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Any Celiac Teens Out There?


kellyisfresh

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kellyisfresh Newbie

Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:


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  • Replies 77
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runningcrazy Contributor

Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:

Hi! Im 14 and I've had it like 8 months now.. it sucks! But its great to know there are others out there...!! Whats up??:)

RideAllWays Enthusiast

I'm 19, been diagnosed for a year now :) Anybody in BC, Canada? I'd really like to meet some Celiacs, I feel so alone..

Gfresh404 Enthusiast

19 - from MA.

I have to say I know how all you guys feel. But I think eventually, I just realized - that we are ALL actually alone. I know that sounds kind of depressing, but it's true. And it certainly does not have to be depressing. After I accepted that, I was actually happier than before I had come to that realization.

By becoming more independent and improving myself - I became more attractive than I've ever been. That in turn boosted my self-confidence, which in turn boosted my happiness.

I know a lot of issues seem to be tied to gluten at first, but eventually you'll realize - a lot of them are just life's problems. And I know it's especially hard for teenagers since most of us are kind of confused anyway (I know I was!) but things do get better. I can promise you that. I have only been gluten-free for 1 year and 3 months and the changes over the past 6 months have been absurd.

gintare519 Newbie

Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:

Hey! Well I'm Gintare. Normally referred as Gina. I actually have had it since about 5th grade. I remember I went to the ER multiple multiple times due to severe abdominal pain. Not one doctor knew what it was. So I recently started to do some research on my own. And I have come across "celiac disease". It sounded JUST like what I have been phasing with. So actually, just about 2 weeks ago, I went to get tested for the disease. It turns out I have it. Not to mention, I am also lactose intolerant and vegan. What a small range of food now! haha. How depressing. I literally look 8 months pregnant at night after I have foods with gluten in it. Its horrible!! XD

kbug Newbie

Gintare me too! My pants won't button at allll... and good luck trying to wear a fitting shirt, right? :lol:

smilie Newbie

Hey! Well I'm Gintare. Normally referred as Gina. I actually have had it since about 5th grade. I remember I went to the ER multiple multiple times due to severe abdominal pain. Not one doctor knew what it was. So I recently started to do some research on my own. And I have come across "celiac disease". It sounded JUST like what I have been phasing with. So actually, just about 2 weeks ago, I went to get tested for the disease. It turns out I have it. Not to mention, I am also lactose intolerant and vegan. What a small range of food now! haha. How depressing. I literally look 8 months pregnant at night after I have foods with gluten in it. Its horrible!! XD

Hi, I'm 12 almost 13 and I started having problems when I was 5 and like you went to ER, Even the famous Cook Children


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  • 1 month later...
JackPintavalle Newbie

Im from Ct. and im 15 and have had celiac since i was 3

kannne Explorer

I am 19 and have had celiac for 9 years. I am now on SCD diet.

  • 2 weeks later...
Eilidh Newbie

I am 19 and have had celiac for 9 years. I am now on SCD diet.

Hey I'm 17 and I live in B.C. Canada. I've known that I was celiac for 6 years. I live on an island where it is pretty common, because everyone is so intouch with their health. My mom actually runs a gluten-free bakery, so thats sweet, but there are only 2 teens here that know they have it. And I want to meet some more teens who know how it is.

Anyone nearby?

poiuyanthony Newbie

hey hey

i'm 15 and i've had celiac for almost

my names Anthony and i live in QC Canada... anyone else pleaseee contact me

Angels~Exist Newbie

Hey,I'm Kasey 17 yrs old. diagnosed for a year. I promise it gets better!! :lol:

  • 2 weeks later...
Rebecca Madrid Newbie

Rebecca, 19. I self-diagnosed in Feb via diet change. No doctor could help so I just started looking myself. I live in Barrie, ON during the summer months, and in St. John's NL for the school year. Anyone in either province??

Celiacs Mom Newbie

Hi

I am the mom of a 17 year old who diagnosed herself about a month ago after talking to a teacher at her school who had the same problems. My daughter is a competive irish dancer (about 8- 10 hrs practice a week) and has had exercise induced asthma about 10 years and stomach problems all her life. She was told two years ago she definitely had irritable bowel syndrome and to change her diet. Add more fibre they said. She felt somewhat better but couldn't get her exercise induced asthma under control changing from one puffer to another. A top child respirologist had no solution. She would dance in a competition coming off stage doubled over, gasping for air and wanting to throw up. FIVE DAYS without gluten she went in a competition came off stage short of breath because she had worked hard but besides that she was fine. Unbelievable!! She has increased her stamina and doesn't require her puffer nearly as much!

  • 2 weeks later...
dunphy118 Newbie

Hey - My name is Taylor.

I am 19 and i was diagnosed about a week ago!

contact me if you want =]]

bCoy Newbie

Names Brandon, im 18 from New Jersey. I was diagnosed 17 years ago. been on Celiac diet my whole life. Its not bad at all to be honest. im actually the healthiest person in my family lol

G-freegal12 Contributor

Hi!, I'm 13 and in August I will be gluten-free for A WHOLE ENTIRE YEAR (wow) lol :lol:

I am bein' glutend right now... I look like I should be looking at pacifires and maternity shirts...

Hineys <3 Newbie

Heyy Girl! :] I'm Helen. I'm 17! I self diagnosed in January of this year, Almost everyone on my moms side has Celiac and one aunt on my dads does and it still took a year to figure out what it was. I have been gluten free for 6 months now and I'm finding that its really not that hard now that i found amazing pizza!! I live in Kentucky and would LOVE to know some people around here with it! Even if your from other places though, I would love to chat..I'm a talker in case you cant tell! :] Hit me up some time!

