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Any Celiac Teens Out There?

kellyisfresh

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breeeebreeee Newbie
breeeebreeee
Posted

Hi kelly! I just got diagnosed with Celaic disease late last year and I'm turning 16. I find the diet difficult and all my friend's seem to get anoyed with my special diet needs!

But, some even go out of their way to buy me little snacks and I met a fellow celiac this year at school:)

-Bree

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  • Replies 77
  • Created
  • Last Reply
SusieQ Rookie
SusieQ
Posted

Hi! Im 14 and I've had it like 8 months now.. it sucks! But its great to know there are others out there...!! Whats up??:)

hey im 13 and i don't know anyone around my age that has it. i have been diagnosed for 2, almost 3 weeks now. :)

  • 2 weeks later...
123bree Newbie
123bree
Posted

hey my name is mikaela and i am almost sixteen too!! i started getting sick when i was eight then after three years of tests i found out i have celiac. i never really liked baked goods so it wasen't very hard to go off gluten. i am getting fed up with having to read all the lables on the packages though. but my friends have been really good and always have something gluten free in the cupboard for me. do you know of a good bread company cuz i am having a hard time finding good gluten-free bread??

The best one i found is UDI's gluten free bread and they have other products to that are the best lol

gibberish093 Rookie
gibberish093
Posted

I'm 19, been diagnosed for a year now :) Anybody in BC, Canada? I'd really like to meet some Celiacs, I feel so alone..

I live in BC, Canada (haha where else :P). I am 17 - almost 18 mind you. And I have just been diagnosed 3 weeks ago with celiac. I also feel quite alone because I know no one my age, or around my age with this disease. I would love to meet people or just talk with people closer to my age with it. :)

gibberish093 Rookie
gibberish093
Posted

I am Cherie. Been celiac for about 3 years now. Self diagnosed 4 weeks ago, been on the gluten free ever since and I have never felt better! I am turning 18 this December and I live in BC, Canada. I am so happy that I have found other teens that I can talk to about this because the only other person I know who has celiac is my step-grandma and she isn't exactly going be going through the same situations as me. Anyone in BC or around it out there?? :) Feel free to message me, I am happy to meet new people :D

  • 4 weeks later...
Sammmmmy Newbie
Sammmmmy
Posted

Where in CT?

gibberish093 Rookie
gibberish093
Posted

CT??

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BakingQueen Newbie
BakingQueen
Posted

Hi I'm 15 and I'm from Canada. I've been diagnosed for 4 years now, and I still sometimes have difficulty explaining it all to friends.

janineisaceliac Newbie
janineisaceliac
Posted

Hey! I'm Janine, I'm 16, and I've been diagnosed for about 11 1/2 years now. I live in Northern California, so if there's anyone in the area, contact me!

  • 3 weeks later...
Katah Newbie
Katah
Posted

Rebecca, 19. I self-diagnosed in Feb via diet change. No doctor could help so I just started looking myself. I live in Barrie, ON during the summer months, and in St. John's NL for the school year. Anyone in either province??

Hey, I live in Barrie too! I am 16 and have been gluten free for about 5 months now!

  • 1 month later...
Hadrian Newbie
Hadrian
Posted

Hi! I'm Dolan (random Irish last name that my parents decided was a good first name xD). I'm a 15 year old guy from Florida and I've been diagnosed when I was around 6 or 7 I believe.

  • 2 weeks later...
allergyprone Contributor
allergyprone
Posted

hi i'm Nicole i'm 18 and i just started college :mellow: in a different state i've met another student with celiacs (the 1st i ever met) but it is hard being in a different place and having to fend for my self and maintain a gluten-free diet (even if i am cooking all my own food) anyone out there in richmond kentucky id love to find out all the secrite gluten-free spots and stores

  • 2 weeks later...
Katie H Newbie
Katie H
Posted

Hello, I'm Katie. I'm 17 and I've only been diagnosed with Celiac for about 3-4 months now. Still challenging and frustrating, but it's getting better! :)

DanPatch Rookie
DanPatch
Posted

Hey!

I'm in Ontario, and was diagnosed in May-ish of this year...

This disease seems to be growing by leaps and bounds...this will likely mean that it will improve for us celiacs :) , but really, what is the world coming to?! :blink:

Anyone else have suggestions on how to handle "may contain" foods? (chocolate :rolleyes: ). I'm still newly diagnosed, and my symptoms haven't really relieved themselves yet, so I'm not really sure.

