Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New, Would Love Some Feedback


tomtom009

Recommended Posts

tomtom009 Apprentice

So I recently discovered that I might have celiac. I am a hispanic male, age 28 with celiac in the family (although a very tiny percentage). As far as I can guess I have had this for almost 8 years. I just kinda learned to live with it and since my symptoms were limited the few times I actually went to the doctor with my concerns, were mostly just a waste of time. My main (and pretty much only noticeable symptom) is constant bloating, pretty much after anything I eat and occasionally just at random times regardless of food intake. I started taking BEANO before meals about a year ago and it has really helped, but nowhere close to "solving" the problem. Today I am beginning a no gluten diet on the advice of a friend living with celiac. It's going to be a BIG change for me since I pretty much have been eating anything I want over the past 8 years (although I kicked soda and beer a long time ago). Like I said, I've been just living with the results, figuring there was nothing I could do, until I discovered this illness.

Has anyone had a similar situation like mine?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tomtom009 Apprentice

upon further review I found something interesting. I've read countless stories of Mono having triggered Celiac. I had mono 8 years ago... about the same time I can remember my stomach problems starting.

Mtndog Collaborator

upon further review I found something interesting. I've read countless stories of Mono having triggered Celiac. I had mono 8 years ago... about the same time I can remember my stomach problems starting.

Many people here have found that a virus, surgery or giving birth was a trigger for celiac. For me, it was a double whammy of losing my mom and getting Lyme disease.

I wouldn't be surprised if mono was a common trigger.

Here's something to think about- you mentioned you are Hispanic. I'm Irish and there is some evidence that celiac is higher in certain populations because our ancestors didn't eat wheat. I know this is true of Northern European nationalities- Ireland certainly wasn't growing any wheat. And lactose intolerance is higher in African-Americans because most Africans did not drink cow's milk.

So, the "suggestion" in this research is to eat what your ancestors eat and though it may sound stereotypical, I do much better with potato and root vegetable based foods (and meat)which would make sense.

woodenair Newbie

So I recently discovered that I might have celiac. I am a hispanic male, age 28 with celiac in the family (although a very tiny percentage). As far as I can guess I have had this for almost 8 years. I just kinda learned to live with it and since my symptoms were limited the few times I actually went to the doctor with my concerns, were mostly just a waste of time. My main (and pretty much only noticeable symptom) is constant bloating, pretty much after anything I eat and occasionally just at random times regardless of food intake. I started taking BEANO before meals about a year ago and it has really helped, but nowhere close to "solving" the problem. Today I am beginning a no gluten diet on the advice of a friend living with celiac. It's going to be a BIG change for me since I pretty much have been eating anything I want over the past 8 years (although I kicked soda and beer a long time ago). Like I said, I've been just living with the results, figuring there was nothing I could do, until I discovered this illness.

Has anyone had a similar situation like mine?

My only real symptom from eating gluten is bloating too. Going in for a biopsy. My first doc just said I had IBS and to take beano too. That didn't really work :/

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,807
    • Most Online (within 30 mins)
      7,748

    hamia222
    Newest Member
    hamia222
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Izelle
      Thank you very much for your reply and the information. I much appreciate it
    • cristiana
      Since I've been a member of this forum,  I've seen some people write that they have not been able to tolerate corn, and others nightshades - tomatoes, potatoes, eggplant, and peppers (including bell peppers, chili peppers, and paprika).    However, intolerances can be short term, just while you are healing.    So bear this in mind if you start dropping certain foods from your diet - you may well be able to eat them again once you are healed.
    • trents
      Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages.  The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the blood with tests specifically designed for this purpose. There are a number of these tests that can be run. Some are more specific for celiac disease and thus more reliable than others. The two most common antibody tests ordered by physicians when diagnosing celiac disease are the "total IGA" and the "tTG-IGA" test. At least these two should always be ordered. Here is a an article outlining the subject matter of celiac antibody tests:  If the tTG-IGA levels are 10x normal then it is becoming common practice in some countries to grant a celiac diagnosis on the bloodwork alone. The second stage involves an endoscopy with biopsy of the small bowel lining to look for the damage to the small bowel lining typically caused by celiac disease's inflammatory process over time. This is usually done in response to one or more positives from the blood antibody testing and constitutes confirmation of the antibody testing to eliminate the possibility of false positives. 
    • Izelle
      Hi there, Please can you tell me exactly how this disease is diagnosed? I am also from South Africa Regards Izelle
    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
×
×
  • Create New...