Hineys <3 Newbie

My names Helen. Im 17 and was diagnosed january of this year however, I have been suffering with symptoms since May of 2009. I dont know anyone my age thats not family that has Celiac and would love to talk to some people.

  • 2 weeks later...
celiacprincess17 Newbie

Cassidy, 17&1/2.

I was diagnosed 12 years ago. That's before there was "all purpose gluten free flour". Baking was awful.

Actually, that was before decent bread... Our breadmaker made one very lovely doorstop before it was retired.

I like to talk, and answer questions. Oh, and making friends.

So hi (:

  • 3 weeks later...
Lett Newbie

Hi, im 15 (almost 16) years old boy. I was diagnosed with celiac when i was 10 (one day before my 11th birthday, so that was my birthday gift from a doctor, lol)

eeyore Collaborator

I'm 14 -I was diagnosed almost 2 years ago...

  • 1 month later...
Mike7 Newbie

19 - from MA.

I have to say I know how all you guys feel. But I think eventually, I just realized - that we are ALL actually alone. I know that sounds kind of depressing, but it's true. And it certainly does not have to be depressing. After I accepted that, I was actually happier than before I had come to that realization.

By becoming more independent and improving myself - I became more attractive than I've ever been. That in turn boosted my self-confidence, which in turn boosted my happiness.

I know a lot of issues seem to be tied to gluten at first, but eventually you'll realize - a lot of them are just life's problems. And I know it's especially hard for teenagers since most of us are kind of confused anyway (I know I was!) but things do get better. I can promise you that. I have only been gluten-free for 1 year and 3 months and the changes over the past 6 months have been absurd.

Hey, I'm 19 and from MA

Oh and RideAllWays, BC, Canada is where it's at...best city in Canada

Aeva Rookie

Aeva, 18

I've had ongoing stomach issues my whole life. I got unofficially diagnosed a few years ago, gave up with no improvement and have now officially been told (yay bloodwork!) that I am, in fact, gluten intolerant. It's been about 4 months now, and I haven't seen that much improvement yet, although I've got a few other minor health things going on too, which prolly don't help.

Oh, and I live about 20 minutes outside NYC.

Kelly&Mom Rookie

My daughter Kelly (14) was diagnosed about a year ago now and is doing much better although we've added IBS (especially dairy) to the mix of "bad" foods. We were given an amazing gluten-free dessert cookbook and she's been baking up a storm for us! chocolate cheesecake, chocolate pecan pie, brownies, banana cream pie, cakes, cookies..... Yum! She wants to open a bakery! Luckily most of her friends are very understanding and helpful, actually make her gluten-free things or check to see what she can eat for sleep-overs. She's gained weight, has so much more energy and personality! You are not alone and lucky to have gotten diagnosed now. I'm 45 and finally got a diagnosis in Feb. of this year after having stomach issues since I can remember. My mom died of a celiac related cancer so I'm so glad I have a fighting chance!

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    • knitty kitty
      I respectfully disagree, @Scott Adams.   Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss.  The body will use stored fat and muscle to provide energy in thiamine deficiency.  This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass.  Using stored fat and muscle for energy requires less thiamine than the amount of thiamine required to process carbohydrates.  Thiamine deficiency causes gastrointestinal Beriberi, a localized thiamine deficiency in the digestive tract, which results in dysbiosis, inflammation, and abdominal pain.  Carbohydrates can remain undigested in the intestinal system, which bacteria feed on, encouraging SIBO, and prompting dysbiosis, leaky gut, and inflammation.  Following a low carbohydrate Keto diet, like the AutoImmune Protocol diet, can help because it removes excess carbohydrates that the bacteria feed on.  SIBO can cause weight gain due to inflammational edema of the intestines (water retention in the tissues of the intestines), gas, and slowed transit times.  SIBO bacteria can absorb nutrients from your food before you can, resulting in additional deficiencies of other B vitamins and nutrients.   Thiamine deficiency is corrected with high dose Thiamine Hydrochloride, Benfotiamine and/or Thiamine TTFD (tetrahydrofurfuryl disulfide).  High dose thiamine in the form Benfotiamine has been shown to promote intestinal healing.  It improves "leaky gut".  High dose Benfotiamine will improve the gut microbiome in favor of beneficial bacteria.  Thiamine TTFD is beneficial for neurological issues.  Thiamine TTFD improves brain function and is beneficial for mental health issues such as depression and anxiety, and other neurological problems like Ataxia and Brain Fog.    Methylated (activated) B Complex vitamins help correct Thiamine deficiency because all eight B vitamins work together.  Vitamin C and the four fat soluble vitamins (A, D, E, and K) are needed as well.  Minerals like Magnesium, Calcium, Iron,  Potassium, and others may need to be supplemented as well.  Thiamine and Magnesium make life sustaining enzymes together.   Supplementing with high doses of Thiamine and other water soluble B vitamins will lower pain and inflammation, improve fatigue, improve muscle mass gain, as well as regulate the intestinal microbiome!  So, @Stegosaurus, you can get healthier while improving gut dysbiosis at the same time! References: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/
    • Aretaeus Cappadocia
      You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.)
    • JennMitchell79
    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
    • Scott Adams
      @Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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