb this sugar, leading to fermentation in the gut. Sugar Alcohols (Polyols): Examples include mannitol, sorbitol, and xylitol, commonly added to gluten-free, sugar-free products to maintain sweetness. Lactose: A disaccharide found in dairy that frequently causes issues in individuals with damaged gut linings, a common occurrence in celiac disease. These reactions are often classified as dietary intolerances (such as fructan intolerance or fructose malabsorption) rather than allergies. They are commonly found in packaged "gluten-free" products like bars, cereals, and processed snacks. " hope this helps.
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Hi @EvieJean I was delighted to read @hjayne19's comments about A LIfe at Last as the book definitely helped me to understand how anxiety works. You may be suffering from vitamin and mineral deficiencies which will can contribute to and even cause anxiety. Have you had any tests done? If you have and 'normal' results , do take a second look at the levels. Low normal, for instance, in iron and B12, may still be causing you anxiety, so you may need to consider supplementation. (If you do this, best talk to your GP, particularly regarding iron, as it needs regular monitoring. - too much in the blood can be dangerous) When I was first diagnosed, my GP was happy when my ferritin levels were c. 11 n/gL (just on the cusp of our local normal lab readings) whereas a consultant I saw some months later for continuing mouth issues said, 'Far too low! and told me my levels should at least be at 40. Another example is B12 - in some countries a reading of 500 is considered the start of normal levels, in the UK normal range starts at 180 n/gL. I feel much better when my B12 is at a higher level. If you are feeling depressed and generally stressed I'd also consider reading Dr Steve Llardi's book The Depression Cure which looks at how incorporating a combination of physical exercise, omega-3 fatty acids, natural sunlight exposure, restorative sleep and social connectedness in your life can help you feel better. I have given this book to many people who found it helpful, and a relative of mine who is a doctor thinks it is fantastic. The run up to my diagnosis and for some time afterwards I had terrible brain fog, insomnia and intrusive thoughts. In time, with the supplementation, and also with the help of the above books, I did feel so much better. I really hope that you can find some of these tips help you too, and remember, try to keep your diet as gluten free as you possibly can. Also, please come back to us if you have any further questions. Cristiana
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