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Any Celiac Teens Out There?

kellyisfresh

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breeeebreeee Newbie
breeeebreeee
Posted

Hi kelly! I just got diagnosed with Celaic disease late last year and I'm turning 16. I find the diet difficult and all my friend's seem to get anoyed with my special diet needs!

But, some even go out of their way to buy me little snacks and I met a fellow celiac this year at school:)

-Bree

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  • Replies 77
  • Created
  • Last Reply
SusieQ Rookie
SusieQ
Posted

Hi! Im 14 and I've had it like 8 months now.. it sucks! But its great to know there are others out there...!! Whats up??:)

hey im 13 and i don't know anyone around my age that has it. i have been diagnosed for 2, almost 3 weeks now. :)

  • 2 weeks later...
123bree Newbie
123bree
Posted

hey my name is mikaela and i am almost sixteen too!! i started getting sick when i was eight then after three years of tests i found out i have celiac. i never really liked baked goods so it wasen't very hard to go off gluten. i am getting fed up with having to read all the lables on the packages though. but my friends have been really good and always have something gluten free in the cupboard for me. do you know of a good bread company cuz i am having a hard time finding good gluten-free bread??

The best one i found is UDI's gluten free bread and they have other products to that are the best lol

gibberish093 Rookie
gibberish093
Posted

I'm 19, been diagnosed for a year now :) Anybody in BC, Canada? I'd really like to meet some Celiacs, I feel so alone..

I live in BC, Canada (haha where else :P). I am 17 - almost 18 mind you. And I have just been diagnosed 3 weeks ago with celiac. I also feel quite alone because I know no one my age, or around my age with this disease. I would love to meet people or just talk with people closer to my age with it. :)

gibberish093 Rookie
gibberish093
Posted

I am Cherie. Been celiac for about 3 years now. Self diagnosed 4 weeks ago, been on the gluten free ever since and I have never felt better! I am turning 18 this December and I live in BC, Canada. I am so happy that I have found other teens that I can talk to about this because the only other person I know who has celiac is my step-grandma and she isn't exactly going be going through the same situations as me. Anyone in BC or around it out there?? :) Feel free to message me, I am happy to meet new people :D

  • 4 weeks later...
Sammmmmy Newbie
Sammmmmy
Posted

Where in CT?

gibberish093 Rookie
gibberish093
Posted

CT??

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BakingQueen Newbie
BakingQueen
Posted

Hi I'm 15 and I'm from Canada. I've been diagnosed for 4 years now, and I still sometimes have difficulty explaining it all to friends.

janineisaceliac Newbie
janineisaceliac
Posted

Hey! I'm Janine, I'm 16, and I've been diagnosed for about 11 1/2 years now. I live in Northern California, so if there's anyone in the area, contact me!

  • 3 weeks later...
Katah Newbie
Katah
Posted

Rebecca, 19. I self-diagnosed in Feb via diet change. No doctor could help so I just started looking myself. I live in Barrie, ON during the summer months, and in St. John's NL for the school year. Anyone in either province??

Hey, I live in Barrie too! I am 16 and have been gluten free for about 5 months now!

  • 1 month later...
Hadrian Newbie
Hadrian
Posted

Hi! I'm Dolan (random Irish last name that my parents decided was a good first name xD). I'm a 15 year old guy from Florida and I've been diagnosed when I was around 6 or 7 I believe.

  • 2 weeks later...
allergyprone Contributor
allergyprone
Posted

hi i'm Nicole i'm 18 and i just started college :mellow: in a different state i've met another student with celiacs (the 1st i ever met) but it is hard being in a different place and having to fend for my self and maintain a gluten-free diet (even if i am cooking all my own food) anyone out there in richmond kentucky id love to find out all the secrite gluten-free spots and stores

  • 2 weeks later...
Katie H Newbie
Katie H
Posted

Hello, I'm Katie. I'm 17 and I've only been diagnosed with Celiac for about 3-4 months now. Still challenging and frustrating, but it's getting better! :)

DanPatch Rookie
DanPatch
Posted

Hey!

I'm in Ontario, and was diagnosed in May-ish of this year...