Februaryrich Rookie
Februaryrich
Posted

I wish I could go to the cafeteria and shout: ANY CELIACS IN THE PLACE?

Februaryrich Rookie
Februaryrich
Posted

hey hey

i'm 15 and i've had celiac for almost

my names Anthony and i live in QC Canada... anyone else pleaseee contact me

Anthony! I'm also from QC Canada, we should hang out lol

  • 1 year later...
CeliacEllie Newbie
CeliacEllie
Posted

I was born with celiac disease, but just discovered I had it last week, I'm 15 years old. It's so hard going Gluten-Free... I'm never full, almost always hungry, I've lost a lot of weight already, and when the class/my friends eat something I can't it's torture! I'm having the worst time getting used to this and I'm not even feeling better yet, it's going to take awhile. I really hate this, but it'll be worth it in the end.

  • 3 months later...
DerpTyler Newbie
DerpTyler
Posted

I'm 18, been diagnosed for 7 years. I go to college in Bc Canada, and iv never met another celiac at my school :P

  • 1 month later...
Stern Newbie
Stern
Posted

Hi there!

 

I've been gluten-free for a good... Nearly two years now (With a summer off for a pointless blood test, worst summer ever. >:- | ) I'm in Northern California, I'd love to talk to anyone else around here that's working through Celiac's! x_X Or any other food allergies, don't get me started on my list, no fun. X- P

  • 1 month later...
JetLockheart Newbie
JetLockheart
Posted

I'm 20, I've reacted since I was old enough to eat solid food, but  I've never been truly diagnosed with celiac. At the age of 2 or 3 I was put on a gluten free diet( among other things) for 2 years and that fixed everything for me. Unfortunately I can't afford to be gluten free and its really messing with my college studies.

  • 1 month later...
soccerchic383 Newbie
soccerchic383
Posted

Hey guys. Don't know if this thread is dying but I wanted to introduce myself. I'm Casey (girl) about to turn 18 and I was diagnosed with celiacs about a month ago and enduring that lovely (awful) healing period. I live in northern Cali and I'd love to talk to some other teens with celiacs!!

  • 4 months later...
arfellman Newbie
arfellman
Posted

Hey my names kimberlie . I've been a celiac for almost a year now . I live in cali . Contact me smile.gif I need some celiac friends. I know of only one other celiac Wich is my best friends Grammy .

Where in Cali? I live in Ukiah (North California)

  • 4 months later...
djsimendinger Newbie
djsimendinger
Posted

Hey I'm Dana, I'm 20 and I think I was diagnosed 2 years ago. Glad to meet others who have celiac/can't eat gluten!

  • 1 month later...
gerbilgirl Rookie
gerbilgirl
Posted

I'm a college student.  I'm still in the process of a diagnosis but I definitely have a gluten sensitivity as well as sensitivity to oats even if they are certified gluten free.  I have other allergies as well.  Been eating gluten-free for about a year but lately I seem to be becoming more sensitive, used to be able to eat a small amount of gluten every so often (such as some teriyaki sauce) but now that just doesn't cut it.  Cross-contamination is also becoming an issue.    

  • 1 year later...
LaurenIsSilly Newbie
LaurenIsSilly
Posted

Hi! I'm Lauren from Seattle, I am 18 and I have DH Celiac Disease as well as hypothyroidism. It took me about two years to finally diagnose my disease because I never had any stomach issues, instead my Celiac disease presents as a horrible rash all over my body and face. It has been really hard having to go to high school with such a physically different disease and have had to be home schooled this year. I recently missed my senior prom, and am missing graduation this weekend because of how I look. I wish I could be more confident in how I look, but it's really hard seeing yourself as anything other than how you looked with a raging rash all over. Dating and any type of relationship have been hard to make because I rarely leave the house due to how I look. I hope to hear from some other teens dealing with a similar situation because so far I don't know anyone else like me.

xoxo ~ Lauren  :D

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  • Recent Activity

    1. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    2. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Are Lindt chocolate balls gluten free?

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    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
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      My only proof

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      My only proof

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      Are Lindt chocolate balls gluten free?

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  • Posts

    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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