This disease seems to be growing by leaps and bounds...this will likely mean that it will improve for us celiacs :) , but really, what is the world coming to?! :blink:

Anyone else have suggestions on how to handle "may contain" foods? (chocolate :rolleyes: ). I'm still newly diagnosed, and my symptoms haven't really relieved themselves yet, so I'm not really sure.

Februaryrich Rookie
Februaryrich
Posted

I wish I could go to the cafeteria and shout: ANY CELIACS IN THE PLACE?

Februaryrich Rookie
Februaryrich
Posted

hey hey

i'm 15 and i've had celiac for almost

my names Anthony and i live in QC Canada... anyone else pleaseee contact me

Anthony! I'm also from QC Canada, we should hang out lol

  • 1 year later...
CeliacEllie Newbie
CeliacEllie
Posted

I was born with celiac disease, but just discovered I had it last week, I'm 15 years old. It's so hard going Gluten-Free... I'm never full, almost always hungry, I've lost a lot of weight already, and when the class/my friends eat something I can't it's torture! I'm having the worst time getting used to this and I'm not even feeling better yet, it's going to take awhile. I really hate this, but it'll be worth it in the end.

  • 3 months later...
DerpTyler Newbie
DerpTyler
Posted

I'm 18, been diagnosed for 7 years. I go to college in Bc Canada, and iv never met another celiac at my school :P

  • 1 month later...
Stern Newbie
Stern
Posted

Hi there!

 

I've been gluten-free for a good... Nearly two years now (With a summer off for a pointless blood test, worst summer ever. >:- | ) I'm in Northern California, I'd love to talk to anyone else around here that's working through Celiac's! x_X Or any other food allergies, don't get me started on my list, no fun. X- P

  • 1 month later...
JetLockheart Newbie
JetLockheart
Posted

I'm 20, I've reacted since I was old enough to eat solid food, but  I've never been truly diagnosed with celiac. At the age of 2 or 3 I was put on a gluten free diet( among other things) for 2 years and that fixed everything for me. Unfortunately I can't afford to be gluten free and its really messing with my college studies.

  • 1 month later...
soccerchic383 Newbie
soccerchic383
Posted

Hey guys. Don't know if this thread is dying but I wanted to introduce myself. I'm Casey (girl) about to turn 18 and I was diagnosed with celiacs about a month ago and enduring that lovely (awful) healing period. I live in northern Cali and I'd love to talk to some other teens with celiacs!!

  • 4 months later...
arfellman Newbie
arfellman
Posted

Hey my names kimberlie . I've been a celiac for almost a year now . I live in cali . Contact me smile.gif I need some celiac friends. I know of only one other celiac Wich is my best friends Grammy .

Where in Cali? I live in Ukiah (North California)

  • 4 months later...
djsimendinger Newbie
djsimendinger
Posted

Hey I'm Dana, I'm 20 and I think I was diagnosed 2 years ago. Glad to meet others who have celiac/can't eat gluten!

  • 1 month later...
gerbilgirl Rookie
gerbilgirl
Posted

I'm a college student.  I'm still in the process of a diagnosis but I definitely have a gluten sensitivity as well as sensitivity to oats even if they are certified gluten free.  I have other allergies as well.  Been eating gluten-free for about a year but lately I seem to be becoming more sensitive, used to be able to eat a small amount of gluten every so often (such as some teriyaki sauce) but now that just doesn't cut it.  Cross-contamination is also becoming an issue.    

  • 1 year later...
LaurenIsSilly Newbie
LaurenIsSilly
Posted

Hi! I'm Lauren from Seattle, I am 18 and I have DH Celiac Disease as well as hypothyroidism. It took me about two years to finally diagnose my disease because I never had any stomach issues, instead my Celiac disease presents as a horrible rash all over my body and face. It has been really hard having to go to high school with such a physically different disease and have had to be home schooled this year. I recently missed my senior prom, and am missing graduation this weekend because of how I look. I wish I could be more confident in how I look, but it's really hard seeing yourself as anything other than how you looked with a raging rash all over. Dating and any type of relationship have been hard to make because I rarely leave the house due to how I look. I hope to hear from some other teens dealing with a similar situation because so far I don't know anyone else like me.

xoxo ~ Lauren  :D

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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